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Posts Tagged ‘bird’

Oh my goodness… so, so much has happened recently that I feel completely overwhelmed in sitting (or, rather, laying) down to tell you about it!  But I have a new image to share with you and I really wanted to post it and maybe give you guys a little gloss-over update at least, so I’m just going for it.  If I let myself think about it any longer, I’ll just get frozen with intimidation over how much I’d like to cover!

First news: health is poor.  I mean, yes, you all know my health is pretty much always poor, but it’s been even more so lately.  I feel like it’s been slowly sliding downhill over the past… year?  year and a half?  two years?  But the last six-to-nine months have been extra bad.  I think I’ve told some of you at least about the “hot flashes” I’ve been getting.  It’s actually quite a lot more complicated than calling them “hot flashes” implies, but I don’t know a better name to get the general idea across with, so we’re going to call them “hot flashes.”  What it really is, is my body suddenly seems unable to regulate its temperature properly, which sends me into sudden, drenching sweats, often while I’m shivering with cold at the same time.  Very similar to the sort of sweats you get with a fever, but it only lasts a few hours, it comes and goes quite randomly, I have absolutely no other fever symptoms and it seems to ONLY happen in the morning (because that’s when my day is busiest, I have the most appointments scheduled, etc, so it can be the most obnoxious).  This sounds like something that’s just annoying, which it is, but it’s quite a bit worse than that.  It makes me weak and lightheaded, it’s not something I can simply push through by will alone; I might have to cancel appointments or send Geoff to the grocery store on his own.  We both utterly detest grocery shopping, but I’m much too weak to do it on my own anymore, and if I at least go with Geoff, it’s company for a task no one enjoys, so I always feel bad if I have to make him do it by himself.

These were getting so bad and disruptive for a while that I saw my GP about it.  He tested my thyroid and a couple of other things in my blood, examined me, decided it wasn’t anything menopause-related (which, yes, would be QUITE young to start having them, but stranger things have happened), said it sounded hormonal and sent me on my way.  I saw my neurologist, he said it wasn’t anything neurological and I should probably see an endocrinologist; a doctor who specializes in looking at your hormones.  I also happened to see my pain specialist during this time just for my every-three-months-check-in, and mentioned it to him, and he agreed it sounded hormonal, but was outside his expertise.  So I did some research, found an endocrinologist nearby who got good reviews online and made an appointment.

The first bad sign was that the endo’s office doesn’t accept credit cards of any kind, only cash or checks, which they had not mentioned in ANY of the conversations I had with them when I set my appointment up.  Not only is that just absurdly behind the times, but I, like most people this day and age, very, very rarely carry either cash or a checkbook on me.  Before going to this doctor, I couldn’t tell you the last time I wrote a check.  Thankfully, I happened to have shoved my checkbook in the bottom of my purse anyway, but I had a mini panic attack in the waiting room wondering how I was going to pay these people.

Eventually I found it though and went into my appointment, which was mostly going over my medical history with the doctor and explaining what the problem I was seeing him for was.  Obviously, my medical history is much more like something George RR Martin would write about than a quick-read paperback, but the doctor interrupted me quite a lot as I tried to tell him details which were important and extremely pertinent to the hot flashes I was seeing him for.  Obviously, I did not care for that, but it is a very common problem with doctors.  If I wrote off every doctor who interrupted me while I was explaining things, I wouldn’t have any doctors left to see.  Anyway, he ALSO agreed it sounded hormonal and said we’d run a bunch of blood tests to see what was going on.  We’d be repeating everything my GP had already run because, the endo said, his tests were more thorough.  Ok, fine.  Six vials of fasted blood later, they were sent to the lab, Geoff bought me breakfast and I waited a week’s time until I could get my results from the doctor.

In this appointment (paid for with the check book which I’d triple-checked was still in my purse after the stress of the first visit), the doctor went over each page of the bloodwork results with me, explaining what was tested and how every single thing came back normal.  My blood was normal, thus, I was “perfectly healthy!” and did not need to see him any more expect for in another six months to recheck my blood and make sure it was still all normal and I was healthy.

Obviously, I am not healthy.  Even if you discount my mountain of other ME-related issues, the fact that I was presenting with extremely hormonal-sounding problems should indicate that something is amiss.  This doctor had absolutely no interest in finding out what this life-interrupting issue was though.  The impression he gave me was that he thought I was an overly worried, mildly hypochondriac girl getting her pigtails in a twist over nothing and that showing me that my bloodwork said there was nothing wrong would make the problem go away, because it was  probably something I’d dredged up on my own through pure will.  But the most offensive part of all… he did not check one single motherfucking hormone.  Not ONE.  On a case where three other doctors all had said the issue sounded hormonal, I told him I was concerned it was hormonal, he didn’t bother to check anything.

I’ve since been told by other people who have to see endos regularly that you usually have to specifically ask them to check your hormones, if that’s something you want.  WHY???  You don’t have to do this with ANY OTHER medical specialty.  I don’t have to tell my neurologist to check my brain, I haven’t had to tell my gynecologist to examine my lady parts.  How is this something that is not only allowed, but is COMMON in this one niche???

At the time he was going over the bloodwork with me in the room, I was trying to control being wildly disappointed over having yet another problem come back testing as “normal” and being shunted off again, again being treated as if I was making this all up, again being patronizingly patted and being told to not worry my pretty little head about it.  Look, I’m sorry that my disease isn’t something they teach a lot about in medical school, I really am.  I’m sorry that most doctors feel threatened when confronted with something they can’t simply write a prescription for and it’s solved.  I’m sorry that it makes them feel insecure, as if they don’t know what they’re doing because I don’t have an easy fix.  I am far, far sorrier about that than any doctor who’s treated me like a hot potato could ever be.  But I do not go around to doctors’ offices for fun to mock them for their lack of knowledge.  I go in with an open mind every time, despite years of consistent disappointment, hoping that, just maybe, this will be the time when I get an answer.  Not even THE answer, just a part of it.  But to not test any hormones for a presenting issue that, to every lay-person and doctor I’ve spoken to, sounds extremely hormonal is inexcusable.  I spent a lot of money in copays, I spent six vials of blood my body could have used, I spent a lot of time gearing up for appointments and recovering from them, I spent incredibly precious energy getting to my appointments, getting tests done, and sobbing after my last appointment as my hopes were again dashed and I realized it had all been wasted.  The absolute least the doctor could have done was run the tests I wanted done but didn’t know that I had to ask for specifically by name, because that’s how endocrinologists are.

Each time I have one of these horrible experiences with medical professionals, it makes it so, so much harder to even fathom trying again.  Why should I if most of them are going to just call me crazy and kick me out of their offices as quickly as possible?  And of course I know that I have to keep trying because giving up isn’t an option, but for fuck’s sake, can’t they at least try and meet me in the middle somewhere?

