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Posts Tagged ‘dark’

What Else Can I Say About ME?

Here we are at May 12th again.  Another Invisible Illness Day come to bring awareness to all the illnesses and diseases which are impolite enough to leave their sufferers still appearing to be well.  Of course, anyone more than casually acquainted with someone who has fibromyalgia, myalgic encephalomyelitis, chronic fatigue syndrome, complex regional pain disorder, multiple sclerosis, rheumatoid arthritis, Crohn’s disease, Lyme, lupus and many, many more illnesses can attest to how debilitating they can be.  The facade of health they leave intact feels like salt in the wound; a confusion for those untouched by their cruel hand, a silent undermining force with us at every doctor’s appointment, a declaration that we are lying or greatly exaggerating our illness.

What else can I say about ME?  About all the other forgotten, ignored diseases swept under the rug of modern medicine?  Illnesses which embarrass our doctors with their constant reminder that we remain unhealed.  Sicknesses with confusing, confounding symptoms which can morph and change like the whim of a butterfly’s flight.  Maddening maladies which suck away our vitality, our joys, our passions, our lives as completely as any vampire.

I’ve written about ME extensively as it’s been an enormous part of my life for the last eight years.  How I have not had a single day since late May of 2008 that was free of pain or its constant, overwhelming exhaustion.  How it has progressively gotten worse each year.  How the government would like to pretend we invisibly ill don’t exist.  How grotesquely underfunded our research is, giving us the same amount of money for research as hayfever gets and less than 1/4 of what male pattern baldness receives.  You have heard me spout the facts and statistics.  You’ve heard me talk about my personal story and fight with ME.  What else can I say?

I can say this: I am not beaten.  I have not given up.

I am determined to get better.  I am committing myself to be well, even if I have it about through sheer mental will.  I will not give in to ME’s gloomy, hopeless future forecast of progressively worsening every year.  I am not accepting a future of the living death that is ME.

I don’t know exactly how I will get better, but I am going to.  As a sign of my determination, I changed my blog’s tagline for the first time since I started this blog years ago.  “Art, photography, life and why I always feel like shit,” felt perfectly appropriate at the time.  “Art, photography, life and how those are really all the same thing,” is much more appropriate now.  My identity is not Sarah-who-has-ME.  I am just Sarah.

As I wrote about in my last entry, my life has been pleasantly consumed recently by my spirituality.  I have strongly felt how focusing on fighting ME has been feeding it.  So now, I will ignore it as much as possible.  I do not mean that I will forget my body’s current limits, or not honor them.  Listening to my body and what it’s able to do is vital for my current and future wellbeing.  But I’ve realized that I can live within the confines of my case of ME while still not letting it reign in every area of my life, and that feel incredibly freeing.  This is the path I will pursue.

This also does not mean that I will not advocate for ME sufferers.  I still feel very strongly that the only way we will bring about change is by demanding it.  And we can only demand it if we know that it exists in the first place.  But I can also advocate without allowing ME to rule every part of my soul.

As May 12th approached, I wanted to create a new image for my Enchanted Sleep series, which is all about living with ME.  I asked Katie Johnson, frequent model and collaborator as well as dear friend, if she would help me bring some concepts to life and she gladly agreed to help.  Through a variety of factors, I wasn’t able to shoot these images until very recently, which meant I had a very short window to edit one up and release it for Invisible Illness Day, but I got it done!  Ideally, I would be releasing the whole short series we shot, but I am content with having just one to show you and help illustrate life with ME.  With that, please let me present my latest image to you, Living With The Tombstones.

Living With The Tombstones

Living With The Tombstones – © Sarah Allegra. Model: Katie Johnson. An image to help raise awareness about ME/CFS and other “invisible illnesses.”

I probably don’t have to explain the symbolism behind shooting this image in a graveyard.  ME (and many other invisible illnesses) truly can be a living, nightmarish death.  Even if you’re not one of the unfortunate souls cursed with severe ME, where any touch, light or sound cannot be tolerated, you die every day to the dreams and hopes you had when you were healthy.  You might discover new passions to pursue within ME’s confines, but do you ever truly forget what’s been taken from you?  If you do, I am not there yet.

