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New DreamWorld image!!  I’m always happy to have a new installment for this series!

Apprenticeship © Sarah Allegra, model Noemi Regalado - detail

Apprenticeship © Sarah Allegra, model Noemi Regalado – detail

This image is a little bit “out of order,” so to speak.  The Apprentice is, obviously, an apprentice, but to someone you haven’t met yet, although you will.  In an ideal world, I would have shown you the Apprentice’s mistress first so it made more sense why she is out collecting herbs and plants and other ingredients, but you’ll have to just trust me on this for now  :)  Hopefully I’ll be able to show you her mistress soon, but that’s going to be a pretty complicated shoot.

This image is extra special because it features a new model for me, Noemi Regalado.  Noemi is not someone who actively pursues modeling like most of the other people I work with.  She happened across my work and sent me an email asking if she could be a part of it.  Of course I said yes!  It took us a little while to find a time to shoot (which was all my fault; I think she first wrote me right around the time of my first sinus surgery and we know how that turned out.  And it seems nothing has calmed down since then!) but eventually we got a time set that worked for us both.

In a way, I’m a little glad that we had a few months to email back and forth and get to know each other a little more before the shoot although I’m sure the wait was maddening for Noemi!  (She will probably deny this because she’s very laid-back and easy going, but still.  Waiting sucks.)  In the course of our email exchange I learned that she has had her own health battles despite only being about the same age as I am.  She is a cancer survivor, currently completely in remission, and I suspect that she will stay that way.  She is a gentle soul but I know she fought that cancer out of her body.  She also participates in mud runs, something I probably would never have had the endurance for even before ME, and since her apartment only allows very small dogs, she volunteers regularly at a German Shepherd rescue group.  Every couple weeks she goes down, takes a dog out for a nice walk, socialization and a whole lot of love.  Then she repeats the process several times.  If that’s not one of the best examples of making lemonade from lemons that you’ve heard, I don’t know what to tell you :)  Shelter dogs have SO MUCH up against them, even the smallest gesture of love and attention can go a long, long way toward helping that dog find his or her forever home.  And so far she has been directly responsible for at least one Shepherd finding a home with a friend of hers!  I’m sure there will be more.

As you can see, Noemi is a very cool chick!  I wanted to come up with some concepts for her which would fit with her personality and her willingness to get uncomfortable and messy for a photo.  We ended up shooting two concepts; this first one that you’ll see today, as I said, is a DreamWorld image, and the second one, which I have not yet edited, will show off her willingness to do what it takes to get the shot.  And I have to say, she was a great model!  She took direction very well and had a better knack for it than some “actual” models I’ve come across ;)

So, let me tell you a little about making Noemi’s mask/headdress for this shot!  It all started with this lovely purple mask which I found at Rite Aid, of all places, on one of my many, many trips there to pick up prescriptions.  The color really caught my eye, I thought it would compliment Noemi well and I also noticed that it was less expensive than the completely blank, white masks at the craft store!  And no built-in swirls with the blank white masks either.  So that was a pretty easy decision to buy it.

Trying on the mask for research, NOT just because it was fun :)

Trying on the mask for research, NOT just because it was fun :)

But of course it can’t just be a basic mask, even if it looked very pretty in its basic form.  The first thing I did was cover it with a layer of lace, which happened to be a remnant cut from my wedding dress (because, surprise!, it was too long ;)).

Mask laceAfter brushing on a layer of fabric glue, I started with a layer of EXTREMELY glittery purple paint.

It doesn't look interesting wet...

It doesn’t look interesting wet…

But it dries into a really stunning color!

But it dries into a really stunning color!

Then I did some trimming on the lace to get the edges to match those of the mask itself.

At this point, I knew I wanted to put some leaves and flowers on it, but I didn’t know much more than that.  So I dragged out my fabric stash (what you’re seeing here is what I’d been able to buy during a HUGE sale!), my glue gun and just started messing around.

mask and loose flowersI knew I wanted to extend the sides of the mask with leaves, so I started there.  Maynard helpfully modeled this part for me.

Maynard is an awesome model, even when he's not facing the camera

Maynard is an awesome model, even when he’s not facing the camera

You can also see that I’d added a bit of black ink around the eye holes, rather like eyeliner.  Just a subtle touch to help draw the viewer’s eye since there was going to be a fair bit going on.

I just played around with different colored flowers and shapes, holding them in place, tweaking things here and there and then suddenly I had a finished mask!  I hadn’t planned on giving it so much vertical volume, that just sort of evolved naturally, but I liked how it looked so I went with it.  Some costumes I have planned out in precise detail before I ever start them, but others are more free-form, like this was.  Always listen to your gut :)

mask four small

A mask! Photos from here out are taken in the bathroom to protect it from over-eager cats.

As I looked at it the next day, I felt like it was 95% there but it needed… something.  I didn’t know what.  I mulled it over and when I woke up the next morning I knew it: mercury silver spray paint.

Krylon’s Looking Glass spray paint is no ordinary silver paint.  It has a truly magical quality to it and I end up using it in almost every costume or prop I paint.  Just the slightest mist gives it a mysterious, magical, ethereal touch.  I try to always keep a couple cans on hand because I never know when I’ll suddenly need them.

So that morning I took the mask outside and let the paint gently kiss the mask; just enough to give it that magical feeling without taking away the beautiful colors of the paint and flowers.  In the photos below (which are a little blurry, sorry, they were taken on my phone) the top photos show details of the flowers unpainted and the bottom have had their silver wash.

Flowers with and without Looking Glass paint

Flowers with and without Looking Glass paint

I filled a basket with appropriately magical-looking items and herbs but it didn’t make it into the final image.  Oh well.  You can see just a little of the vial necklace I made full of purple stones and beads and the gorgeous amulet/brooch.  Jewel tones just loved Noemi’s beautiful skin tone!

And now I’ll let you see the completely finished image along with some detail shots!  The show trees had just started blooming in the woods and the wild queen anne’s lace was bountiful.  Both made a beautiful, more neutral backdrop against Noemi’s vividly colored mask and costume.

sarahallegra.com

Apprenticeship © Sarah Allegra, model Noemi Regalado

Apprenticeship © Sarah Allegra, model Noemi Regalado - detail

Apprenticeship © Sarah Allegra, model Noemi Regalado – detail

Apprenticeship © Sarah Allegra, model Noemi Regalado - detail

Apprenticeship © Sarah Allegra, model Noemi Regalado – detail

Thanks to Noemi for being so patient through all this!  I’m very glad to have made a new friend though all this :)  And I’m very happy with how this turned out!  You’ll all just have to wait a little while longer to see the image where Noemi really proved her devotion to the finished image ;)

I promised you photos from my opening reception at the Creative Arts Group opening reception and here they are!

Of course I got all caught up experiencing the show to remember to take photos once it really got going, so mostly I have photos of the exhibit itself and a few from Geoff.

IMG_1473IMG_1474We had a pretty good turn-out!  And luckily for my anxiety, I knew most of the people who came fairly well which made it much easier on me.

IMG_1475IMG_1476People seemed to really enjoy getting to see the props and costumes up close and realize they really weren’t Photoshopped.  Not, of course, that there’s anything wrong with using Photoshop, I certainly do, frequently and heavily to make the impossible possible, but when I’ve put month and months of work into something, it’s an important distinction.

IMG_1480

Me with the dress and flower footprints from Spring’s Awakening – and my awesome, retro-deer-print dress

IMG_1373IMG_1477

Antlers from Where Black Stars Rise

Antlers from Where Black Stars Rise

Chest piece from Where Black Stars Rise

Chest piece from Where Black Stars Rise

Our old neighbors, Donna and John, showed up, which was really lovely.  It’s been hard on everyone to have suddenly gone from seeing each other every day to every few weeks, so it was great to be able to have them hang out for a little while and gossip about really important topics like Game of Thrones.