After that edifying experience, I couldn’t even bear the thought of looking for another endo and starting the process over again, even knowing now that you have to ask for your hormones to be tested.  The wound was just too raw.  What I did have was an appointment set up with Celestine Grace, my very favorite medium, who’s helped me a lot in the time we’ve been working together.  I asked her what would help my body and she told me to take rose hip supplements, which I knew are very high in vitamin C.  They’re cheap and easily available from Amazon, so I got a bottle and started taking them.  And you know what?  Within a couple weeks, my hot flashes had gone down considerably.  They still popped up now and then, but the difference was huge.  I ran out of them and it took a few days before I could get my replacement bottle in, and while I was off them, my hot flashes spiked again.  I’m back on them now and they’re going back down, but it might take a couple weeks, like it did the first time.

I am so, so grateful to Celestine for that bit of advice and for helping to turn around a very bad situation (and also all the other help and advice she’s given me over the year or so we’ve known each other) but it’s so incredibly ironic to me that four conventional doctors couldn’t or wouldn’t help me, but my medium did.  It goes to show the strength of her talent while underscoring how little conventional Western medicine has to offer me.  Thank you, Celestine, I can’t tell you how much those rose hips have helped me!

The whole thing got me thinking that I may just need a whole different approach to my health, so I began to look into different specialists and alternative treatments.  I mean, that’s something I’m continually on the lookout for, but I was searching with a new urgency this time.  Giving vitamin C intravenously has been a growing trend… since my body had responded well to the rose hips, maybe it would like a more concentrated dose even more!  I have found a naturopath who is nearby, returned my phone call herself to discuss if we would be a good fit for each other and offers IV vitamin C along with a ton of other therapies I’ve been interested in but haven’t been pushed far enough to try yet, since most are expensive and not covered by insurance.  I have an appointment with that doctor next Monday morning, which will just be a consultation between one to two hours where we just go over my history, what changes I’d like to see and what treatments might be good for me.  They also test hormones.  🙂  As hard as it is for me to allow myself to be hopeful that maybe this time it will work, I can feel hope trying to quietly creep in.  I’ll let you guys know how that appointment goes.

As my body has gotten more and more painful and uncomfortable to inhabit, I’ve been turning to my own form of spirituality for strength and comfort.  It works for me.  It helps significantly, so much so that Geoff has noticed its effect.  It’s a bit too much to get into it all now, but it’s based in meditation and finding my own path up the mountain toward god/source.  A lot of it might sound like new age woo-woo, but I stick with what works, and this does.  My variety of spirit guides have been a big part of keeping me from utterly falling apart as things have gotten more and more difficult all around… just thinking about them makes me feel more peaceful.

I frequently mourn the health I once had, the life I once had, everything ME has taken away from me.  I mourn for those who I wish I could have gotten to know in this life and not just in the next.  I still mourn the loss of our previous home with our incredible neighbors, even though this place is finally feeling more like home and we have great new neighbors here.  Mourning is a universal human experience; I’m sure every one of you can think of things you mourn.

My new city has a lovely, tiny, serene, old little cemetery within what would be walking distance for most people from my home.  I wanted to shoot there when I had the excellent Teri Wyble over (quite a while ago now, I’m terribly behind on editing).  I didn’t know exactly why I wanted to shoot there, or what I was trying to say at the time.  This sometimes happens.  I’ve learned by now to just go with it, that its reason will become clear to me later.  That was the case with this image.  I asked Teri to imagine this was the grave of someone she loved and missed horribly; someone whose loss she still mourned.  I don’t know if she was tapping into a loss in her own life or if she’s just very good at imagining, but she portrayed exactly what I wanted:

Loss.  An inability to move on from the blow of death.

But I didn’t want it to be completely bleak.  The birds swooping in to comfort her speaks to me of the healing that comes after we let ourselves grieve.  Yes, you have to pass through the darkness first, but there is eventually light.  Sometimes it comes to you on feathered wings when you least expect it.

Whether the viewer has recently experienced this themselves or not, it’s such a common part of just being human, I wanted to create this.  Not to wallow in the mud of despair, but to remind myself that the heaviness will someday lift.  The pain will ease.  The grief will lessen.  Maybe even, a treatment will eventually work.

Thank you so very much, Teri, for your beautiful, emotive modeling!  You are a wonderful human being and model.  🙂

Enjoy, my friends!  If this speaks to you, I’d love to hear what it brings up if you’d like to share that in the comments!

Mourning Dove

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***Spring Special for pet portraits going on now!!  Read on for details!***

The Lady's Doing © Sarah Allegra - featuring my darling Calantha with me

The Lady’s Doing © Sarah Allegra – featuring my darling Calantha with me

I’m sure you’ve noticed how often I incorporate animals, both pets and wild animals, into my photography.  I do it because I love animals and because their presence in my work gives an extra sense of depth and wonder to my images.

The Court Of The Dryad Queen © Sarah Allegra

The Court Of The Dryad Queen © Sarah Allegra

A surprising and unexpected offshoot of that has been that people started asking me to photograph their pets.  They want to immortalize their furbabies with the same sense of beauty and grandeur I infuse into my fine art photography.  They wanted me to capture their animals like I capture my pets.  It wasn’t something I thought of on my own, but my audience asked for it… and I have really enjoyed it, so I want to extend this idea to everyone!

Where Dreams And Shadows Lie © Sarah Allegra

Where Dreams And Shadows Lie © Sarah Allegra

Having pet parents entrust me with capturing their animal’s own natural beauty is an opportunity I take seriously and treasure.  As someone with two cats and a dog of her own, who are all like my children, I know how deep the animal-human bond can be.

Carried Away By The Wind © Sarah Allegra

Carried Away By The Wind © Sarah Allegra

I also just plain love animals; all animals!  Getting to spend time with them behind my lens is my idea of a good day 🙂

Daisy's Hill © Sarah Allegra

Daisy’s Hill © Sarah Allegra

I’m happy to announce that I am holding a Spring Special on my pet portrait services!  This special will give you a discount on my usual rate starting at $2500, now starting at only $2000!  This investment gives you completely unique, original art of your furbaby and two museum-quality prints which will last a lifetime and more.

sarahallegra.com

Jake © Sarah Allegra

Completely custom art staring your pet and two prints??  It’s an incredible value!

Of Milk And Honey

Of Milk And Honey © Sarah Allegra

Would you like a portrait of your darling?  Or do you want to see your baby featured in my DreamWorld series or another collection?  I’m more than happy to discuss details and concepts (and I offer reduced pricing for animals included in a series)!

Where She Learned About Joy 900

Where She Learned About Joy © Sarah Allegra

Interested in setting up a session?  Email me at sarah@sarahallegra.com!  We can discuss all the different options available!

Where The Brave Shall Live Forever © Sarah Allegra

Where The Brave Shall Live Forever © Sarah Allegra

 

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As we approach Black Friday, Small Business Saturday and Cyber Monday, I have another post about my wares, this time with a big, fat, site-wide discount!

Now Has Come The Time For Silence - © Sarah Allegra - fine art print

Now Has Come The Time For Silence – © Sarah Allegra – fine art print

Enter code MYTHIC2014 to get a whopping 20% off any and all items from my Etsy shop!  This is a huge sale, the biggest I’ve ever created, so take advantage of it while it’s active!  It will be good until January 31st 2015; perfect for buying holiday gifts for yourself and others, as well as spending any Christmas money you might get 🙂

Let me tell you a little bit about my prints.  They are made at an extremely high-quality printer in downtown Los Angeles.  My printer is not at all easy to get to; there is always traffic and I manage to get lost and the entire experience of getting there is terrible, but I wouldn’t change printers for the world.  Even if I moved out of state, I’d keep using them and have them ship me my prints.  The incredible quality of the prints they deliver is just that high.

