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Posts Tagged ‘cancer’

It seems like 2016 just sucked incredibly hard for just about everyone.  I wasn’t very fond of it either, on the whole.  True, there were some really good things that happened, but like most of you, I’m very happy to put it in my past and move on.  Let’s continue the tradition of looking back over the last year’s highlights and low spots!

A Cry From The Darkness © Sarah Allegra - a self portrait

A Cry From The Darkness © Sarah Allegra – a self portrait

I like to start with the bad stuff so I end on a positive note, so with that said, 2016 was overall a very shitty year ME-wise.  It was an extra painful, extra exhausting, extra low-immune-system year where I seemed to hardly ever not have a migraine, cold or spiked pain day.  For a while it looked like I had a recurrence of the hideous sinus infection which led to my sinus surgery in November of 2014, which, if you’ve been around for a while, you will remember was not an easy procedure for me.  For completely unknown reasons, an artery in my nose burst a full six days after my surgery and required two very urgent visits to my ENT and ultimately a second emergency surgery, while I lost a total of almost two pints of blood.  Remember, I’m TINY; two pints is a LOT for me.

Needless to say, I am not quite anxious at the thought of having to have the surgery repeated, even though it was such a freak thing that happened; it probably won’t ever again.  But, I’m sure you’ve noticed, emotions rarely respond well to rational discussions.  So all the colds and sinus infections were very stressful for me, not just for the usual reasons of feeling extra terrible on top of my usual ME symptoms, but because the threat of another surgery kept looming in the back of my mind.

My insurance company utterly refused to cover my nerve-blocking injections for about six months.  These are the injections I’ve been getting approximately every nine months for the last seven years.  They don’t completely rid me of my mystery flank pain but they make life much more bearable.  Going without them for months really, seriously eats away at the quality of my life.  I imagine that most people would find that feeling like a dagger is constantly plunged into your side would not enhance their day-to-day experience.  Thankfully, insurance finally relented and I HAD my injections done.  I’ve already noticed a bit of a difference in my daily pain levels in that area!

I’ve also been veeeeeery sloooowly weening off Cymbalta over the last year or so.  It took a while for me to reach the maximum dose, then for me to be on it long enough for my neurologist to agree that it wasn’t doing anything, and ok my tapering down.  But as much as it takes your (or at least my) body a while to adjust to it being there, it takes much longer for it to get used to it NOT being there.  Even though having it in my system seemed to only increase my pain, make my sleep worse and make me gain even more weight, any time I step the dose down, I know to expect a week of migraines, nausea and general awfulness.  I’m on the lowest dose possible right now and hesitating before I leap into complete non-use.  There just aren’t many easy times to plan when you’re going to have migraines for a week.  But I am eager to shed the weight I’ve picked up being on it, in addition to seeing if my pain levels go down even more, so those will outweigh the discomfort of going off it eventually.

Most important for people who read my blog because of my art, feeling so awful most of the year put a HUGE damper on my ability to create in 2016.  I still did… a little… but it was nothing like what I wanted to be doing.  I created the fewest new images in 2016 than I ever have since I picked up my camera in 2010.  That was extremely depressing.  But I am hopeful that with meds out of my body, new supplements and my injections back in my system, 2017 will be a very different story!

I keep getting to about this point in my post, then getting overwhelmed with everything I want to say about the past year.  But no one wants to read a novel-length post anyway, so let’s see if I can lightning-round at least some of the 2016 highlights!

Alabaster 1 - model Dedeker Winston. © Sarah Allegra SarahAllegra.com

Alabaster 1 – model Dedeker Winston. © Sarah Allegra
SarahAllegra.com

It must have been planned by the fates, because shortly after I wrote the beginning of this post, I simply forgot to take my Cymbalta one morning.  That has NEVER happened ever in the whole time I’ve been taking it.  I didn’t realize I’d been off it until the next morning, at which point I decided to just suck it up and let myself go completely off it.  There were migraines and nausea, extra fatigue and need to sleep while struck with insomnia, but best of all, there were lots of what the Cymbalta literature describes as “brain zaps,” where you feel like you stuck your finger in a light socket for a second.  At first this was happening whenever I made any sharp movement or looked quickly from one place to another (even if my head didn’t move), but it’s been getting a little better each day, and I’m hardly zappy at all now, thank goodness.  I also have a variety of medications which help curb the zappiness, which helps a lot.  I HAVE already noticed a big difference in my general level of motivation and desire to do things… I’m not really able to actually DO anything more, but I have the DESIRE to do more back, which is a wonderful, frustrating relief.  This is HOW I AM.  This is my normal.  And even though it sucks to always wants to do 50,000 things when your body will only let you do 50, it feels SO GOOD to want the 50,000 again.  On Cymbalta, I wanted to do, I’d guess, about 5 things.