John, me and Donna

John, me and Donna

I was completely exhausted afterward and crashed very hard the next day… and a couple after that too.  But it was good to have had the reception and I’m glad it happened, even if I paid for it later.

IMG_1488Maynard crawled up on me after I got home and laid on my chest, giving me sweet little kitty kisses.  I took a photo because he was being so adorable and also to document the fact that I DO still know how to apply makeup, I just don’t bother expending energy on it regularly ;)  I have better things to do with the precious little I have.

It’s been a little while since I posted a new image, and part of that is because I’ve been hard at work getting ready for the show, then recovering, then I was helping Geoff with a really fantastic short film he made.  Are you a sci fi fan?  Like stories about dystopian futures?  Give it a view!  It’s a really cool, original concept which I’m proud to have my name attached to.

Frontiers posterNow… on to my new image!

My good friend Danica is a horse trainer and I discovered she had a cream-colored gypsy vanner stallion named Booger staying with her for a few weeks.  Booger was only going to be with her for a short time, so I quickly rallied Katie and got a shoot scheduled.  Booger perfectly fit a series of images I’ve been wanting to shoot for years, but they required not only a horse, but an extremely specific-looking horse.  Luckily, Booger fit the bill!

Those images will be coming later.  For the mean time, I wanted to make as much use of him as possible, so we shot quite a few concepts.  This one was Katie’s idea, sort of a companion piece to this self portrait I shot, also on a horse (Freddie, who is extremely laid-back) belonging to Danica:

Where Dreams And Shadows Lie © Sarah Allegra

Where Dreams And Shadows Lie © Sarah Allegra

Booger did such a good job!  He’s only about two, a baby in horse years, and he had never modeled before.  It required a lot of fast thinking, re-adjusting and everyone being on their toes, but we got some really wonderful shots!  This is just the first of several which you’ll see; the others will be released as I get to them.

Thanks to Katie and Danica (who really did an incredible job of wrangling an untrained young stallion into doing the weird things we were asking of him), Booger’s owner for letting us photograph him, and especially to Booger for being such a great first-time model!  Many smooches and apples to you, my friend :)

Safely Through The Shadows © Sarah Allegra, model - Katie Johnson

Safely Through The Shadows © Sarah Allegra, model – Katie Johnson

Safely Through The Shadows © Sarah Allegra, model - Katie Johnson - detail

Safely Through The Shadows © Sarah Allegra, model – Katie Johnson – detail

Safely Through The Shadows © Sarah Allegra, model - Katie Johnson - detail

Safely Through The Shadows © Sarah Allegra, model – Katie Johnson – detail

Safely Through The Shadows © Sarah Allegra, model - Katie Johnson - detail.  Look at those feathery legs!!  :D

Safely Through The Shadows © Sarah Allegra, model – Katie Johnson – detail

Safely Through The Shadows © Sarah Allegra, model - Katie Johnson - detail

Safely Through The Shadows © Sarah Allegra, model – Katie Johnson – detail

Something you’ll know about me if you follow me anywhere or have read any other blog entries is my deep, abiding love for Peter S. Beagle and all of his creations.  Yes, he is best known for his beloved masterpiece The Last Unicorn (the same story that was made into an animated film and you probably saw as a child, not grasping its full, profound meaning).  The Last Unicorn deserves every bit of praise it gets and more.  It’s the most incredible story, full of wonder and love and great sorrow… and joy, despite, or because of, the sorrow.  What many people don’t know is that Peter is an exceptionally prolific writer, having written more books and short stories than I can count (A Fine and Private Place is a very close second favorite to The Last Unicorn).  And every single one is just as brilliant of a masterpiece as The Last Unicorn.

In The Lilac Wood, a self portrait

In The Lilac Wood, © Sarah Allegra, a self portrait

I actually don’t remember a time when I didn’t know the story of The Last Unicorn.  As in the book, “there has never been a time without unicorns,” so there was never a time for me without The Last Unicorn.  It came out the year before I was born and I grew up knowing it.  My brother and I both loved it, and to this day can still quote nearly the entire thing by heart.  We would make a game out of it, seeing how long we could volley the script back and forth.  As I got a little older, I started reading the book, and each time I did, I discovered new levels, new depths, new nuances that I hadn’t been old enough to understand before.  It’s a common misconception that Unicorn is a children’s story, simply because the movie made from it was animated. There’s nothing wrong with children reading or seeing the movie, but it is a story for grown-ups.  You can’t fully appreciate the skillful, deft writing, the terrible tragedy, the glorious splendor, the tear-inducing sacrifice, the depth of the characters until you’ve experienced more of life yourself.

And Other Secrets, © Sarah Allegra, Model: Anna Wood

And Other Secrets, © Sarah Allegra, model: Anna Wood

It doesn’t surprise me now that I look back and remember that the very first self portrait I ever took, far before I was a “photographer” or a “self portrait artist” was inspired by the book.  The character of the unicorn, magically transformed unwillingly into a human girl for much of the book, taken from immortality into a body she feels dying all around her, resonated so deeply with me.  I probably don’t have to draw you a very detailed map of how it relates to my experience of living in a shitty body possessed by ME.  And yet the unicorn gains something which sets her apart from all the other unicorns in the world by her ordeal.  She learns regret.  She learns to love.  She is made more full for all her suffering.  It’s a hope I cling to for myself, sometimes harder than others, but one I return to again and again.

The Importance Of Mortality, © Sarah Allegra, a self portrait

The Importance Of Mortality, © Sarah Allegra, a self portrait

About two and a half years ago, Peter magically discovered some of my work which had been inspired by his writing (both The Last Unicorn and other stories) and his business manager, Connor Cochran, reached out to me.  There is still much under wraps and it will all be revealed in time, but we began working together, which was more than a dream come true for me.  Bless him, Peter is the antithesis of the saying “never meet your heroes.”  Meeting Peter only me love him and his writing more.  There truly are few more kind, generous and relentlessly creative people on earth.  And he is this generous with everyone.  At The Last Unicorn Screening Tour (which I HIGHLY recommend you attend!!) he will stay until EVERY SINGLE PERSON who would like to meet him, hug him, have him sign their book or take a photo with him is seen.  Despite the often very long lines, he doesn’t make you feel rushed, he takes his time and lets you say whatever you need to say.  In the moment you’re with him, you are the only person in the entire world and you have his full attention.  This does mean the screenings often end in the wee hours of night, and I don’t know how they all do it, those hours would kill me, but it’s just who Peter is.

Salt Wine - © Sarah Allegra, model: Peter Onorati

Salt Wine – © Sarah Allegra, model: Peter Onorati

A little while after I had signed my contract with Conlan Press, Peter’s publishing house run by Connor, I gathered up my nerve and asked Connor if I could borrow Peter and photograph him as DreamWorld‘s King when they were in town for the next screening.  To my joy, Connor gave me the go-ahead.  This led to a nightmarish few weeks when I frantically created Peter’s incredibly elaborate costume made almost entirely out of paper (fully documented here) but the results were worth every tearful, over-tired night I had getting ready for it.  No one could be DreamWorld‘s King better than Peter.

Beloved Of The Crown - Peter as the King, with Dedeker Winston and Katie Johnson as his maids.

Beloved Of The Crown – Peter as the King, with Dedeker Winston and Katie Johnson as his maids.

Aerie - Peter as the DreamWorld King.

Aerie – © Sarah Allegra, Peter as the DreamWorld King.

Why am I telling you all this?  Just to illustrate what an incredibly special and remarkable person Peter truly is, and how wonderful Connor and everyone at Conlan are.  They put their all into every single screening.  They are genuinely all wonderful people, and Peter is everything you would hope he would be and more.  I’ve been fortunate enough to have attended two of them; the first time was the same day that I photographed Peter so I had no energy for dressing up myself for the show, but the second time I went as Amalthea, as seen below (which won the costume contest that night, probably because of my handmade Have A Taco Purse, which I can make for you too!).  Seeing the movie in a theater never fails to bring tears to my eyes.]