Aerie - © Sarah Allegra - fine art print

Aerie – © Sarah Allegra – fine art print

Each and every image is carefully calibrated to reveal even the tiniest details.  They somehow manage to keep the highlights high and the lowlights low without a single pixel’s worth of detail loss.  The colors are an exact match for how I intend the images to look.  These are NOT easy things!  I have been through many printers before I found POV Evolving.  And a special shout-out and thank you to Lauren, who always handles my orders!  She is a delightful person and makes sure each and every image created is perfect.

In addition to all that, they only use archival inks and paper, making prints that are museum-quality and which will last for a lifetime!  The paper they use is this thick, luscious paper, almost like watercolor paper; nothing cheap or flimsy.  Every single time I have an image printed, I’m impressed with how amazing it looks, even though I’ve been seeing how great they look for several years!

To The Lost - © Sarah Allegra - fine art print

To The Lost – © Sarah Allegra – fine art print

In addition to the incredible quality of every print, all my images come in limited edition runs.  There are a few exceptions, but generally it looks like this:

12 size small prints at 8″ x 12″

10 size medium prints at 10″ x 15″

7 size large prints at 16″ x 24

That means that there will only ever be 7 prints made of that particular image in that size, in the entire world, ever!

Occasionally, I also have props or wearable art available in my shop as well!  Right now, you can have your own Wind Goddess headdress, which also looks quite wintery, for not very much 🙂

Where Earth Meets The Sky - detail.

Where Earth Meets The Sky – detail.

The Wind Goddess Headdress available on Etsy now!!

The Wind Goddess Headdress available on Etsy now!

I also have a section of my shop dedicated to ME/CFS/fibro-inspired prints from my Enchanted Sleep series!

Each and every print will come signed and numbered along the white border.  If you’d like a short, special message included, I’m happy to add that for you, free of charge!

One more word about my prints; the quality of them was high enough that Peter S. Beagle himself took them along legs of his The Last Unicorn screening tour.

Five of my prints along the left side of this photo (photo not taken by me)

Five of my prints along the left side of this photo (photo not taken by me)

This was extra special because not only was Peter S. Beagle, one of the biggest sources of inspiration to me and one of my two favorite authors (the other being Robin McKinley) had this adorable moment with Game Of Thrones author George RR Martin right in front of my prints:

Peter S. Beagle and George RR Martin with plushies, in front of my prints!

Peter S. Beagle and George RR Martin with plushies, in front of my prints!

I’d like to say quickly that the above photo went a bit viral and I have been credited as the photographer, but I did not take this photo.  I wasn’t even in the same state as they were at the time!  I tweeted about the photo since it’s adorable and also in front of my prints, and then it really took off, but I did not snap the image, and though I have tried to correct news sources, they continue listing me as the photographer.  So, I’m sorry to whoever did take this photo; I have tried to set the record straight!

This Dying Body - © Sarah Allegra

This Dying Body – © Sarah Allegra – fine art print

Take a look around my Etsy shop and don’t forget to use your discount code MYTHIC2014 to get 20% your entire order!  Let me restate that this is the biggest, farthest-reaching sale I have ever had on my prints, so be sure to take advantage of it while it lasts!

If there is a certain image you’d like a print of, or you see an image you like but want it in a different size, just let me know!  Some of my images are under contract and I am unable to sell prints of them for that reason, but the majority of the time, I will be able to accommodate you very easily!

Remember, the discount code is only good until January 31st 2015, so get ready, get set… go!!  Happy shopping!

Katie Jonson being silly and posing with a framed print she modeled in

Katie Jonson being silly and posing with a framed print she modeled in

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Lady Death is another DreamWorld character I’ve had in my head for a long time before I had the chance to photograph her.  Sometimes that can be frustrating to postpone your idea for so long, but in this case, I’d imagined the image for so long and in such detail that it made for an extremely easy shoot!  I knew exactly where everything should go, how to light it, the pose I wanted; it was all in my head and I just had to get it shot.

Lady Death © Sarah Allegra - detail

Lady Death © Sarah Allegra – detail

Let me tell you a little bit about the inspiration of her character.  Lady Death is, as her name suggests, the incarnation of death within DreamWorld, but I didn’t want her to be the common, dark, grim-reaper version of death we see portrayed frequently.  The concept of how she would appear came from a mix of Deerskin, by Robin McKinley, Come Lady Death, by Peter S. Beagle and a dash of my own attitudes and ideas about death.

I’m going to quote from Robin McKinley’s Deerskin and not give you the context which this passage is happening in, for one because if you get me started talking about Deerskin, it will take up more than this entire post, and also because it’s not incredibly important for my point and I want you to be intrigued to read it for yourself.  I will simply say that this all happens in the first quarter of the book, so it is not the end it sounds like.

“Lissar went on breathing as she looked, because she did not know how to stop; but as time passed she felt the cold upon her [naked] body, feeling it like a soft inquisitive touch, like the feet of tiny animals.  She did not recognize pain as present experience, for such distinction was too subtle for her now; rather it was that was what there was left of her, as screaming had been her existence some time before.  The creeping cold was a change, or further refinement, upon her existence.  But the cold was not content to pat at her skin and then grasp her feet, her hands, her belly and thighs and face.  It wormed its way inside her; but [she could not resit it].  Nor, she found, did she now want to, for the cold brought oblivion, the cessation of pain.

And then she saw its face, and it was not an animal at all, but Death, and then she welcomed it.  Almost she made her split lips work to give it greeting; but her voice had fled away some time before.

I am dying, she thought, in the guttering of consciousness, I am dying, she thought, in the encroaching stillness.  I am dying, and I am glad, for Ash is already dead, and it will all be over soon.”

I will quickly say that while there are some very, very dark moments in Deerskin, it has been one of my two favorite books for well over a decade.  Where there is darkness, the light shines more brightly, as in the case with this book.

Inspiration part 2 came, as I stated, from a short story Peter S. Beagle wrote called Come Lady Death.  In it, the grand Lady Neville, famous for her grand, opulent balls, has grown bored with her own parties.  In looking for a way to up the excitement factor, she decides to invite Death to her next party.  An invitation is sent out… and a positive reply comes quickly.  The guests nervously await Death, wondering what he’ll look like and are surprised when “a lovely young girl in a white dress stepped gracefully into the ballroom doorway and stood there smiling.

She could not have been more than nineteen.  Her hair was yellow, and she wore it long.  It fell thickly upon her bare shoulders that gleamed warmly through it, two limestone islands rising out of a dark golden sea…  She smiled, and Lady Neville tried to smile back, but her mouth seemed stiff.  ‘Welcome,’ she said.  ‘Welcome, my lady Death.’

A sigh rustled among the lords and ladies as the girl took the old woman’s hand and curtsied to her, sinking and rising in one motion, like a wave.  ‘You are Lady Neville,’ she said.  ‘Thank you so much for inviting me.’  Her accent was as faint and almost familiar as her perfume.”