One piece of somewhat sobering news: Calantha had two small growths removed in November.  One was just a little wart, no big deal, but the other was a type of cancer called spindle cell cancer.  Of course, the bad news is that “cancer” is part of the name.  The good news is that the vet appears to have removed it entirely, leaving clean margins behind, and it’s not terribly common for spindle cell growths to recur.  If they do recur, they tend to not spread very much; Cal’s growth was on her toe, so if drastic action was needed to keep it from spreading, her toe could be amputated with relatively few adverse effects.  Calantha just turned 12 on the 20th (happy birthday, Cal!!) so getting little growths isn’t shocking at her age.  Silkens are generally a very long-lived breed, especially for their size; some can even make it into their early 20’s!  That’s nearly unheard of for dogs at all, let alone any dogs that aren’t very small.  That’s all thanks to extremely careful and ethical breeding.  Thanks, Joyce, who is responsible for bringing Calantha into the world!

Anyway, my instructions from the vet are simply to wait and watch her toe.  If it looks like it’s coming back, the toe may have to be removed to keep it from spreading.  I don’t relish the idea of having to have one of her toes amputated, but I think she’d agree that if it kept the cancer from spreading, it would be worth it.  But it does seem that the most likely thing that will happen is that it will never come back and the stress and tears Calantha, Geoff and I went through over this will stay in the past.  But if you’d like to say a prayer, send healing energy or light a candle for my girl, that would be fine with me.  🙂

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This year has been a HUGE year of spiritual growth for me, which was a pretty good use of time when I couldn’t do much outside of laying in bed!  I’d like to say I planned that, but I know better.  No, I am not “religious;” although if you are, I fully support you perusing that as long as it makes you happy.  I was already certified in Reiki level 2, but this year I became a certified Fairyologist as well as a Unicorn Healing Practitioner™.  The Unicorn Healing absolutely changed my life and I would strongly recommend it to anyone who feels called to it!  If you’re interested in learning more about Unicorn Healing, my best suggestions would be to listen to the podcast on the subject from Calista, creator of the course (who is the embodiment of all things Unicorn and just the most loving person ever) and then read the specifics about the course here.  It is WELL worth the money.  You guys know I’m always on a budget, but this is one of the best things I’ve ever spent money on.  Possibly the best part?  You get to meet your own personal Unicorn spirit guide(s)!  🙂

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I also discovered and threw myself into the Channeling Erik movement.  Erik was a 20-year-old kid who struggled a lot with bipolar disorder, along with other issues, and in 2006, he killed himself.  However, while his family (and especially his mother) obviously grieved heavily for a very long time, his mother, Elisa, eventually turned to mediums to see if her son was still alive… somewhere, in some form.  And the results she got completely convinced this once hard-core atheist that there not only is an afterlife, but Erik is in it and he’s still Erik.  He’s since become a spirit guide for many, including me.  My first personal experience with Erik was while I was listening to one of his channeled YouTube videos, when Siri was set off on my phone (I was not using or even touching it) and said, “Hey sexy!”  My jaw dropped and then I burst out laughing; what a 20-year-old-guy thing to say!