At the screening as Amalthea (with purse) and back at home.

At the screening as Amalthea (with purse) and back at home.

Which, in my rambling, round-about way, leads to the main thrust of this post.  The tour had planned on traveling to multiple countries in Europe this year, and while the movie will still be shown and everyone will still have a fabulous time, Peter will be unable to attend due to a non-threatening health issue.  Peter is ok, there’s nothing to worry about, but still… even non-threatening health issues suck.  Peter hopes to be back on the road soon, but I thought that it might cheer him up if we all rallied and showed him some love.  What do you say?  For our beloved author who writes the stories which make us weep simultaneously from sorrow and joy?  He has given SO MUCH to the world, let’s try and give even a fraction of it back to him!

To Be So Full, © Sarah Allegra, model: Dedeker Winston

To Be So Full, © Sarah Allegra, model: Dedeker Winston

What do I mean by that?  Well, feel free to leave a comment here on the blog.  I’ll send them on to Connor who can forward them to Peter.  Feel free to leave kind words of encouragement on his Facebook page or send him an email at contact@conlanpress.com.  I’m sure he will really appreciate everyone’s show of support!

Sleight Of Hand © Sarah Allegra, featuring my neighbor John Harnagel

Sleight Of Hand © Sarah Allegra, featuring my neighbor John Harnagel

And let’s face it; we owe him.  For decades of wonder, joy and poignant insight.  For holding up mirrors full of fantasy which still reflect ourselves back and help us make new discoveries.  For every brilliant word typed, every tear shed and every heart which grew in size because of his writing.  For showing us what heroes are for.  For bringing us unicorns.

Get well soon, Peter.  We all love you :)

Now Has Come The Time For Silence -© Sarah Allegra, a self portrait

Now Has Come The Time For Silence – © Sarah Allegra, a self portrait

See all my Peter S. Beagle-inspired images here and buy fun things with these images on them here!

It’s time for the big announcement!  The big A Poisoned Sleep of Kissless Dream print giveaway!

I put every single entrant’s name into a random name picker (and put it in for as many times as they’d entered, on whatever platform they’d entered on).  Out of nearly 100 entries, the winner is…. Kelli Blackwood!!!!

Kelli really made the most out of all of her entry options by entering on almost every social media platform available and it clearly paid off!  But what’s most important is that SO MANY of you did so much advocating for ME and helped me raise awareness about it.  Thank you deeply to every single person who entered!!

Congratulation, Kelli!  You will be receiving a gorgeous print of A Poisoned Sleep Of Kissless Dreams.  I just got the prints from my printer yesterday and they look stunning.  I know you’ll love it!

And for everyone else, please feel free to stop by my show at the Creative Arts Group Gallery from June 6th – August 5th to see that image along with seven others and many costumes and props that I made for the images!

A Poisoned Sleep And Kissless Dreaming Sarah Allegra - model: Katie Johnson

A Poisoned Sleep And Kissless Dreaming Sarah Allegra – model: Katie Johnson

Show Time!

Tomorrow I go in for my several-times-a-year nerve-blocking injections.  My pain specialist doctor locates the nerve clusters which are causing the most ruckus and injects them with a numbing medication which quiets them down for a while.  I end up having to do this about twice a year.  It’s not very pleasant; I’m fasted and I have an IV, but at least I’m (usually) fully sedated for the injections themselves.  With a previous pain doctor, I woke up during the procedure once and it’s not something I’d like to repeat.  They tell most people that they can go back to work the day after their injections but, as usual, I am not most people.  I usually end up pretty well bed-bound in pain for about 10 days after them, and I’m still tender for a while after that.  We’re going to be doing some extra sites this time so I imagine it might make my recovery a bit less happy than usual even.

But even with the intense recovery period, which Geoff helps me tremendously with (he gets me anything I need, yells at me to lay down unless I’m getting up to use the bathroom, we watch endless movies in bed, he fetches me vegan donuts to break my fast, he makes sure I have plenty of food and water at all times and I’m as comfortable as possible), they do help.  The pain never completely goes away, but it knocks it down several numbers on the pain scale after my body settles down.  Wish me luck tomorrow!  Right now I’m just looking forward to having it be over; I’m done with anticipating it.

Lost Pride © Sarah Allegra, model Travis Weinand

Lost Pride © Sarah Allegra, model Travis Weinand

Now, on to more pleasant news!

The Court Of The Dryad Queen © Sarah Allegra: model Dedeker Winston

The Court Of The Dryad Queen © Sarah Allegra: model Dedeker Winston

I’m very excited to announce that I will be featured in a local gallery, the Creative Arts Group!  The show will run for almost nine weeks, from June 6th through August 5th.  They will be showing eight of my DreamWorld pieces, with models Dedeker Winston, Katie Johnson, Dan Donohue and Travis Weinand.  This will also be the first show that I’ve been able to use my fancy new printing paper for; Hahnemuhle fine art pearl paper (provided by the truly excellent Lauren from POV Evolving printers in downtown LA).  It’s quite spectacular looking!
In addition to the images, they will also be displaying costume pieces and props I’ve made for the images, including the entire flower-festooned Spring Faerie costume.  This is always how I’ve envisioned DreamWorld images being shown, with the costumes and props alongside the finished images.
Spring's Awakening @ Sarah Allegra; model: Katie Johnson

Spring’s Awakening © Sarah Allegra – model: Katie Johnson

They will also be showing A Poisoned Sleep Of Kissless Dreams, my very latest image and one I’ve spent almost two years working on, and one which you can still win your own print of!

A Poisoned Sleep And Kissless Dreaming Sarah Allegra - model: Katie Johnson

A Poisoned Sleep And Kissless Dreaming Sarah Allegra – model: Katie Johnson

I’m planning on being there the first Saturday of the show, June 6th, from 12-2 for a short opening reception if you’d like to stop by!  If you do come by, firstly, thank you, and secondly, feel free to mention to the gallery staff that you’re there to see my work :)

Many, many thanks to everyone for your help and support along my art journey, whether you’re able to come to this show or not!  The gallery info is below.  I hope to see you all there!  :)

Hours: M-F 10:00 am to 5:00 pm
Sat. 10:00 am to 2:00 pm
(626) 355-8350
108 N. Baldwin Ave. Sierra Madre, CA 91024
creativeartsgroup.org
Lastly, don’t forget that there is still time to enter my ME-awareness-raising print giveawayJust check out my previous post for info on how to enter.  It’s easy and FREE!  The Yellow King will be angry with you if you don’t enter the giveaway ;)
Where Black Stars Rise © Sarah Allegra, model: Dan Donohue

Where Black Stars Rise © Sarah Allegra, model: Dan Donohue

The mystery image revealed!

I’m so happy so many of you have joined in my print giveaway!  There is still time for you to enter, which is free and easy to do!  Scroll down below for details, but most of the ways you enter are simply by sharing/retweeting messages onto various social media outlets – all of which are now embedded in this post!  Just head down to the very end and you’ll see all the different ways you can participate without even leaving this page!

If you missed my last post, let me summarize it for you.  Today, May 12th is Invisible Illness Day; a day we dedicate to raising awareness about illnesses and diseases which can be deadly and have devastating consequences, yet show little to no outward sign.  Every single person with any of these illnesses, such as fibromyalgia, Chronic Fatigue Syndrome,  rheumatoid arthritis, Lyme disease, lupus, multiple sclerosis and Crohn’s Disease, (and, of course, myalgic encephalomyelitis, or ME, which I have*) has been told at least once, “But you don’t look sick.”  As if that invalidates our decades of suffering.  Oh, I’m sorry I didn’t meet your criteria of what a “chronically ill” person looks like; you’re right, I’m 100% fine!  In fact, I’m going to go complete a decathlon, now that I know I’m healthy.