While the two stories don’t seem to have a lot in common on the surface, and especially not in the small fragments you’ve seen here, there were a couple main points I took away from them both.  Death was a being or person who was a) not frightening in appearance b) not male,  as expected, and c) more warm and welcoming than anything else.  This fits in nicely with my own views on death and the afterlife.  Everyone has their own thoughts and views on the subject, which is fine, but I don’t view either as a scary thing, nor the end.  Of course, we grieve when death separates us from those we love, but I know that I will be reunited with them some day.  I suspect that the first batch of “people” I’ll see when I pass the threshold to heaven will be a menagerie of furry, feathered, barking, purring, squeaking, singing creatures I have loved 😉

Drawing from all these sources, Lady Death emerged in my head.  She should be warm, inviting, welcoming, maternal.  She should not be frightening, but soothing.  She should be connected with nature, because death is a natural part of life.  Her clothing would be dark, but there would be no black allowed anywhere in her costume.  And most importantly, when you look into her eyes, you need to know that all is well, all was well, and all would forever be well.  I knew I needed to bring my dear friend and mostly-retired model Aly Darling into this image to embody all these qualities.

What should Lady Death’s clothing look like?  The story Come, Lady Death is set in a slightly unspecific time; several hundred years ago at least.  People throw balls, wear gorgeous gowns, ride in carriages… it brings to mind the 17th-18th century for me, though I have not confirmed this with Peter Beagle to see if that was his intention.  I didn’t want to make her clothing especially period-specific, but it definitely needed to have an old-fashioned feel to it.  How silly would it look if Lady Death was wearing the latest looks from this season’s runways?  I settled on a semi-Victorian feel, which felt both old-fashioned and classic at the same time.

Since I wanted to stay far away from the typical associations with the standard Death figure, black was not allowed anywhere in her costume.  I chose a beautiful purple dress with bell sleeves (purchased on Ebay for a few dollars) and went to work creating a cape for her out of some gorgeous teal satin I found.

I based the construction of the cape off of an actual Victorian cape I own (also purchased through Ebay, but as a wrap at my wedding, not for a costume).

Victorian cape draped over a laundry basket so I could assess its shape and drape.

Victorian cape draped over a laundry basket so I could assess its shape and drape.  Note the multiple layers of ruffles around the collar.

I reverse engineered a pattern from the cape and cut the pieces out of the teal satin.  I gave my cape several ruffled layers of fabric around the collar also, which were then copiously covered in flowers, each one hand-glued in place.  I spent months slowly gathering the appropriately colored flowers in the amount I needed.  Many of these were repurposed from previous DreamWorld costumes, like Perennial Parasol, Efflorescence and In The Lilac Wood, but this will be their final spot.  I love the costume too much to take it apart!  But I have to say, Icertainly got my money’s worth from the flowers!

Lady Death cape from start to finish

Lady Death cape from start to finish, complete with flower-festooned collars

 

Next came construction of Lady Death’s bonnet.  I didn’t want her to have the standard hooded cloak, but I liked the idea of having her face framed in the way a cloak hood would.  Given the Victorian-ish look I was going for, I built a bonnet somewhere in between a Regency bonnet and a Victorian one.  When it’s your world, you get to pick and choose clothing details you like and use them however you want!

The base of the bonnet was some sheets of cardstock glued together into the general shape I wanted.  I tried it on a few times and refined the shape.  Next, I used spray adhesive to glue the teal satin to one side of the bonnet.  This ended up leaving unexpected streaks of glue when dried (see the photo in the lower left corner below) so I quickly decided that side was the inside of the bonnet.  I used a regular glue gun to edge the satin to the other side of the cardstock and the hem on the underside.  I happened to have a small amount of very sparkly purple mesh which I added to the inside of the bonnet.  This had the dual benefit of covering the glue streaks and adding some dimension and light within the darkness of the bonnet’s underside.

Bonnet construction

Bonnet construction

 

Next came the fun and slightly tedious task of decking out the bonnet!  Multiple layers of ribbons, trims and flowers were added to it.  And because someone already asked this, yes, I did glue those teeny tiny individual little flowers to the top and underside of the brim one by one.  I was not excited to do that, but it was well worth it.  You can see Maynard wanting to help in the last couple photos.  A beautiful, wide, dark blue satin ribbon finished the bonnet off and looked beautiful tied under Aly’s chin!

Bonnet decorating

Bonnet decorating – Maynard offering to help

 

I seem to have not taken any images of the staff construction, sorry about that.  I must have been rushed.  I’ll tell you about it though, it was pretty easy.  With the abundance of sticks of all sizes within my yard, I found a good staff-sized one.  I spray painted it a dark brown and kissed it gently with some metallic bronze spray paint.  I already had a string of small, battery-operated LEDs which I’d stuck through the middle of some small flowers.  The LEDs and flowers were taped rather roughly to the staff with masking tape, which I knew I could edit out later.  I knew it would add work in post, but it seemed the best solution at the time.

The bird skeleton is an actual bird skeleton and was incredibly delicate to work with.  I tried to be reverent and ask the bird’s spirit for permission to use it before I did, and so far the house doesn’t seem to be haunted by any bird ghosts, so I’m hoping that means the bird was ok with my use of it.  It was attached using a mixture of masking tape and fine wire.  I made a small wreath for it with the same tiny purple flowers I’d edged the bonnet with to take away a little of the creepy factor of a bird skeleton while also tying it in more directly with the overall costume.

Lady Death

Bird skeleton

Since Aly and I both have health problems and don’t live especially near each other, it took a while for us to find a time when we could actually shoot this image.  Eventually though, the stars aligned and everything went perfectly!  I absolutely loved the images straight out of camera and knew they wouldn’t need much editing.  However, I forgot to take detail shots of the costume while it was on Aly… so Calantha came to the rescue!  She actually enjoys it when I dress her up since she knows it means copious praise and treats.

Calantha modeling Lady Death's cape

Calantha modeling Lady Death’s cape

You can see how little she cares about the cape, she didn’t even move after I draped in on her.  She didn’t like the bonnet when it flopped over her face and couldn’t see, but as long as I kept it adjusted, she was really pretty cool about it.

Such a pretty girl!  She looks right at home in it.

Such a pretty girl! She looks right at home in it.

Calantha models the bonnet

Calantha models the bonnet, showing off the details you can’t see so well in the finished image

After all that, let’s check out the final image!  Scroll down for detail shots 🙂

Lady Death, by Sarah Allegra

Lady Death © Sarah Allegra

Lady Death © Sarah Allegra - detail

Lady Death © Sarah Allegra – detail

Lady Death © Sarah Allegra - detail

Lady Death © Sarah Allegra – detail

 

Lady Death © Sarah Allegra - detail

Lady Death © Sarah Allegra – detail

Lady Death © Sarah Allegra - detail

Lady Death © Sarah Allegra – detail

Lady Death © Sarah Allegra - detail

Lady Death © Sarah Allegra – detail

That closeup of Lady Death’s face makes the whole image for me.  The gentleness, the kindness, the love shining out of her face shows exactly who the character is.  Thank you very much to Aly for portraying her so perfectly, and to Calantha for modeling the costume after the shoot 🙂

Thanks to you for reading!  What do you guys think about the afterlife?  Would you find it comforting to find Lady Death escorting you to the rest of eternity?