Second piece of Erik evidence came during my injections.  As I’ve said before, I’m put out during the actual injections (and thank god because I woke up once during them and they hurt like a motherfucker).  My usual experience of the injections is that I’m wheeled into the OR, I start to feel sleepy as they give me drugs, I decide to close my eyes just for a second, then I instantly wake up in the recovery room what feels like half a second later.  This time, the familiar sleepy feeling came, so I closed my eyes, but instead of a nothingness, Erik appeared, holding my hand.  He was crouched down so his face was level with mine, he was smiling and speaking soft, reassuring words the whole time.  What struck me was that while I obviously recognized his face from the photos I’ve seen, it was also just a little bit different.  Have you ever met someone you’ve known for a long time online, and when you meet them in real life, they look exactly the same, but also slightly different?  It was just like that.  Also, for some reason I’d thought he had brown eyes, but when I saw him, I noticed they were blue/green.  After I’d recovered, I looked up some photos of him and he did indeed have blue/green eyes.

Last, and possibly most convincing Erik evidence has been in the private sessions I’ve scheduled with two of his translators.  I won’t get into the whole story here, but there were some emotional issues I’ve struggled with for years and years, despite therapy, self work, meditation, crystals, Reiki, and every other kind of healing I could seek out.  The first session, I asked him why I felt X when Y happened and he immediately said, “It’s because of Z.”  Instantly, I knew he was extremely correct.  His answer rang out through my soul, echoing up and down it, the truth of it shining forth from every bit of my body, mind and soul.  I can’t put into words exactly HOW TRUE I KNEW that he was, I can only describe it to you, but if you’re ever in that kind of situation, you know the feeling.  No one could ever convince you otherwise because you know in your deepest, most sacred, inner sanctum of self that it is true.  And that was only my first question, at my first session!

I know some of you will roll your eyes and skim over those last few sections and wonder why I’m so weird and why I feel the need to experience these things, let alone share them, but it’s incredibly important to me.  Not because I want to convince anyone of anything (although I do strongly believe in the truth of what I’ve learned and experienced), but everyone is here on earth to have different experiences.  I can share things that work very well for me, and they might not be a good fit for you, and vise versa, and that’s fine!  Take what you like and throw the rest away.  As long as you’re ultimately striving to be an embodiment of love, I consider that we’re on the same path, no matter how different they might look on the outside.

Another reason for sharing this is because I KNOW it will come up in my work.  Everything in my life seeps into my art; I am my art, my art is me, we cannot be separated.  Every new experience I have will color what I create, even if it’s not in a way that’s obvious.  I consider myself a fulltime student forever because I’m always learning (about a very wide variety of subjects from historical figures, spirituality, unicorns, nail art, baking, making natural products instead of buying things, how to best tea-dye cotton, how to sing Sia’s Chandelier [which I am not very good at yet, so don’t ask], animal behavior, animal communication, how to grow roses, basket weaving, applying makeup really well, the tenets of Druidry, everything I can about ME, the life lessons of Kurt Cobain and Joan of Arc, why lentils taste so good when they’re cooked with just a little care, meeting and talking to my angels [my main guardian angel lets me call him Richard, after Richard Harrow, so you know he’s just awesome], if Bigfoot exists, the exact definition of a kirtle, how the hell those medieval women kept those pointy, princessy, fairy-tale-looking hats on their heads with seemingly no support systems ever recorded… anything and everything).  Occasionally, I also study things that are directly related to photography, such as using artificial lighting; something I want to learn how to do better.  Whether you’ll ever see Erik or Kurt or Joan of Arc or pointy princess hats turn up in a photo is beside the point.  Everything I learn goes into my brain where it all marinates.  My subconscious gets all Joseph Campbell and Carl Jung, the collective unconscious chimes in, and art comes out.  That’s really the best explanation I can give to my “creative process.”  Sometimes I’ll try and work the images out more directly, but the best ones usually come from me stepping back and letting my subconscious work it out.  Everything is connected, in the macro and micro sense.  It’s all going to work into my art somehow.

Changing the subject, I feel DEEP down the rabbit hole of nail art this year, especially after discovering Cristine from Simply Nailogical.  I discovered it was something creative/artsy I could do when all I felt well enough to do was lay in bed!  Sorry/not sorry for all the photos of my nails on my social media feeds.  😉

Speaking of creative things, I’ve also been helping Geoff with a really amazing project of his own!  You guys of course know him as an incredibly talented photographer; if you’re in the LA area, you can see some of his work at The Hive Gallery through March of this year!  What you may not know is that Geoff is an even more talented writer!  He’s been working on a graphic novel called Frontiers for many years.  The story first took root in his brain when he was all of about 10 years old and has grown, matured, been refined and reworked since then until we have a glorious version of it before us today!