Ok, so clearly simply not appearing outwardly sick doesn’t mean we aren’t ill.  In fact, most people who saw me on the street would probably assume I was a perfectly healthy girl; although one who doesn’t put a lot of effort into her appearance.  The reality is that I am partially house-bound, I can only drive short distances on very good days, almost all “out of the house” errands have to be done on weekends when Geoff can drive and help me, I’m in constant pain and exhausted every single second of my life.  My energy reserves are very low and I have nothing extra to spare on “getting pretty” before I go out.  As long as I’m wearing actual clothes (you have no idea how many times I’ve almost left my house without key clothing items), that’s enough for me.  Shove on a hat so I don’t have to address my naturally curly hair and I’m good!

While I never overly cared about what I looked like in public, I do find myself missing wearing pretty things.  I put far, far more thought and effort into picking out my pajama outfits that my regular clothes outfits.  I’ve accrued quite a collection of PJs at this point, so I can at least feel like those are cute and colorful.

While worrying about one’s physical appearance would seem pretty far down on the priority list of someone with a neurological disease with no cure, and it is for me most of the time, it’s a little more than that.  It’s just one more tiny slice of normal life that chronic illness takes away from you; one more reason for you to resent it.  I don’t actually want to wear the dresses getting dusty in my closet, I want the option to choose to wear them.  That make seem like a small difference, but from this side, it feels big.

While I don’t feel like I can spare the energy for looking beautiful most of the time, beauty is still deeply important to me, and it’s important that I leave the world with more beauty in it than I found it.  It’s like when you go camping with your dad; the camp site is going to be cleaner when you leave than when you got there (or at least, that’s how it was with me dad ;)).  I’ve come to realize that beauty is a big part of why I’m so drawn to art and to create; it’s a very tangible way of leaving the world a little more beautiful.  And in this case, it’s taking the hideous ugliness of disease and transmuting it into something lovely.

With that in mind, I want to introduce my latest image to you; the one I will be giving away a 10″ x 15″ print of on May 29th!

I spoke to you a bit in my last post about why this image is so special… and I’m going that a little bit again :)  For one thing, this is a DreamWorld and Enchanted Sleep crossover piece; the first image of mine which belongs equally to both worlds.  It spoke to me on both levels, and when I was torn about which series to include it in, I finally decided I didn’t HAVE to choose and it could live in both.  Because, while in some ways, DreamWorld is a bit of escapism and fantasy for me, it is not all sunshine and rainbows.  Not many of its dark characters have been photographed yet, but they will be introduced over time.  Even with their benevolent protectors, their King and Queen, the creatures in DreamWorld still have problems.

At the same time, it helps me to look at ME through the lens of myth and fantasy.  Viewing it as a dragon to be slain, a mountain to climb, a thorn in my side to bear; they all help me live with the reality of ME a little more easily.

I have long felt a connection between the stories of Sleeping Beauty and my experience with ME.  A poison, an enchanted sleep (giving birth to my photo series’ title), hope of an awakening under the right conditions… there is a great deal of overlap.  With that said, let me show you the new image!

A Poisoned Sleep And Kissless Dreaming Sarah Allegra - model: Katie Johnson

A Poisoned Sleep Of Kissless Dreams © Sarah Allegra – model: Katie Johnson

Now, this file ended up being a composite of… I don’t even know how many images.  A LOT.  To give you an idea of the huge scale of the piece, here it is with a normal, full-sized image from another shoot with Katie on top of it.

A Poisoned Sleep And Kissless Dreams/Perennial Parisol  © Sarah Allegra - model: Katie Johnson

A Poisoned Sleep Of Kissless Dreams/Perennial Parisol © Sarah Allegra – model: Katie Johnson

So, just roughly eyeballing it, I’d say this is, what, 5-6 times the size of an average image?  And while my camera doesn’t produce the HUGEST files imaginable, this is still pretty darn big.  It was such an enormous file, I had to wait until I’d upgraded my laptop before I could actually work on it.  Any time I tried to edit it on my old laptop, it would crash my whole computer after about 10 minutes of work.  With my new laptop, it only crashes every few days, and usually only crashes Photoshop, instead of my entire system.  Much better :)  All said, this took almost two years from start to finish.  I’d pick it up, do a little work, get overwhelmed and put it back down.  Then I decided it had to be done in time for the giveaway, so that gave me the motivation to finish it up.

A Poisoned Sleep And Kissless Dreams © Sarah Allegra - model: Katie Johnson - detail

A Poisoned Sleep Of Kissless Dreams © Sarah Allegra – model: Katie Johnson – detail

Katie really endured a lot for this shot, poor thing.  The area I shot it in was a naturally ivy-covered area of my old yard… and unfortunately also FULL of spiders and spider webs.

A Poisoned Sleep And Kissless Dreams © Sarah Allegra - model: Katie Johnson - detail

A Poisoned Sleep Of Kissless Dreams © Sarah Allegra – model: Katie Johnson – detail

I’d made a homemade spider repellent (nothing which would harm them, just something with tea tree oil to make the area less appealing to a few days) and sprayed it liberally around the shooting area in the days leading up to the shoot.

A Poisoned Sleep And Kissless Dreams © Sarah Allegra - model: Katie Johnson - detail

A Poisoned Sleep Of Kissless Dreams © Sarah Allegra – model: Katie Johnson – detail

But despite it, it was a pretty intimidating place to ask any sane girl to lay down in, relax, close her eyes and pretend to be asleep.  I promised Katie that I would watch for any spiders actually crawling on her and scoot them off.  I promised no harm would come to her, and, bless her, she trusted me.

A Poisoned Sleep And Kissless Dreams © Sarah Allegra - model: Katie Johnson - detail

A Poisoned Sleep Of Kissless Dreams © Sarah Allegra – model: Katie Johnson – detail

Now despite it being just covered in cobwebs and spiders, I ended up having to add all the cobwebs in Photoshop.  I downloaded a special Photoshop bundle of brushes shaped like cobwebs, which got me started.  It took a ton of manipulation of each little bunch to make it look like it way laying naturally over the different areas, adding light and shading to blend it in to the environment.

A Poisoned Sleep And Kissless Dreams © Sarah Allegra - model: Katie Johnson - detail

A Poisoned Sleep Of Kissless Dreams © Sarah Allegra – model: Katie Johnson – detail

After I got Katie situated, I climbed up on a ladder and started shooting.  But I quickly realized that the ladder wasn’t tall enough to get the framing I wanted, which led to shooting about a million individual frames which I pieced together in Photoshop, which is why it’s such a huge file.  There were some challenges in making everything align since I wasn’t using a tripod, but it helped that Katie had trusted me so completely and was lying perfectly still.

A Poisoned Sleep And Kissless Dreams © Sarah Allegra - model: Katie Johnson - detail

A Poisoned Sleep Of Kissless Dreams © Sarah Allegra – model: Katie Johnson – detail

I had also shot a purple smoke bomb pouring out of the bottle (separately from Katie, I didn’t think that would be good for her to breath) but then that ended up not really looking right either, leading to another element I had to create in Photoshop.

A Poisoned Sleep And Kissless Dreams © Sarah Allegra - model: Katie Johnson - detail

A Poisoned Sleep Of Kissless Dreams © Sarah Allegra – model: Katie Johnson – detail

I always try to do as much work in camera as possible, but sometimes the real world just doesn’t accommodate you!

Katie’s bravery and willingness to do whatever it took to get “the shot” made me create this virtual plaque for her:Slogan 1

Thank you, Katie :)  This image would not exist without you.  It’s one of my very favorite images and I’m SO happy we went through all the difficulties of making it, even though I wanted to tear my hair out at times!

Another thing about this image that’s special is that it will be the first to be printed on my new, museum-quality paper of choice: Hahnemuhle pearl paper.  You really have to see it to believe it.  It is a thick, luscious paper with a bit of texture to it, similar to watercolor paper.  What pushed me over the edge into switching to this paper though, is the very subtle, pearlescent shimmer built into the paper.  It is magic.  And it compliments the ethereal nature of my work so well, it seemed we were made for each other.