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I’ve talked to you guys about Rectify beforeRectify, Sundance Channel’s dreamy, introspective show about Daniel Holden who  was convicted of a crime when he was 18 and spent the last 19 years on death row.  New DNA evidence has emerged which frees him from prison, but he is not exonerated.  He is sent back into the lion’s den of Paulie, Georgia, a fictional small town where everyone has been steeped in this crime for the past two decades and everyone has an opinion on Daniel’s guilt or innocence.

Image copyright of Sundance Channel.

Image copyright of Sundance Channel.

It is an absolutely brilliant show.  I’ve met a lot of other fans online and they are truly some of the most rabid, enthusiastic people you could imagine.  Much of this is due to how original Rectify is.  It moves at its own pace, intentionally slower and more deliberate than most current shows.  It gives its characters time to breathe and allow us to learn much about them in moments which would be smaller in another show; Daniel’s magical wonder at watching and feeling the feathers from his pillow after having not seen or felt a single one in 19 years.  The writing is incredible and uses silence just as loudly and profoundly as the most eloquently-written speech.  The characters are all given fair treatment; there are no black and white “good guys” and “bad guys.”  They are all just people trying to do their best.

And the casting… my god, there are no words.  It is just perfect.  Perfect in every single way.  There are no weak links anywhere.  From the leading roles, Daniel’s family, to what could be considered “small” parts – Chet, the bookstore owner, played by Brian Bremer, or Marcy, the waitress, played by Kim Wall; every single one is a real person and the talent of the actors makes them big.  You wish you could invite these people over for dinner.  Much praise has been heaped upon the lead actors, and every bit of it is well deserved, but even the people you only get glimpses of are perfect.  Bruce McKinnon, playing Daniel’s step-father Ted Sr. reminds me so much of my late grandfather, I wish I could hug him.  Kerwin, played by Johnny Ray Gill, will change your life.  I don’t have enough space here to list every actor and describe how wonderful they are; you’ll have to just watch it for yourself.

Image copyright of Sundance Channel.

Image copyright of Sundance Channel.

Another thing I adore about Rectify is the heavy use of symbolism, metaphor and philosophy.  I talked about this more in my first post about Rectify, so I’ll just touch on the broad strokes.  The first season is six episodes long, with each episode covering one day.  This brings to mind the seven days of creation in the Bible and how God created man on the sixth day.  The mysterious Goat Man… is he representing God wrestling with Jacob or Satan tempting Jesus in the desert?  Or both?  Guilt and innocence, sin and salvation are recurring themes.  As you watch, you pick up more and more tidbits of metaphor, making the story that much richer.

It is a genuinely original and remarkable show, especially compared to everything else on TV right now.  I consider myself a Rectify pusher, as almost everyone I know personally who is a fan of the show started watching it because I insisted they give it a try.  And I will recommend the same thing to you 🙂  Season one is streaming on Netflix.  Season two, given a whole 10 episodes, just finished, but I imagine it will find its way to Netflix soon.  Rectify’s thoughtful pace is seriously ramped up at the end of episode five… I usually recommend to people that they only watch episode five when they can go straight ahead to six, because you will be dying to.

Jayson Warner Smith as Wendall in Rectify. Image copyright of Sundance Channel.

Most of the Rectify cast can be found on Twitter and they have all proven to be extremely friendly and happy to interact with fans (time permitting, of course; they still have lives).  I’ve given them all a standing invitation to come join DreamWorld any time they’d like, which may happen soon to my delight!  Over the course of chatting with some of the lovely actors from the show, I got to know Jayson Warner Smith a bit, who plays Wendall; Daniel’s creepy, sinister neighboring inmate.  At first I was almost afraid to talk to him because Wendall is so… well, Wendall.  But Jayson is just an absolutely lovely person who is nothing like Wendall.  He is an actor, after all 🙂  Here’s a great video highlighting some of Wendall’s best/worst moments from season one.  You’ll also see Daniel Holden, played by Aden Young, and Kerwin Whitman, played by Johnny Ray Gill.

I asked Jayson if he would mind doing an interview for my blog and he was kind enough to say yes and take time out of his schedule to answer my questions!  Jayson is currently living in Atlanta though he lived in Hollywood for two years.  He’s also well-versed in both stage and screen acting, though I haven’t had the chance to watch him perform live yet!  Read on for the interview, then I’ll tell you about my latest image which was Rectify-inspired.

 

*****

 

1. Do you have a favorite role that you’ve played?

Bobby Gould in Speed the Plow on stage in ATL. Love the Mamet language. Oh and Jack in The Weir also on stage in ATL.

2. I was impressed to find out you’re a musician as well as an actor!  Do you have any part in writing the songs?

I wrote the two on my site. Those were recorded with an iPhone at a party. Turned out pretty well. I seem to work best with a deadline it seems. I had to have them done in a month for this party.

3. If a horrible world existed where you could only practice music or acting, assuming they paid the same, which would you pick?

Ha. They both do pay the same right now.

Acting. I’m not disciplined enough to be a musician.

4. What would your dream acting role be?  It can be anything, including parts from movies which already exist.

That depends on so many things. The best experience would be working with super talented collaborative people. To have a role in that setting that the audience completely empathizes with.

Also, Elwood P Dowd in Harvey.

5. Do you have a favorite way to get into character, or does it vary from role to role?

That’s a novel. Sorry.

6. What is one thing you’d like your fans to know about you?

I’m just a regular guy. And I love F1. Go McLaren!

7. What music do you find yourself listening to frequently, and what shows are you sure to never miss?

Pandora has become my soundtrack. It rotates from Lyle Lovett to Rufus Wainright to The Shins to Blitzen Trapper to Radiohead to Avett Brothers to Sigur Ros etc.

TV? Mad Men, Top Gear (UK), Cosmos, Halt and Catch Fire, Downton, Justified.

8. I thought it was great that you participated in the ALS Ice Bucket Challenge (and you were so smart in how you performed it!)  Are there any causes you’re passionate about?

Just the Boy Scouts. I am an Eagle Scout and it made me a better person. It’s a shame that all of this political mess has gotten involved lately. Their organization has been trying to please everyone and as a result the whole program is becoming useless. It’s a real shame.

As Bill Cosby is quoted as saying: “I don’t know the key to success but I do know the key to failure – Trying to please everyone.”

9. Does playing Wendall in Rectify leave a film on your soul or are you able to shake him off quickly once the scene is done?

It’s just acting.

10. What do you like best about living in Atlanta that you wouldn’t have living in Los Angeles?

A house.

Hah- absolutely to answer #10!  Thank you, Jayson, so much for taking the time to do this!  It was a pleasure!  Now if we can just get you out to LA just for a little while… 🙂

Now, on to the photo!

Waiting For Paulie

Waiting For Paulie

The title is a play on the name of the town the show takes place in.  I created this just after season two ended – and ended on a very bad cliffhanger too!  Thankfully, season three has been secured or I just would not have known what to do.