Frontiers is a beautifully original sci-fi story summed up as “sex, violence and sarcasm!” by the astute Katie Johnson (yes, Katie, my muse, who also acts as Geoff’s spokesmodel for Frontiers, and who is also a very talented writer herself!).  The longer tagline is, “It’s the humble story of a man destined to destroy humanity… and why that really isn’t such a bad thing.”  In addition to those delightful tidbits, Geoff skillfully mixes in striking social commentary, humor, horror, fate and love.  And yes, I did do some work on the issue too.  Mostly coloring, but a fair bit of digital art as well.  🙂

Don’t you want to give the first issue a read?  You should!  And lucky for you, you can get your very own copy for a mere 99 cents right here!  If you’re in the area, you can also see Geoff, Katie and Frontiers at the Long Beach Comic Expo’s Artist’s Alley on Saturday, February the 18th, from 10am-7pm and Sunday the 19th from 10:30am-5pm.  Go check Frontiers out, online, in person or both!

Mountain Dweller 10 - © Sarah Allegra. Model: Teri Wyble.

Mountain Dweller 10 – © Sarah Allegra. Model: Teri Wyble.

I also had the pleasure of working with a new (to me) model last year, Teri Wyble, who goes by Aeir online.  She lived in New Orleans, but I am so, so excited that she is moving to Los Angeles shortly!  She’s not only an incredible model, stunningly beautiful, immediately understood what I was looking for from her, but is just an incredible human being as well.  I’m really looking forward to shooting more with her as well as just going to get coffee and have pillow fights in our underwear and doing those things that girls are supposed to do together.  🙂

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Oh yeah, I launched my Spiritual Skincare line of skin serums on Etsy!

I’m sure I could go on and on, but I’ll stop myself there.  Briefly, briefly, I’ll try and give you a little taste of what to expect for 2017….

More DreamWorld.  This is my main goal for the year.  More shooting, more editing, more promoting.  Being off that brain-sucking Cymbalta will improve all these areas.  But if you’d like to help to spread the word about my little world, I certainly won’t stop you!  🙂

I suspect there will be some connections with my art and New York, but I’ll wait to see more of what happens before I talk too much about it.

In a similar vein, there will be some very cool new things happening with Connor Cochran, my business manager, of Conlan Press!  Including some new, more affordable, but still extremely high quality prints to be coming!  I don’t have a date on when they’ll be released yet; there are many steps to go through first before they’ll go up for sale, but I will keep you all informed!

Hopefully my body will stop zapping me soon and I’ll regain the strength and clarity I had before Cymbalta took over my brain and body.  And hopefully that will lead to many excellent things!  Yes, I do believe 2017 is going to be a better year for my art and health.  That’s my affirmation and I’m going to do my best to make it happen!

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New DreamWorld image!!  I’m always happy to have a new installment for this series!

Apprenticeship © Sarah Allegra, model Noemi Regalado - detail

Apprenticeship © Sarah Allegra, model Noemi Regalado – detail

This image is a little bit “out of order,” so to speak.  The Apprentice is, obviously, an apprentice, but to someone you haven’t met yet, although you will.  In an ideal world, I would have shown you the Apprentice’s mistress first so it made more sense why she is out collecting herbs and plants and other ingredients, but you’ll have to just trust me on this for now  🙂  Hopefully I’ll be able to show you her mistress soon, but that’s going to be a pretty complicated shoot.

This image is extra special because it features a new model for me, Noemi Regalado.  Noemi is not someone who actively pursues modeling like most of the other people I work with.  She happened across my work and sent me an email asking if she could be a part of it.  Of course I said yes!  It took us a little while to find a time to shoot (which was all my fault; I think she first wrote me right around the time of my first sinus surgery and we know how that turned out.  And it seems nothing has calmed down since then!) but eventually we got a time set that worked for us both.