And did I mention that this special new print is a $400 value?

Would you like to win this very special print for yourself?  Instructions are below!  If you already saw my first post, skip on to the info about how to enter, if not, please consider taking a moment to read it and see why I’m so passionate about promoting May 12th and my giveaway!

 

The Blue Ribbon © Sarah Allegra, Model: Katie Johnson.  ME's awareness ribbon color is blue.

The Blue Ribbon © Sarah Allegra, Model: Katie Johnson. ME’s awareness ribbon color is blue.

 

My Kingdom Of ME video –

I would like to say that I spent a great deal of reflection on coming up with the idea of my bed being my kingdom, but it was more of a response to thinking, “Shit, I have this video… now I need a name for it…”  But I think it holds true despite it’s spur-of-the-moment conception.

When you spend the vast majority of your time inside your house, it becomes your entire world.  If, on a good day, I take Calantha for a walk around the block, I feel like a Viking setting off to explore new lands (but not planning on Blood Eagle-ing anyone).  If my house is my world, my bedroom is my home, and my bed becomes my kingdom.

Though it is a queen-sized kingdom, it is a kingdom nonetheless.  This is where I am most myself, most honest, most raw, most pure.  I spend most of my time here, in my PJs, hair a mess and no makeup (because who’s going to see it, I don’t feel like putting it on, and I especially don’t feel like washing it off).  This room is most set up for my comfort and is bent to my will.  Why is there such a huge pile of stuff always on my nightstand, or next to my side of the bed?  Because then I can reach it easily, no matter what state I’m in.  Geoff’s side is spick and span, while mine is a crazy jungle, but that’s how it has to be.  In this whole world of things which cause us pain and discomfort, we need there to be someplace that is designed for us.  That is, usually, our beds.  And in my bed, I rule.

In Between Awake And Asleep - © Sarah Allegra

In Between Awake And Asleep – © Sarah Allegra, a self portrait

My art and my Enchanted Sleep series –

Some people are surprised to learn I have a chronic illness, especially one which confines me to my house and bed so much, since I seem to produce a lot of art.  It’s all the result of very careful planning of everything.  I keep my shoots very short and I plan several concepts I can shoot one right after the other while I have my model.  My shoot is usually the only major thing I have planned for the week.  Actually, it’s usually the only major thing I have planned that month.  If we’re driving to a location, my model will usually drive us since I’m often feeling too tired.  I try to bang out as many concepts as I possibly can, then I crash.  Usually the next two or three days will be awful, and I will pay dearly for my shoot.  But after that starts to wear off, I can sort through my images and work on editing them… which is only possible because I can do that with my laptop while lying in bed.  If I had to sit at a desk, I could not be a photographer.

Using my laptop and my Wacom tablet, I can create art again.  There was a while as I was getting sick where I was truly terrified that art would be taken away from me.  In one sense, that did happen, since I had to put away the pencils and paintbrushes which became too painful to wield, but art abhors a vacuum as much as nature does, and photography quickly sprang up in its place, with help from my photographer husband.

Photography has given me a voice.  But it’s more than that.  It’s given a voice to all of us who suffer from these invisible illnesses.  When I started shooting the images which would become a part of my Enchanted Sleep series, portraying what life with ME is like, I never dreamed that other people with illnesses would flock to it like they have.  I unintentionally tapped into an underserved community, and those within it have made their approval loudly known.  I didn’t set out to capture anything but my own experiences, but in doing so, I captured all of ours.

Spoon Theory - a self portrait

Spoon Theory © Sarah Allegra  –  a self portrait

This is why you should care –

ME alone effects millions across the globe.  There are millions and millions more who bear other invisible illnesses, and you might have no idea that they carry these with them everywhere they go.  Most likely, you know someone with one of these illnesses, though it might be undiagnosed.  Most of the invisible illnesses tend to be diagnoses of exclusion; meaning there’s no one test for this disease, so you have to rule out EVERYTHING else that it could be before you decide what it is.  It’s a long, grueling process, and not everyone really wants to know what’s wrong with them anyway.  For me, I couldn’t stand not knowing.

Your aunt who often complains of pain?  Your friend who frequently has to cancel plans?  Your sibling who gets migraines which always come at the worst times?  They may have one of these diseases.

The online chronic illness community (spoonies, we call ourselves) is extremely supportive, but we need to have healthy people on our side too.  We need real changes to be made in the world, and frankly, we are too ill to do it all on our own.

These are not diseases which merely dampen our fun or mildly cramp our style, these are diseases which kill.  Sometimes that death is a suicide, as the patients cannot stand the suffering any longer.  Even if left to more “natural” courses, these illnesses are evil thieves and rob us of years.  They take away our livelihood, our joys, our passions and, eventually, our lives.

How many more of us have to die before the world pays attention?

Unjust © Sarah Allegra - model: Aly Darling

Unjust © Sarah Allegra – model: Aly Darling

A Fading Girl © Sarah Allegra, model: Brooke Shaden

A Fading Girl © Sarah Allegra, model: Brooke Shaden

This is how you enter –

Here’s how this giveaway works.  It’s going to be very easy and there are quite a lot of ways for you to enter!

First thing: subscribe to my blog if you haven’t already.  There’s a button in the upper right-hand section of the screen for you to enter your email address (which you may do safely, without fear of spamming or other annoyances).  Do that, then move on to step two:

You have your choice here!  You can either:

  • Retweet the facts I’ve tweeted about ME (these are embedded at the bottom of this post to make things super easy – you can like or retweet it without even leaving this page!)
  • Like me on Facebook and share my Kingdom Of ME post on Facebook
  • Follow me on Instagram and re-Gram my Kingdom of ME Instagram post
  • (The Facebook and Instagram posts and tweets are all embedded at the bottom of this post to make things super easy – you can like, retweet or share it without even leaving this page!)
  • Like and re-blog this post if you’re a WordPress user

You can do all of those, too!  One note, if you choose to retweet any of my tweets, each new retweet will count as an entry.  I’ve given you quite a lot to choose from, mainly because I couldn’t narrow it down myself any more!  ;)  So, for example, if you retweet all 11 tweets, that will count as 11 entries for you.  However, if you retweet the same tweet more than once, that does NOT count at as extra entry.  The maximum possible Twitter-related entries you can get is 11.  The same idea goes for the other social networking sites too.  If you share my Facebook post, that’s an entry.  If you share the same post twice (which I’m not sure you can do, but let’s say for argument’s sake that you can), then you still only get one entry.

And lastly, whichever social media platform you decide to use to enter the contest from, you must like/follow me there (and here on the blog) for the entry to count!

We Rise Again - © Sarah Allegra

We Rise Again – © Sarah Allegra, a self portrait

And a couple of other ways to enter –

Now, those are all very important ways for you to enter the contest to win a gorgeous print for yourself.  A large part of why the entries are based in social media is to help raise more awareness about ME (and other invisible illnesses) by word of mouth.  However, there is another way you can get more entries for yourself.

Any purchases on ANY of the items I sell from today, May 4th, through midnight, PST, May 27th will count as entries!  This means that EACH INDIVIDUAL ITEM that you buy counts as its own entry.  If you buy five t-shirts from my Red Bubble shop, that’s five extra entries for you!

And on top of the purchases going toward extra entries for you, 25 PERCENT of ALL PROFITS on ALL ITEMS purchased will be donated to the Microbe Discovery Project!  The Microbe Discovery project is a wonderful organization here in the US actively looking for a cause and cure for ME.  I strongly believe in what they do, which is why I have chosen them to benefit from my sales.

It’s a very win-win situation!  You get to buy whatever it is that you’ve had your eye on, you get extra entries into the print giveaway and ME research is supported at the same time!