I’d been eagerly counting the days for the second season to start and was enthralled with every new episode.  I’ve watched season one probably a dozen times already (I have it on DVD.  I’d also like to state for the record that I watched the entire season in one day; I REALLY love the show).  Season two, with more episodes, was able to expand upon the groundwork laid in season one, but as the show tends to do, it left us with more questions than answers.  I think I held my breath for the entire last half of the finale, which was a magnificent climax to the season.  After watching it though, I felt so sad that this season was over.  I wouldn’t see anything new from these characters for another year.  And they feel like friends to me, not fictional characters; I truly care about them.

After moping around for most of the morning after the finale, I finally decided to channel my impatience into a self portrait, because that’s what I do.  I set out intending just to use the window and have a couple feathers drifting down, reminiscent of Daniel’s experience with his feathers.  But as I worked, nature kept insisting on making herself known in the image.  Before I knew it, ghostly birds were flying everywhere while vines and smoke crept up from the corners.  I didn’t over-think it as I was creating, but as I thought about it afterward, it felt very true to the show.   Life and death.  Dark and light.  Magical moments between the mundane.  Nature and hope triumphing.  Light illuminating the shadows.  It summed up a lot of my feelings for the show in a way I still can’t really put into words.

There are some detail shots below, but if you only take away one message from this post, take this: go watch Rectify right now.  You will not be sorry 🙂

Waiting For Paulie - detail

Waiting For Paulie – detail

 

Waiting For Paulie - detail

Waiting For Paulie – detail

 

Waiting For Paulie - detail

Waiting For Paulie – detail

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“A wall of flames 40 feet high was sweeping its way up the canyon, 400 yards away. At that point, they would have had about a minute. Since they couldn’t get to the safety zone, they had to make one of their own. Andrew Ashcraft and Travis Turbyfill, the two sawyers, started attacking the brush with their chain saws, while the rest of the guys swung their Pulaskis, frantically doing what they were trained to do: move dirt, and move dirt faster.  They dumped fuel from their drip cans around the zone they’d created, then set the chain saws at the outer perimeter, so that when they exploded no one would get hurt.

[The team’s leader,] Eric, got on the radio. The Hotshots’ escape route had been cut off, he said, and they were deploying their emergency shelters.

Eric’s voice was calm – some said the calmest they’d ever heard him. At 4:47, he radioed his last transmission: ‘Deploying.’ And then, just like they’d practiced, the Granite Mountain Hotshots climbed into their shelters.

Finally, at 6:30 – an agonizing 103 minutes later – the helicopter was able to get on the ground. The onboard medic hurried to the site where they’d seen the shelters. As he approached, he spotted the metal blade from a chain saw and a pickax with the handle burned away. The ranch house was unscathed. Everything else was a smoldering moonscape.

Experts estimate that the fire burned between 3,000 and 5,000 degrees. In the end, there wasn’t much left. But what there was told a story.

The 19 Hotshots were all together. No one panicked, no one ran. Travis Turbyfill and Andrew Ashcraft, the sawyers, were at the edge of the group, closest to the flames. They were cutting lines up until the end.

When Juliann [ed – Andrew’s wife] got Andrew’s effects back, his boots and clothes were gone. His metal belt buckle didn’t make it. His pocketknife. The journals that he kept. There was a piece of Velcro from his watchband but not the watch itself. Even the metal plate and eight screws in his leg, from when he shattered it in a rappelling accident a few years back, had disappeared.

Two things, she discovered, had somehow survived the fire. One was Andrew’s wedding ring, titanium. The other, shrunken and black, was the rubber wristband that said: be better.”

–Excerpt from an excellent and comprehensive article The Last Battle of the Granite Mountain Hotshots, by Josh Eells, for Men’s Journal.

 

Singed Wings - detail

Singed Wings – detail

I initially created today’s image to be a companion piece for this photo of Katie and I, honoring the fallen firemen in Yarnell, Arizona almost a year ago.

To The Lost

To The Lost

A childhood friend of mine, Andrew Ashcraft, had been one of the lost.  As I do with most painful things, I channeled my grief into my art.

Though it always makes me cry to think about it, there is such beauty in the men’s calm acceptance of their sacrifice, their solidarity, that they were a complete, solid unit until the very end. Josh Eell’s article says it so wonderfully.  They stuck together.  In the face of immediate, certain death, they did what they could and then turned to each other for comfort.  Shoulder to shoulder, they stuck together until the horrific last.

That unity, that love, that solidarity and bravery touched me more deeply than I could, or can, express.  The only chance I had at touching on it was through art.  I set up a shoot with Katie and Bryce to portray the doomed but brave men.  It happened that some tree branches and very tall bushes in my yard had just been cut down, forming what appeared to be a huge, natural nest.  Thinking of the Hotshots as birds with broken, burned wings helped me find the metaphor I wanted to use, a way into the truth I was trying to get at.

It was an easy shoot, what with all the branches having been set up for me by the workmen.  I lit a few smoke bombs, snapped the frames and it was done.  I loved what I had gotten from this shoot as I looked at the images later.  All the same, I found I couldn’t face editing the image.  It took many, many months before I felt like I could emotionally handle editing working it up.

I didn’t consciously realize we were coming up on the anniversary of their deaths, but I must have felt it subconsciously.  I’ve been haunted by memories of Andrew recently and finally felt that it was time, urgently time, to finish this piece.  As I finally brought the files into Photoshop and started working on them, more memories flooded my brain.  Like how Andrew, as a young child, had always said “Jee Jie Joes” instead of “GI Joes” and frequently got tripped up between “brought” and “brung.”  The trip our families took to Mount Shasta together.  Their shelties, who seem huge in my mind, but who I know were actually smallish dogs.  Drawing together, playing in the sprinklers, going to the beach, sharing snacks, going to the park, getting into fights, crying and making up again… all the things children do.

I’ve said before that one of the things I mourn in this is that I missed out on getting to know Andrew as an adult.  I’ve tried to remember that lesson and have made a point to stay in touch, or get back in touch, with people in my life.  I won’t get another chance at Andrew, but I can try and apply the lesson to other friendships.

None of these men deserved their fate.  They were true heroes, actively running into the worst, most dangerous situations.  That is what the Hotshots were there for; an elite team of firefighters comparable to Navy Seals or Spartans.  The only thing I can try and do about it is make an attempt to honor them and their sacrifice.  I know that I will always fall short in this goal, but it’s important to try nonetheless.  I am also keenly aware that this is not about me or my pain.  The pain of Andrew’s family and loved ones is something I can only imagine.

The Hotshots were trapped; birds unable to fly away.  There was no escape from the flames.  But what remained was love. Love triumphing over the flames by preserving Andrew’s wedding ring and bracelet with his personal motto.  Love for the people they were protecting, though they would never meet them.  Love for their families, though they left them behind in the line of their duty.  Love for each other.  Love for humanity.  Just love.

That love is what I wanted most to capture in this image and I hope it shines through.

Singed Wings - detail

Singed Wings

Singed Wings - detail

Singed Wings – detail

Singed Wings - detail One of the three smokey roses scattered through the photo.  I used an image I had taken of beautifully carved roses on a tombstone, which felt so fitting.  The delicacy and beauty they add are still tinged with sorrow.