In a way, I’m a little glad that we had a few months to email back and forth and get to know each other a little more before the shoot although I’m sure the wait was maddening for Noemi!  (She will probably deny this because she’s very laid-back and easy going, but still.  Waiting sucks.)  In the course of our email exchange I learned that she has had her own health battles despite only being about the same age as I am.  She is a cancer survivor, currently completely in remission, and I suspect that she will stay that way.  She is a gentle soul but I know she fought that cancer out of her body.  She also participates in mud runs, something I probably would never have had the endurance for even before ME, and since her apartment only allows very small dogs, she volunteers regularly at a German Shepherd rescue group.  Every couple weeks she goes down, takes a dog out for a nice walk, socialization and a whole lot of love.  Then she repeats the process several times.  If that’s not one of the best examples of making lemonade from lemons that you’ve heard, I don’t know what to tell you 🙂  Shelter dogs have SO MUCH up against them, even the smallest gesture of love and attention can go a long, long way toward helping that dog find his or her forever home.  And so far she has been directly responsible for at least one Shepherd finding a home with a friend of hers!  I’m sure there will be more.

As you can see, Noemi is a very cool chick!  I wanted to come up with some concepts for her which would fit with her personality and her willingness to get uncomfortable and messy for a photo.  We ended up shooting two concepts; this first one that you’ll see today, as I said, is a DreamWorld image, and the second one, which I have not yet edited, will show off her willingness to do what it takes to get the shot.  And I have to say, she was a great model!  She took direction very well and had a better knack for it than some “actual” models I’ve come across 😉

So, let me tell you a little about making Noemi’s mask/headdress for this shot!  It all started with this lovely purple mask which I found at Rite Aid, of all places, on one of my many, many trips there to pick up prescriptions.  The color really caught my eye, I thought it would compliment Noemi well and I also noticed that it was less expensive than the completely blank, white masks at the craft store!  And no built-in swirls with the blank white masks either.  So that was a pretty easy decision to buy it.

Trying on the mask for research, NOT just because it was fun :)

Trying on the mask for research, NOT just because it was fun 🙂

But of course it can’t just be a basic mask, even if it looked very pretty in its basic form.  The first thing I did was cover it with a layer of lace, which happened to be a remnant cut from my wedding dress (because, surprise!, it was too long ;)).

Mask laceAfter brushing on a layer of fabric glue, I started with a layer of EXTREMELY glittery purple paint.

It doesn't look interesting wet...

It doesn’t look interesting wet…

But it dries into a really stunning color!

But it dries into a really stunning color!

Then I did some trimming on the lace to get the edges to match those of the mask itself.

At this point, I knew I wanted to put some leaves and flowers on it, but I didn’t know much more than that.  So I dragged out my fabric stash (what you’re seeing here is what I’d been able to buy during a HUGE sale!), my glue gun and just started messing around.

mask and loose flowersI knew I wanted to extend the sides of the mask with leaves, so I started there.  Maynard helpfully modeled this part for me.

Maynard is an awesome model, even when he's not facing the camera

Maynard is an awesome model, even when he’s not facing the camera

You can also see that I’d added a bit of black ink around the eye holes, rather like eyeliner.  Just a subtle touch to help draw the viewer’s eye since there was going to be a fair bit going on.

I just played around with different colored flowers and shapes, holding them in place, tweaking things here and there and then suddenly I had a finished mask!  I hadn’t planned on giving it so much vertical volume, that just sort of evolved naturally, but I liked how it looked so I went with it.  Some costumes I have planned out in precise detail before I ever start them, but others are more free-form, like this was.  Always listen to your gut 🙂

mask four small

A mask! Photos from here out are taken in the bathroom to protect it from over-eager cats.

As I looked at it the next day, I felt like it was 95% there but it needed… something.  I didn’t know what.  I mulled it over and when I woke up the next morning I knew it: mercury silver spray paint.

Krylon’s Looking Glass spray paint is no ordinary silver paint.  It has a truly magical quality to it and I end up using it in almost every costume or prop I paint.  Just the slightest mist gives it a mysterious, magical, ethereal touch.  I try to always keep a couple cans on hand because I never know when I’ll suddenly need them.

So that morning I took the mask outside and let the paint gently kiss the mask; just enough to give it that magical feeling without taking away the beautiful colors of the paint and flowers.  In the photos below (which are a little blurry, sorry, they were taken on my phone) the top photos show details of the flowers unpainted and the bottom have had their silver wash.