On May 29th, I will randomly pick one winner from all the entries and that person will receive the print!  It will be signed and numbered and shipped to wherever you live, even if it’s the other side of the world!  :)

One last note about purchases, if you make a purchase, please leave a comment here on the blog and tell me what you purchased and where it was from.  Some of the sites I sell through hide the buyer’s info from me, so I won’t always be able to tell who bought what.  I want to make sure your purchases are properly accounted for!

Martyrs To A Name © Sarah Allegra - models myself and Aly Darling

Martyrs To A Name © Sarah Allegra – models: myself and Aly Darling

This is what I sell –

So, that probably leaves you wondering, what is it that I sell?  Well, quite a lot of things, actually!

I sell museum-quality fine art prints both through my Etsy shop and my gallery representative.

Prices are the same regardless of where you buy, so there’s no need to worry about having “hiked-up gallery prices” :)  My Etsy shop also has a few pieces of “wearable art,” some of which is inspired by DreamWorld characters and some of which was inspired by The Last Unicorn!  There’s also a whole section of ME-inspired images from my Enchanted Sleep series!

Through my Red Bubble shop I sell all of the following items with my images on them:

Aly took and sent me this other lovely shot of her bag!

Aly took and sent me this lovely shot of her carrying her tote bag!  It was a bit strange at first to see my friend carrying a bag with my face in it ;)  We we both quite thrilled with the quality and according to Aly, it’s been getting tons of compliments and the straps are the perfect length!

And for something even more special, I also host a very unique online photography class,  INTROSPECTIVE: A Photographic Quest.

INTROSPECTIVE is much more about self-discovery than it is about knowing what f-stops are or having fancy equipment.  You don’t even have to have an actual camera; your phone will do perfectly well!  The course emphasizes self portraits as a way to get to know yourself better, but the definition of “self portrait” here is quite loose.  You never have to appear in an image unless you really want to.  What I mean by “self portrait” in this case is simply any photograph which shows me something about who you are as a person!
This is a very relaxed, reflective class.  There are no grades and no wrong answers!  For eight weeks, you will receive a new theme each week and your assignment will be to create an image around that theme which reflects you.  Love, joy and fears, for example, are all things you would be asked to create around.

This class is very unique!  I modeled it after my own journey of self-discovery as I started taking self portraits.  The art therapy was so helpful and healing to me that I wanted to give that back to the world in some way, so I created INTROSPECTIVE!

And as an extra bonus, here’s a special coupon code for INTROSPECTIVE!  Use the code May12ME25 to take 25 percent off the cost of the course!  Now that’s a win-win-win!!

Silenced © Sarah Allegra, model Travis Weinand

Silenced © Sarah Allegra: model Travis Weinand

Wrapping up –

I know you guys hear me talk about ME quite a lot, but here’s the thing.  It matters.  It really, really fucking matters.

There is so much confusion, misunderstanding and so many flat-out lies about ME that we all need to work extra hard to shine the light of truth on it.  It’s not all the public’s fault; after all, they’ve been lied to by medical professionals for decades.  It all came unraveling  in the 80’s when ME’s name was intentionally changed to “Chronic Fatigue Syndrome” and given the belittling nicknames of “the yuppie flu,” “the disease of depressed, menopausal women” and, more recently, “fat, lazy housewife disease,” just so insurance companies could deny patients coverage.

ME does not discriminate.  It does not target people by color ,gender, social status or age.  It attacks anyone and everyone it can.  It destroys lives.  It brings promising careers to grinding halts.  It is not a way to “get a free ride;” we struggle just to sit up and get out of bed.

It could be your sister.  It could be your boyfriend or girlfriend.

It could you.

How many more lives have to be sacrificed on the alter of insurance companies’ desires to not pay out before we get change?  How many more patients have to take their own lives in despair?  How many more seriously ill patients have to endure the most hateful slurs you can imagine being thrown at them?  How many doctors will sigh, roll their eyes and tell us there’s nothing wrong with us psychically, that our problems are all in our heads?

No more.

We cannot let this happen to one more person.  Too many have endured this already.

We have the power to make radical changes.  We have the power to change society’s view of us, to force the government to give us proper funding, to stop treating us like Cinderella instead of their own daughters.  We have the power to unlock the mystery of ME and find a cure.  We CAN do this.  But we must come together, make our voices heard and DEMAND it.  It will never be easily handed to us.  Too many huge companies are invested in not spending any money on those with ME.  But while history shows us many ugly truths, it also shows us that we, the common people, have great power in our hands to bring about the changes we want.

We just have to ask for it loudly enough.

Please join me in demanding change for patients with ME.  Things cannot continue the way they are any longer.

And as you help me advocate for invaluable change in the world, you’ll also be giving yourself a chance to win a gorgeous, fine art print :)  Help me with this.  And thank you.

Embedded tweets are just below!

My Kingdom of ME – This self portrait is actually the cover image for a
video I made about May 12th, ME and me. May 12th is known as Invisible
Illness Day. A day to raise awareness about diseases which may have
devastating impacts on peoples' lives, yet may not show any outward signs.
Diseases like ME, which I have. I'm holding a print giveaway for a brand
new image which will be revealed on the 12th to help raise awareness!
Please see my blog for info on how you can enter. It's easy and free!
https://sarahallegra.wordpress.com/2015/05/05/my-kingdom-of-me-and-a-print-giveaway/ #myalgicencephalomyelitis #ME #MECFS #chronic #fatigue #pain #disease #illness
#video #promotion #print #giveaway #blog #youtube
#selfportrait #awareness #giveaway #May12
#InvisibleIllnessDay #fibro #CFS #neurologic #migraine #raw #honest #real
#fineart #DreamWorld #change #hope #queen

A photo posted by Sarah Allegra (@artosthebear) on

3 Good Days

3 Good Days © Sarah Allegra, a triple self portrait

Footnote

[*Because the United States does not officially recognize the name “myalgic encephalomyelitis,” despite decades of public outcry for change and hundreds of thousands signing petitions, they continue to stick to “Chronic Fatigue Syndrome” or “fibromyalgia.”  Depending on which doctor of mine you talk to, I may have three different diagnoses.  The US is especially complicated in how it defines – or, rather, it’s lack of definition – the differences between the three so it’s impossible to talk about one in the US without talking about all of them.  For the record, they are NOT all the same disease, but that is essentially how the US treats them.  I know that what I have is ME and not the other two, but many of my doctors had not have heard of ME until I told them about it.  ME has scientific, diagnosable guidelines, which I fit, but the country still refuses to adopt the name and its excellent guidelines.  If you’re interested in learning more about why this is, here’s an article for you, but for this post, I will leave the subject there.]

 

 

The Blue Ribbon © Sarah Allegra, Model: Katie Johnson.  ME's awareness ribbon color is blue.

The Blue Ribbon © Sarah Allegra, Model: Katie Johnson. ME’s awareness ribbon color is blue.

May 12th – what is it?

We are rapidly approaching May 12th.

Why is that important?

May 12th is recognized across the globe as Invisible Illness Day.  Though most people are unaware of its significance… which is part of the problem.

It’s a day for bringing more awareness to diseases like fibromyalgia, Chronic Fatigue Syndrome,  rheumatoid arthritis, Lyme disease, lupus, multiple sclerosis and Crohn’s Disease, along with many others.  Diseases which can have horrific, devastating effects on the person’s life, yet may not outwardly show.  They can be completely disabling, and the patient still looks “normal” to the world.