Singed Wings – detail
One of the three smokey roses scattered through the photo. I used a photo I had taken of beautifully carved roses on a tombstone, which felt so fitting. The delicacy and beauty they add are still tinged with sorrow.

Singed Wings - detail

Singed Wings – detail

Singed Wings - detail

Singed Wings – detail

My heart goes out to the family and friends of all 19 fallen heroes especially as we approach the anniversary of this tragedy.  I’m sure it’s an extremely difficult time for all of them.

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Yesterday, the 27h of May, marked my five-year anniversary with ME… which leads me to talking about why I call it ME verses the multitude of other names given to it, in addition to introducing my latest photo on the subject which you can WIN a print of!  Make sure you read all the way to the end to find out how to enter 🙂

Vanity's Murder

A detail shot from my new photo

I’ve been wanting to address this for some time and it just keeps getting pushed down to the bottom of my blog to-do list.  But my anniversary seemed like a good time to bring it up.   In the United States, we call ME by a whole host of other names; Chronic Fatigue Syndrome (CFS), fibromyalgia (fibro), chronic fatigue immune dysfunction syndrome (CFIDS), post-viral fatigue syndrome (PVFS), Chronic Epstein-Barr virus (CEBV), and most insultingly, the “yuppie flu.”  Luckily we seem to have mostly left the “yuppie flu” label behind us, but many of the other names are not much better.  Calling it Chronic Fatigue Syndrome has been likened to calling tuberculosis “Chronic Coughing Syndrome,” or stomach cancer “Chronic Upset Tummy.”  The names are not indicative of what’s really happening in our bodies.  They are trivializing and patronizing.

I like myalgic encephalomyelitis (ME), which is what most of the rest of the world calls it.  It literally means “inflammation of the brain and spinal cord with muscle pain.”  This at least hints more accurately at what may be going on.  Muscle pain is one of the defining characteristics of reaching that diagnosis (as I can personally attest to; I woke up nearly weeping from muscle pain after a strenuous shoot yesterday) and the evidence is suggesting more and more that this is ultimately a neurological condition.  ME at least doesn’t carry the negative connotations of the other names; people are generally under the assumption that they are not “real” diseases.

In Between Awake And Asleep

In Between Awake And Asleep

I should be perfectly clear that there is still a tremendous amount of controversy over what name to give us, and if they really are all more or less the same disease.  I genuinely believe they are the same disease from everything I’ve seen and read, but there will be many who do not agree with me.  However, since the entire reason the US broke off from the rest of the world’s name in the 1980’s was to create an insurance loophole so companies could deny coverage to patients… I am reluctant to believe what anyone on that side of the table claims.

So I call it ME, though since it is a lesser-known name here in the US, I’ll often consent to referring to it as ME/CFS.  Meeting the names halfway, so to speak.

As I said, yesterday was my five-year anniversary with ME, although the signs were certainly starting to form years before that.  I was unnaturally tired all the time, I got sick and injured easily and seemed to have a little more trouble healing.  But since I barely knew ME existed, and I was young, in my late teens and early twenties, I figured it would pass.  You think horses, not zebras; you don’t automatically jump to the conclusion that you have a strange, little-known disease.

A Fading Girl

A Fading Girl

Some of you have heard the story of how I became acutely sick with ME before, so I will try and just hit the high points.  Five years ago Geoff and I went out to lunch.  We’d been dating for exactly a month.  After lunch, I felt tired so I laid down and took a nap.  When I woke up, my stomach was very upset and I thought I had food poisoning.  Though it wasn’t pleasant, I figured it would pass quickly.  Several days later I still felt nauseous, so I saw a doctor who was very unconcerned about me and suggested I take some Pepto Bismol.  How helpful.  Over the next several days the pain in my stomach gradually changed from an all-encompassing gripping, nauseous pain to an extremely sharp and localized pain in my right flank.  Appendicitis? I wondered.  The pain was higher than would be classic, but it was so sharp, extreme and had come on so suddenly, I worried nonetheless.

After 10 days of pain and nausea, I finally saw a good doctor.  They determined pretty quickly that it wasn’t my appendix, ordered an ultrasound and a LOT of bloodwork (the only reason I didn’t faint was because I was sitting down, but I felt bad enough to wish I’d fainted.)  Everything came back normal.  They thought it must be a kidney infection, so I took the antibiotics, glad that we had figured out what was wrong and that I’d be over it soon.  But the treatment didn’t do anything; I still felt terrible.

That same story repeated and repeated over the next few years.  For a long time it was thought that my crazy flank pain and my fatigue were two separate problems; at this point, I believe the evidence indicates they both stem from the same cause.  I have undergone more tests and procedures than I care to remember, I have tried every food and supplement imaginable; every Western and alternative approach.  Occasionally I find something that helps even fractionally, and I cling to it like a drowning girl.

When I think back on this time, I feel like what was happening in my body is best expressed by this scene from Akira, near the end of the movie.

Tetsuo's grim end.

Tetsuo’s grim end.

My body seemed to completely fall apart and spiral out of control, with me stuck in the middle of i.  Up until then, I had been quite consistent with doing Pilates and yoga, and enjoyed their effects on my body.  I ate pretty well, I didn’t smoke, drink or do any drugs.  I felt like I was doing things right.  But when ME finally hit, none of that mattered any more.  My body became a disgusting, horrible prison with a mind of its own, seemingly bent against me in every way.  And the fact that almost none of this showed outwardly made it even worse.  One of the things I hear from other ME people as being the most frustrating thing is having people say to them, “You don’t look sick.”  It’s true, often we don’t (until you get into the very dire, extreme cases of ME) but inwardly, that movie clip is what I felt was happening to me.

Thankfully, the flank pain has been reigned in somewhat over the years through arduous nerve-blocking injections, although it never truly goes away.  And we still have absolutely no idea what’s actually causing the pain in the first place.  But since it used to feel like I had a shard of glass trapped inside my abdomen, I’m very grateful for every bit of pain chipped away from it.  The fatigue and muscle/tendon/anything-but-my-flank pains have all gotten steadily worse over the past five years.

The Fog Rolls In

The Fog Rolls In

My life has become smaller and quieter each year in response to the unreasonable demands of my body, only to have it ask for even more.  To a degree, it’s generally agreed that staying as active as possible is best; that “if you don’t use it, you lose it.”  This is tempered with one of the few things known with absolute certainty about ME: if you continually push yourself past what you can handle, you WILL get worse.  And it can get much, much worse than what I experience.

The UK documentary Voices From The Shadows paints an uncomfortably vivid picture of how bad ME can really get.  It shows people completely bed-bound, in constant, wracking pain, despite morphine drips, eyes continually covered as they are unable to endure even sunlight filtered through curtains.  Ears always protected with earplugs because they are so sensitive to sound.  From my end of things, going to the grocery store is only barely tolerable.  All the light and noise, oh the cacophony of noise… people talking, carts wheeling, plastic crinkling, children crying, music playing, announcements made… I genuinely dread the necessary trip each week.  And if I feel that way about it when my case of ME is one of the mildest diagnosable forms, I can hardly imagine the miserable existence the poor souls with severe ME endure.