Flowers with and without Looking Glass paint

Flowers with and without Looking Glass paint

I filled a basket with appropriately magical-looking items and herbs but it didn’t make it into the final image.  Oh well.  You can see just a little of the vial necklace I made full of purple stones and beads and the gorgeous amulet/brooch.  Jewel tones just loved Noemi’s beautiful skin tone!

And now I’ll let you see the completely finished image along with some detail shots!  The show trees had just started blooming in the woods and the wild queen anne’s lace was bountiful.  Both made a beautiful, more neutral backdrop against Noemi’s vividly colored mask and costume.

sarahallegra.com

Apprenticeship © Sarah Allegra, model Noemi Regalado

Apprenticeship © Sarah Allegra, model Noemi Regalado - detail

Apprenticeship © Sarah Allegra, model Noemi Regalado – detail

Apprenticeship © Sarah Allegra, model Noemi Regalado - detail

Apprenticeship © Sarah Allegra, model Noemi Regalado – detail

Thanks to Noemi for being so patient through all this!  I’m very glad to have made a new friend though all this 🙂  And I’m very happy with how this turned out!  You’ll all just have to wait a little while longer to see the image where Noemi really proved her devotion to the finished image 😉

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You guys have met Erick Riedell through some of my photos already.

In The Eyes Of The Hungry 600

In The Eyes Of The Hungry

And I’ve recounted some of his health battles with you guys too.  He’s been fighting cancer on and off (though it seems more on than off) for over six years; a little longer than the entire time I’ve been with Geoff.  Geoff and Erick have been good friends since highschool, a friendship I’m impressed they maintained even though they live in different parts of the country.  They kept it up through different romantic relationships, different places they lived, health problems, marriages, children… they’re still there for each other.  Their friendship is inspiring.

This year has been especially difficult for Erick, his wife and their two young sons.  It’s been almost non-stop health problem after problem; surgeries, hospital stays, being sent to specialists in other states… it just hardly seemed to stop.  And it’s bad again.

Erick has only one functioning kidney and it’s failing.  So he’s back in the hospital, tests are being run and solutions are being searched for.  Why the kidney is failing isn’t entirely known yet, but it could be caused by another tumor.  That’s the last thing you want to hear about anybody, but especially as someone with Erick’s history of fighting these deadly growths.

The Yellow Knight

The Yellow Knight

I’d like to share something with you that Geoff wrote about Erick.  He has such a way with words, he really captures Erick’s personality in a way that will translate even to those who have never met him.  So please, let me introduce you to Erick, by way of Geoff’s words:

I’ve never put much stock in karma.

If there was such a thing, the roads would have a lot less traffic and there would be no reality television.

But, as I see what my friend Erick and his family are going through, it’s clear karma is a myth…if not an outright joke.

I have known nobody more straight-edge than Erick. No drinking. No smoking. There has been an occasional overindulgence in fried food and cheese…especially in the days before he got married. But, how cancer finds its way into a clean-living scenario like that is beyond me.

He is, quite simply, the friendliest, most good-hearted, good-natured person I’ve ever known. We don’t go anywhere where somebody doesn’t know him. And if by some odd chance we do, by the time we leave, he’s made new friends. He is effortless in that way.  Always has been.  It’s a trait my grandfather had, too…a genuine ability to connect with others. It’s a trait I’d be happy to have inherited from either one of them.

But my curmudgeon gene is too strong.

I’ve never ridden with him in Los Angeles freeway traffic, but I’ll bet he wouldn’t scream obscenities the way I do.  He’s even-keeled, easy-going and relentlessly upbeat that way.  I’d invent new swear words in a traffic jam.  He’d lead a conga line between the cars.

That’s just who he is.

He’s Murray the K.

Look it up…that’s what Wikipedia is for.

He just has “it,” you know?  “It.”  That “it” that certain people have.  Charisma.  Like a gravitational force.  It makes him the center of the room.  And the calm eye in the hurricane.  You can’t learn it.  You’re just born with it.  Like the Force.  And it runs strong in this Jedi called Erick.

So yes, I downplay the existence of karma, but I totally buy into the Force. Because I’m a child of the 70s.