And of course, this list includes myalgic encephalomyelitis, or ME, which I have.*

What ME is –

I’ve spoken quite a lot about ME on my blog, so a lot of you probably know the basics of it.  But for anyone new, here’s a quick summary.  ME is a neurological disease defined, in part, by:

  • Profound fatigue which is unrefreshed by rest and sleep.
  • Chronic pain, which can occur anywhere in the body, but is especially common in muscles and joints.
  • Insomnia and other sleep disturbances, despite your constant exhaustion.
  • Post-exertional malaise (meaning you feel worse after you exert yourself — and the exertion can be as simple as a trip to the grocery store or walking to your mailbox).
  • Neurological problems, a.k.a. “brain fog.”  This can manifest in the form of sudden clumsiness, tripping and falling, being unable to recall a word you knew just a second ago, suddenly forgetting how to read or write, forgetting your name… you get the idea.
  • Headaches of new or worsening kinds (I never had migraines until ME started sinking its talons into me).
  • Dysfunctional immune systems (if there’s a cold going around, I will get it).
  • Hyper-sensitivity to any and all stimuli — I describe it as the volume in my brain being turned up to “11.”  Noises are very loud to me, lights are bright, smells overwhelming… the scent sensitivity means that anything artificially fragranced makes me nauseated, but it has led to me find small, unnoticed gas leaks inside houses on several occasions.
  • Post-Exertional Neuroimmune Exhaustion (your brain functions worse in every way after even minimal efforts — mental or emotional efforts as well, not strictly physical ones).
  • Low threshold of physical and mental fatigue (lack of stamina) resulting in a substantial reduction in pre-illness activity level — things you did before you were sick are now out of the question.

And so on.  Because ME affects every system of the body, in a way somewhat similar to multiple sclerosis, the symptoms can vary from person to person, but these are the classic signposts of the disease.

I have what would be defined as a “moderate” case of ME.   A mild case would be someone who could still maintain a somewhat normal life, but would probably need extra recovery time after big events, help lifting heavy objects, etc.  Moderate, like what I have, is someone who can’t work a normal job, is partly or completely house-bound, may not be able to drive and has a great deal of their life impacted by the disease.  Their world becomes much, much smaller and quieter.  Severe cases… you wouldn’t wish them on your worst enemy.  These are people who are completely bed-bound, unable to care for themselves in the most basic ways, unable to tolerate any light, sound or touch.  They lay in dark rooms in silence, often on morphine drips for their severe pain… and this can last for decades.  It’s been described as “a living death,” and for good reason.  It’s truly horrifying.  This is often the time when patients try to take their own lives.

Vanity's Murder - © Sarah Allegra

Vanity’s Murder © Sarah Allegra, a self portrait

My Kingdom Of ME video –

I would like to say that I spent a great deal of reflection on coming up with the idea of my bed being my kingdom, but it was more of a response to thinking, “Shit, I have this video… now I need a name for it…”  But I think it holds true despite it’s spur-of-the-moment conception.

When you spend the vast majority of your time inside your house, it becomes your entire world.  If, on a good day, I take Calantha for a walk around the block, I feel like a Viking setting off to explore new lands (but not planning on Blood Eagle-ing anyone).  If my house is my world, my bedroom is my home, and my bed becomes my kingdom.

Though it is a queen-sized kingdom, it is a kingdom nonetheless.  This is where I am most myself, most honest, most raw, most pure.  I spend most of my time here, in my PJs, hair a mess and no makeup (because who’s going to see it, I don’t feel like putting it on, and I especially don’t feel like washing it off).  This room is most set up for my comfort and is bent to my will.  Why is there such a huge pile of stuff always on my nightstand, or next to my side of the bed?  Because then I can reach it easily, no matter what state I’m in.  Geoff’s side is spick and span, while mine is a crazy jungle, but that’s how it has to be.  In this whole world of things which cause us pain and discomfort, we need there to be someplace that is designed for us.  That is, usually, our beds.  And in my bed, I rule.

In Between Awake And Asleep - © Sarah Allegra

In Between Awake And Asleep – © Sarah Allegra, a self portrait

My art and my Enchanted Sleep series –

Some people are surprised to learn I have a chronic illness, especially one which confines me to my house and bed so much, since I seem to produce a lot of art.  It’s all the result of very careful planning of everything.  I keep my shoots very short and I plan several concepts I can shoot one right after the other while I have my model.  My shoot is usually the only major thing I have planned for the week.  Actually, it’s usually the only major thing I have planned that month.  If we’re driving to a location, my model will usually drive us since I’m often feeling too tired.  I try to bang out as many concepts as I possibly can, then I crash.  Usually the next two or three days will be awful, and I will pay dearly for my shoot.  But after that starts to wear off, I can sort through my images and work on editing them… which is only possible because I can do that with my laptop while lying in bed.  If I had to sit at a desk, I could not be a photographer.

Using my laptop and my Wacom tablet, I can create art again.  There was a while as I was getting sick where I was truly terrified that art would be taken away from me.  In one sense, that did happen, since I had to put away the pencils and paintbrushes which became too painful to wield, but art abhors a vacuum as much as nature does, and photography quickly sprang up in its place, with help from my photographer husband.

Photography has given me a voice.  But it’s more than that.  It’s given a voice to all of us who suffer from these invisible illnesses.  When I started shooting the images which would become a part of my Enchanted Sleep series, portraying what life with ME is like, I never dreamed that other people with illnesses would flock to it like they have.  I unintentionally tapped into an underserved community, and those within it have made their approval loudly known.  I didn’t set out to capture anything but my own experiences, but in doing so, I captured all of ours.

Spoon Theory - a self portrait

Spoon Theory © Sarah Allegra  –  a self portrait

This is why you should care –

ME alone effects millions across the globe.  There are millions and millions more who bear other invisible illnesses, and you might have no idea that they carry these with them everywhere they go.  Most likely, you know someone with one of these illnesses, though it might be undiagnosed.  Most of the invisible illnesses tend to be diagnoses of exclusion; meaning there’s no one test for this disease, so you have to rule out EVERYTHING else that it could be before you decide what it is.  It’s a long, grueling process, and not everyone really wants to know what’s wrong with them anyway.  For me, I couldn’t stand not knowing.

Your aunt who often complains of pain?  Your friend who frequently has to cancel plans?  Your sibling who gets migraines which always come at the worst times?  They may have one of these diseases.

The online chronic illness community (spoonies, we call ourselves) is extremely supportive, but we need to have healthy people on our side too.  We need real changes to be made in the world, and frankly, we are too ill to do it all on our own.

These are not diseases which merely dampen our fun or mildly cramp our style, these are diseases which kill.  Sometimes that death is a suicide, as the patients cannot stand the suffering any longer.  Even if left to more “natural” courses, these illnesses are evil thieves and rob us of years.  They take away our livelihood, our joys, our passions and, eventually, our lives.

How many more of us have to die before the world pays attention?

Unjust © Sarah Allegra - model: Aly Darling

Unjust © Sarah Allegra – model: Aly Darling

A DreamWorld/Enchanted Sleep crossover print giveaway!

I try to always do something around May 12 to help bring awareness to ME and its sister diseases.  This year, I’m going to be giving away a print of a brand-new image… one which won’t be revealed until May 12th itself.  It’s going to be a really, really great image though, I can promise you :)

This one will feature model Katie Johnson, and it’s so complicated, I’ve been working on it on and off for about two years.  I had to put it aside for a long time until I upgraded my laptop.  The file size was SO huge, I could only work on it for about ten minutes before it would crash my entire computer.  Obviously, that didn’t work for me.  It’s still a monster of a file, but on the new machine it only crashes Photoshop every few days, which is much better..

This image will be very unique in that it straddles both DreamWorld and Enchanted Sleep, a foot in each world like the Pillar of Hercules.  No other image of mine does this.  It will be a first on several fronts!

Another thing about this image that’s special is that it will be the first to be printed on my new, museum-quality paper of choice: Hahnemuhle pearl paper.  You really have to see it to believe it.  It is a thick, luscious paper with a bit of texture to it, similar to watercolor paper.  What pushed me over the edge into switching to this paper though, is the very subtle, pearlescent shimmer built into the paper.  It is magic.  And it compliments the ethereal nature of my work so well, it seemed we were made for each other.

Did I mention that this special new print is a $400 value?

Is your interest peaked?  Want to win the print for yourself?  Instructions are right below.  :)

A Fading Girl © Sarah Allegra, model: Brooke Shaden

A Fading Girl © Sarah Allegra, model: Brooke Shaden

This is how you enter –

Here’s how this giveaway works.  It’s going to be very easy and there are quite a lot of ways for you to enter!