Unjust

Unjust

I don’t want to have to know what severe ME feels like first-hand.  So I keep trying treatments and supplements.  I modify my bedtime, my sleep habits and try to rest as much as possible, without giving up any of the physical ability I still have.  I try to do gentle yoga and do more walking, which I can also use as time to scout locations.  My family and friends all know that any plans made are subject to the whims of my body and I may have to cancel at the last minute.  Very, very thankfully, they have all been extremely understanding and supportive.  It’s a hard enough battle to fight your body every day; I am sorry for those who also have to fight with their loved ones too.

People not understanding is at the core of our problems.  The medical community that doesn’t understand what our disease is or how to help us.  The public, who have been led to believe our disease is not valid.  And we ourselves who are trapped in these confusing, maddening bodies that seem to be actively working against us.

Breakable

Breakable

Luckily, I do believe the tide is finally starting to turn.  More and more noise is being made about ME, and we are starting to get even a little bit of recognition and validation.  More research is being dedicated to finding out what’s really going on in our bodies.  I try to maintain a balance between being open to changes coming and breakthroughs being made without actually hoping for them.  The disappointment is too great when they don’t pan out.

Through it all, the highs and lows, the dinners I can attend and the ones I have to stay home from, the times I weep from pain and frustration and the days I walk easily through meadows, I have my art.  I’m sure you’ve all heard me talk about my Enchanted Sleep series, photos from which are scattered through this post, and how I use my photos to portray what living with ME is like.  Art has helped me keep my sanity through these last five years.  It’s something I can do, not just in a metaphoric sense and raising awareness, but it’s physically something I can do.  Walking through the woods scouting locations is good for me, body and soul.  I can still edit even when I need to lay down (which is frequent) since I work on a laptop.  Sometimes muscle or tendon pain in my right arm or wrist will force me to stop for a few days or weeks, and those are always agitating times.  I want to be creating.  That is where my soul finds meaning and pleasure.

Spoon Theory

Spoon Theory

It’s been a rough five years.  But it’s also brought some incomparable joys to my life; my discovery of photography, for example.  And most importantly, Geoff.  Geoff who stuck by me when I became very ill after we’d only known each other for two months, and been dating one month.  Lesser men would have run.  He has supported and loved me every step on this tricky road, and is always there in the dark moments when I want to give up.  He gently pulls me up and sets my feet going again.  I am so incredibly grateful for him.

To be honest, I have been depressed with this anniversary looming ahead of me.  I have heard that if you don’t go into remission within the first five years, you’re never going to.  And while intellectually I realize that’s a pretty ridiculous, sweeping statement to make (how could anyone possibly know that when we don’t even know what it is we have?) it’s made this date feel even gloomier.  I am choosing to not believe that I will automatically never go into remission, simply because it hasn’t happened yet… but it’s also ok for me to feel sad.  It’s ok for me to mourn the things I have lost.  It’s ok for me to have bad days when I just cry and burrow under the covers all day.  It’s ok to be human and have emotions.

Mourning For Things Lost

Mourning For Things Lost

I work hard at my art, not only because it’s so deeply satisfying, but because it’s something I hope to make a career out of.  Means of employment get fewer and fewer for me every year, but I can do art.  It’s a way for me to earn money and contribute to my family’s income, things very important to my sense of identity.

I think this is going to be a good year for my art.  Not only with my recent good news, but other things are starting to happen too.  I think this is going to work.  But please feel free to support my work and pick up some blank greeting cards, limited edition prints or sign up for my online self-discovery-through-photography course.  🙂

Each journey through ME is different.  This is just my story.  I can only hope that by telling it, it adds another drop to the sea of change coming and will bring us a tiny bit closer to recognition and a cure.

Longing For Better Days

Longing For Better Days

I’ll just say a few words about my latest Enchanted Sleep photo, Vanity’s Murder.   My hair has always been quite fine and refused to grow any longer than my shoulders.  No matter what I did, how often I did or didn’t cut it, nothing changed that.  While it’s always annoyed me, since I would love to grow it romantically long, it was a fact of my life that it never would.  A few months ago, I thought my hair seemed a little shorter, but I dismissed the thought.  It kept nagging at the back of my mind though, even though I hadn’t gotten it cut in months.  Finally, I looked at a photo of me from about six months ago and I was shocked by the proof of how much shorter my hair was; nearly down to chin-length.

I went in to my doctor, since hair thinning and loss is a possible side effect of almost every medication I take, but he suspected it was a response to stress, not medication.  I finally made an appointment to see my fantastic hair guy (Hurley, at The Hair Pyrates).  He agreed that the loss was probably stress-related too, but importantly mentioned that the hair I’m seeing now first started growing four to five years ago… and I think we can all agree that I started undergoing a great deal of new stress five years ago.

After everything ME has taken from my life, all the things it’s made me give up, my hair just felt like the absolute last straw.  I had no idea how much of my feminine identity was tied into my hair until its existence felt threatened.

The good thing about stress-induced hair loss is that it’s usually pretty reversible, at least in theory.   At Hurley and my doctor’s suggestions, I started taking a hair, skin and nails supplement and I was startled by how quickly I saw a difference.  It still has a ways to go, but I’m so grateful that it is coming back.  Worrying about my hair may seem like a very superficial, frivolous thing, but it wasn’t to me.  It was about having one more thing taken away from me, it was about losing control over another big factor of how I appear to the world, and the things that contribute to my identity.  There is so much about ME that is outside of my control.  I am very thankful that this time, I could fight back, and actually win a little.  Let’s hope this is a sign of things to come.

Vanity's Murder

Vanity’s Murder

Vanity's Murder - detail

Vanity’s Murder – detail

Vanity's Murder

Vanity’s Murder – detail

Vanity's Murder

Vanity’s Murder – detail

Vanity's Murder

Vanity’s Murder – detail

Lastly, let me tell you about how you can win a signed and numbered limited-edition print of Vanity’s Murder!  The very kind people heading up the ME and You fundraiser were very receptive when I wrote them and offered to donate a print to their cause if it would help them.  And while I’m sure they have more than enough on their plates, they quickly came up with a way to do this!  Want a chance to win the print?  Follow the directions below!

  • Click on the ME and You button below and donate whatever amount you can through the big yellow “Donate” button on their site.
  • Leave a comment on this post saying that you donated and mention that you’re entering to win Vanity’s Murder, as several artists are doing similar giveaways.  Make sure that the name you leave in your comment matches your Paypal name!
  • Leave a message for the ME and You people during your Paypal  checkout, again stating that you’re entering to win Vanity’s Murder.
  • A winner will be randomly selected on June 6th and I will announce the winner here!

Click here to donate!!

That’s it!   This is such a win-win situation; the cause is so worthy and someone will get a beautiful print as well.  🙂  For anyone who missed it, the amazing people at ME and You are trying to raise funds to do further testing of a new drug that has shown real promise in helping to cure ME.  This is something we absolutely must study more, and hopefully, within a few years it will be approved and people all over the world will be able to try it.  And just maybe, some of them will go into total remission like some of the people who it’s been tested on.

Remission.  I can hardly imagine what that would feel like.  But I would love to find out.  If you can, please consider donating to this great cause.  And thank you very much!

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