If this sounds like a eulogy, blame the context of the day.  Because it’s not.  This isn’t over.  Because the other thing about Erick is he has more fight and determination in him than I’ve ever seen in anybody.  A hell of a lot more than I do.  But far too often, we don’t say the things we should when we should.  And knowing how we all feel about him at a time like this can’t hurt anything.  Because, though he has always seemed bulletproof to me…everybody can use a little encouragement.

So, I urge everyone reading this to do exactly what he asked this morning.  Share a story.  Share your feelings.  Pile it on.  Let him know the world is a better place because he is in it.

Because it is.

Ribbon Armor

Ribbon Armor

 

It most certainly is.

You guys may not have ever met Erick, but take my word that he is one of the most wonderful people you could ever meet.  A true hero who has had to fight for his life too many times to count.  And right now, he needs help.  Help from those he knows, but even from those he has never met.  I would ask you to please do two things.

One: Reply to this post leaving messages of love and encouragement for Erick which I will pass on to him.  He needs all the love and encouragement we can give him.  Let’s show him the overwhelming love the world has for him, even from people he hasn’t met!

Two: If you can, please donate to his health care fun through GoFundMe.  I know, money is tight for everyone right now.  But even a $5 donation would help!  It doesn’t have to be much.  As you can imagine, being in the hospital and fighting cancer are extremely expensive.  Every little bit we can give will help him and his family so much.

Help Erick Riedell Fight Cancer

 

If you can only do one or the other, that’s ok!  If you can do both, great!

There is so little we can do that feels constructive.  I can’t enter his body and rid it of any cancer cells I find.  But we can send him messages of love and show our support with a few dollars.

Lastly, please keep Erick in your prayers, if you are the praying type, your thoughts, send him good energy, light a candle in his name, however it works for you.  I deeply thank you for anything that you can do for him, and I know he and his family do too!  The world has so few truly spectacular people in it; we cannot afford to lose one more.  Thank you all so much for your help!!

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I have known Erick Reidell for several years, but he and Geoff go way back to high school.  Erick has always been an adventurous, creative, gregarious person, and we found a lot of artistic common ground to talk about when I first met him as Geoff’s new girlfriend a little over five years ago.  Which was a relief to me, since I just wanted Geoff’s friends to like me!

It was a shock to everyone when he was diagnosed with cancer that same year.  Cancer cruelly seems to always pick on the best, most wonderful people.  Erick would not be anyone’s “typical” cancer patient.  He doesn’t smoke, lives healthfully and is always full of optimism and cheer.  That first year Geoff and I were dating, Erick had a seven-pound tumor removed from his abdomen.  There were many breathless months while Erick endured chemo and treatments and recovered from surgery.  I vividly remember the night Erick’s wife called Geoff to tell him that the most recent scan had come back clear, and for the time being at least, Erick was in remission.  Everyone was, of course, extremely relieved.

Since then I’ve gotten the chance to get to know Erick better myself, and I can say he is one hell of a guy.  Hard-working, artistic, funny, a great husband and dad and always ready to face the next challenge his body throws at him.  He is such a lovely man that I suggested he become ordained online so Geoff and I could have him marry us at our wedding, which he did.  The wedding was, of course, a wonderful, beautiful blur of a day, but it will always mean so much more looking back and remembering it was our dear friend, and not some stranger, who performed the ceremony.

Alex/my man of honor, me, Erick, Geoff and Geoff's dad/best man, Larry.

Alex/my man of honor, me, Erick, Geoff and Geoff’s dad/best man, Larry.

Late winter, after several years of being clear, Erick’s cancer once again returned, and once again, he beat it.  Not without great effort from him and his doctors, but he did it.  When we knew we’d be seeing each other over Christmas, Erick asked to be a part of DreamWorld, which I gladly said yes to.  I also felt that a very serious charge had been given to me.  I wanted to make sure I did something special for Erick, something true to DreamWorld, something that spoke of his struggles and also something that would ring true to other cancer sufferers.

Out of these swirling thoughts came the Yellow Knight.  Yellow, since that color is associated with cancer-awareness ribbons, LiveStrong bracelets and the like.  His armor is made out of little bits and swirls of ribbon (or paper, as it ended up, but it looks like ribbon) much like the awareness ribbons.  Though ribbon would seem like a frail and flimsy defense, he defeats the horrible cancer-monster.