First thing: subscribe to my blog if you haven’t already.  There’s a button in the upper right-hand section of the screen for you to enter your email address (which you may do safely, without fear of spamming or other annoyances).  Do that, then move on to step two:

You have your choice here!  You can either:

You can do all of those, too!  One note, if you choose to retweet any of my tweets, each new retweet will count as an entry.  I’ve given you quite a lot to choose from, mainly because I couldn’t narrow it down myself any more!  ;)  So, for example, if you retweet all 11 tweets, that will count as 11 entries for you.  However, if you retweet the same tweet more than once, that does NOT count at as extra entry.  The maximum possible Twitter-related entries you can get is 11.  The same idea goes for the other social networking sites too.  If you share my Facebook post, that’s an entry.  If you share the same post twice (which I’m not sure you can do, but let’s say for argument’s sake that you can), then you still only get one entry.

And lastly, whichever social media platform you decide to use to enter the contest from, you must like/follow me there (and here on the blog) for the entry to count!

We Rise Again - © Sarah Allegra

We Rise Again – © Sarah Allegra, a self portrait

And a couple of other ways to enter –

Now, those are all very important ways for you to enter the contest to win a gorgeous print for yourself.  A large part of why the entries are based in social media is to help raise more awareness about ME (and other invisible illnesses) by word of mouth.  However, there is another way you can get more entries for yourself.

Any purchases on ANY of the items I sell from today, May 4th, through midnight, PST, May 27th will count as entries!  This means that EACH INDIVIDUAL ITEM that you buy counts as its own entry.  If you buy five t-shirts from my Red Bubble shop, that’s five extra entries for you!

And on top of the purchases going toward extra entries for you, 25 PERCENT of ALL PROFITS on ALL ITEMS purchased will be donated to the Microbe Discovery Project!  The Microbe Discovery project is a wonderful organization here in the US actively looking for a cause and cure for ME.  I strongly believe in what they do, which is why I have chosen them to benefit from my sales.

It’s a very win-win situation!  You get to buy whatever it is that you’ve had your eye on, you get extra entries into the print giveaway and ME research is supported at the same time!

On May 29th, I will randomly pick one winner from all the entries and that person will receive the print!  It will be signed and numbered and shipped to wherever you live, even if it’s the other side of the world!  :)

One last note about purchases, if you make a purchase, please leave a comment here on the blog and tell me what you purchased and where it was from.  Some of the sites I sell through hide the buyer’s info from me, so I won’t always be able to tell who bought what.  I want to make sure your purchases are properly accounted for!

Martyrs To A Name © Sarah Allegra - models myself and Aly Darling

Martyrs To A Name © Sarah Allegra – models: myself and Aly Darling

This is what I sell –

So, that probably leaves you wondering, what is it that I sell?  Well, quite a lot of things, actually!

I sell museum-quality fine art prints both through my Etsy shop and my gallery representative.

Prices are the same regardless of where you buy, so there’s no need to worry about having “hiked-up gallery prices” :)  My Etsy shop also has a few pieces of “wearable art,” some of which is inspired by DreamWorld characters and some of which was inspired by The Last Unicorn!  There’s also a whole section of ME-inspired images from my Enchanted Sleep series!

Through my Red Bubble shop I sell all of the following items with my images on them:

Aly took and sent me this other lovely shot of her bag!

Aly took and sent me this lovely shot of her carrying her tote bag!  It was a bit strange at first to see my friend carrying a bag with my face in it ;)  We we both quite thrilled with the quality and according to Aly, it’s been getting tons of compliments and the straps are the perfect length!

And for something even more special, I also host a very unique online photography class,  INTROSPECTIVE: A Photographic Quest.

INTROSPECTIVE is much more about self-discovery than it is about knowing what f-stops are or having fancy equipment.  You don’t even have to have an actual camera; your phone will do perfectly well!  The course emphasizes self portraits as a way to get to know yourself better, but the definition of “self portrait” here is quite loose.  You never have to appear in an image unless you really want to.  What I mean by “self portrait” in this case is simply any photograph which shows me something about who you are as a person!
This is a very relaxed, reflective class.  There are no grades and no wrong answers!  For eight weeks, you will receive a new theme each week and your assignment will be to create an image around that theme which reflects you.  Love, joy and fears, for example, are all things you would be asked to create around.

This class is very unique!  I modeled it after my own journey of self-discovery as I started taking self portraits.  The art therapy was so helpful and healing to me that I wanted to give that back to the world in some way, so I created INTROSPECTIVE!

And as an extra bonus, here’s a special coupon code for INTROSPECTIVE!  Use the code May12ME25 to take 25 percent off the cost of the course!  Now that’s a win-win-win!!

Silenced © Sarah Allegra, model Travis Weinand

Silenced © Sarah Allegra: model Travis Weinand

Wrapping up –

I know you guys hear me talk about ME quite a lot, but here’s the thing.  It matters.  It really, really fucking matters.

There is so much confusion, misunderstanding and so many flat-out lies about ME that we all need to work extra hard to shine the light of truth on it.  It’s not all the public’s fault; after all, they’ve been lied to by medical professionals for decades.  It all came unraveling  in the 80’s when ME’s name was intentionally changed to “Chronic Fatigue Syndrome” and given the belittling nicknames of “the yuppie flu,” “the disease of depressed, menopausal women” and, more recently, “fat, lazy housewife disease,” just so insurance companies could deny patients coverage.

ME does not discriminate.  It does not target people by color ,gender, social status or age.  It attacks anyone and everyone it can.  It destroys lives.  It brings promising careers to grinding halts.  It is not a way to “get a free ride;” we struggle just to sit up and get out of bed.

It could be your sister.  It could be your boyfriend or girlfriend.

It could you.

How many more lives have to be sacrificed on the alter of insurance companies’ desires to not pay out before we get change?  How many more patients have to take their own lives in despair?  How many more seriously ill patients have to endure the most hateful slurs you can imagine being thrown at them?  How many doctors will sigh, roll their eyes and tell us there’s nothing wrong with us psychically, that our problems are all in our heads?

No more.

We cannot let this happen to one more person.  Too many have endured this already.

We have the power to make radical changes.  We have the power to change society’s view of us, to force the government to give us proper funding, to stop treating us like Cinderella instead of their own daughters.  We have the power to unlock the mystery of ME and find a cure.  We CAN do this.  But we must come together, make our voices heard and DEMAND it.  It will never be easily handed to us.  Too many huge companies are invested in not spending any money on those with ME.  But while history shows us many ugly truths, it also shows us that we, the common people, have great power in our hands to bring about the changes we want.

We just have to ask for it loudly enough.

Please join me in demanding change for patients with ME.  Things cannot continue the way they are any longer.

And as you help me advocate for invaluable change in the world, you’ll also be giving yourself a chance to win a gorgeous, fine art print :)  Help me with this.  And thank you.

Embedded tweets are just below!

3 Good Days

3 Good Days © Sarah Allegra, a triple self portrait

Footnote

[*Because the United States does not officially recognize the name “myalgic encephalomyelitis,” despite decades of public outcry for change and hundreds of thousands signing petitions, they continue to stick to “Chronic Fatigue Syndrome” or “fibromyalgia.”  Depending on which doctor of mine you talk to, I may have three different diagnoses.  The US is especially complicated in how it defines – or, rather, it’s lack of definition – the differences between the three so it’s impossible to talk about one in the US without talking about all of them.  For the record, they are NOT all the same disease, but that is essentially how the US treats them.  I know that what I have is ME and not the other two, but many of my doctors had not have heard of ME until I told them about it.  ME has scientific, diagnosable guidelines, which I fit, but the country still refuses to adopt the name and its excellent guidelines.  If you’re interested in learning more about why this is, here’s an article for you, but for this post, I will leave the subject there.]

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