I’ll talk briefly about how I made Erick’s costume on, again, a next-to-nothing budget.  His cloak was the same one I’d used in Paul Telfer’s Sleeper’s Sentinel photos, so that was already made.  I wanted to make a chestplate and bracers for Erick’s armor.  Ihough I’d originally planned to use actual ribbon, I was dissatisfied with the ribbon selection both in my ribbon drawer and the craft store, so I decided to use paper instead.  That was also quite a bit less expensive, so double win!

For the chestplate, I stared by gluing two layers of cardstock together to give it a firm, stiff base, and covered one side in muslin for a more “polished” finish.

Matching up cardstock and fabric shapes.

Matching up cardstock and fabric shapes.

Cardstock back of the chestpiece.

Cardstock back of the chestpiece.

And fabric front, with a slight seam down the center to help shape it.

And fabric front, with a slight seam down the center to help shape it.

You can see my black and red suitcase on the floor, which just shows how hurriedly I was trying to put this together before we left for our trip.  I got the bracers made too; fabric shapes with cardstock bones to give them sturdiness.  I was planning on just tying the bracers on with ribbon, and I figured I’d do the same for the chestpiece since you wouldn’t be able to see the back or sides anyway, so the problem of keeping them on was easily solved.

bts4

Bracer with cardstock bones.

At this point, we really had to leave, so I just cut lengths of paper and used my rotary cutter to slice nice, straight even strips into them.  I packed my glue gun and other supplies I might need and we hit the road.

Our time visiting family was short, so we decided to shoot right after Christmas.  I spent one long afternoon of our trip bent over the chestpiece and bracers, hot gluing the ribbon strips to them as quickly as I could.  I alternated the colors, types and thicknesses  the papers frequently to give it more depth, using cardstocks, vellum and tissue paper.  Unfortunately, I was so busy feeling stressed about getting it done before the shoot the next morning, I completely forgot to take photos of the gluing-on process.  But you can probably imagine what a slightly-crazed woman wielding a glue gun in one hand, paper ribbon strips in the other, muttering dark curses under her breath, hunched over fabric/paper constructs and commanding the glue gun to heat up faster and just GLUE looks like.

The morning of the shoot came, and I’d managed to finish the costume (though my lower back was still complaining from having hunched for so many hours).  I knew I’d be doing a lot of work to the cancer-monster in post, so I simply had one black trash bag bunched up into a ball which Erick could punch, and I’d made a very, very rough wire frame for another black trash bag into something that was somewhat wing-shaped.

I scotch-taped the bags as needed to hold their shapes and let Erick pummel the central mass of the creature.  Geoff helped tremendously with flipping the cloak and holding the wings up for me to photograph separately and composite into the final image.  All said, it took perhaps half an hour.  The park we were in was just beautiful and quite deserted given the very cold weather and early hour, and I couldn’t resist taking some snapshots of plants covered in jewel-like snow.  I’ve said it before, but as a California-native, snow is UTTERLY MAGICAL to me whenever I encounter it.

Little Jewels

Little Jewels

Erick looked incredibly noble and at home in his costume, and I’m so glad Geoff reminded me to take a portrait of him not in action.  They’re quite different shots, but I think a lot of Erick’s quiet, inner strength and grace shows through, especially in the second portrait.

After that, we all had a lovely breakfast at a local cafe and warmed up with hot food and coffee.  A successful shoot!

I hope these image can be an inspiration to others fighting their own battles; perhaps simply reminders to not give up quite yet.  If you have had experiences with cancer or other long illnesses yourself, I would love to hear from you!  I hope I can make the cancer community proud.

And with that, let’s see the finished photos!

The Yellow Knight

The Yellow Knight

The Yellow Knight

The Yellow Knight -detail

The Yellow Knight -detail

Ribbon Armor

Ribbon Armor

Ribbon Armor - detail

Ribbon Armor – detail

Thank you, Erick, for coming to play in DreamWorld!  🙂

This is not the time or place to get into it all, but it seems I will be heading into another of my own health battles, of the bureaucratic nature this time, and any well wishes and prayers would be appreciated!

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