I took the name “invisible illness” and interpreted it quite literally, editing out any part of Katie’s body which showed outside her long, princess-like dress.  And the mirrored mask felt like the perfect touch.  When people look at us, they rarely see us; they see their projections of who we are.  Often what they see says far more about them than us.  Some will look at me and, because I can occasionally manage to put on clothes, have Geoff drive and go with him to the grocery store, refuse to believe there could be anything physically wrong with me.  They don’t see the toll that those short, simple trips take on me.  They don’t know that grocery shopping is my ENTIRE plan for that day, probably several days.  How the lights and noise and bustle inside the stores give me migraines, panic attacks and leave me in bed for the rest of the weekend.  They don’t see the weight of my illness on Geoff and my family.  How if I see friends, they always have to come to me.  I so often feel like a dead-weight wife, daughter and friend.  The times I’m overwhelmed by the ME and can’t decide between crying and being too tired to cry.  How many pills I take every day to try and make it to the next day and not be consumed by the constant pain I’m in.  They just see a fairly normal-looking girl.

I can’t blame other people for not knowing that I’m sick.  I don’t display the characteristic signals of someone who is unwell, so of course people assume I’m healthy.  But we need to get to a place where I could tell a stranger that I have ME and they might know what I’m talking about.  That if someone else said they have MS or Crohn’s or fibro, that stranger would have heard of those illnesses.  That the stranger would have at least a basic idea of our struggle and the dire need for change, for research, for treatments, cures and basic respect.

We can get there.  We will.  One May 12th at a time.

Want to do more?  I can help you with that!

I’d like to thank everyone in my life, online and off, who has supported me during these trying past eight years.  Especially Geoff, who I’d only been dating for a month when I became ill.  Lesser men would have run from what he had to face, but he’s stuck with me, no matter how bad things get.  And I’d also like to thank everyone for the extremely warm and receptive response you all had to my previous blog post.  Your kind words and love and support are greatly appreciated, now and always! ❤

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A Cry From The Darkness

A self portrait that belongs to my Eternal Storm series, which explores depression, anxiety and other mental illnesses. A Cry From The Darkness © Sarah Allegra – a self portrait – detail

Wow, it feels like FOREVER since I finished my last piece!  This year has not been conducive to creating art.  I’ve done my best despite the circumstances which kept popping up (moving, medications, long ME flares, devoting a ton of time to the gallery show, stress from my recent battle among other things) but it’s felt like a very dry year creatively.  All I can do is my best though, and even when the ME really cramps my style, I still manage to get pieces finished… just much more slowly than I would like.

It was in this depressed feeling of “I haven’t created anything in the longest time imaginable” that today’s image was born.  When my regular creative outlets are blocked to me (by, say, solid weeks of migraines as I adjust to each new medication dosage), I become despondent and depressed.  Life slowly loses its flavor and color and if I’m not careful, I’ll sink into a pit of despair just like Artax in The Neverending Story.  Luckily, I have Geoff and my friends and family around to cheer me on and make sure I never sink too low, but much of it is outside of anyone’s control.

As I mentally pictured how I felt, this was it.  A big, ugly cloud of despair, depression, worthlessness, swirling around my head.  But this time, unlike my last self portrait which explored a similar theme, I wanted to show a bit of hope at the same time.  The cloud is surrounded, penetrated and pierced by beautiful, golden rays of light.  They stream in through the darkness, weaving through its thick blackness.  The darkness cannot survive in the light.  It will be broken up and dissipate.  And while I know this will probably not be my last battle with depression, I also know that each round will eventually be over… and once again, the light will have won.  That is the hope I cling to when the clouds cover me.

I’d like to mention my friend and very talented photographer Robert Cornelius’s Dust to Dust series as it provided some inspiration in my planning out of the darkness cloud.  Thanks, Robert!  🙂  He’s an incredible photographer and all-around cool dude, so check out his work if you’re not familiar with it!

A Cry From The Darkness © Sarah Allegra - a self portrait

A Cry From The Darkness © Sarah Allegra – a self portrait

This image belongs to my Eternal Storms series on depression, anxiety and other mental health issues.  These topics are still seen as quite taboo to discuss, something I hope to help with by portraying what living with them is like openly and honestly.  Silence and shame never helped a single illness get cured.  We need to be able to speak openly about our experiences, without judgement or fear, if we’re ever going to healed from them.

A Cry From The Darkness

A Cry From The Darkness © Sarah Allegra – a self portrait – detail

A Cry From The Darkness

A Cry From The Darkness © Sarah Allegra – a self portrait – detail

 

Do you have depression?  Try being a little more honest next time a trusted friend asks how you are.  You don’t have to go into excruciating detail, but try to avoid the temptation to simply answer “fine,” unless you actually are.  And if you have friends or family who you suspect or know suffer from any kind of mental ailment?  Invite them to tell you about it, ask some questions, assuring them that talking to you is safe and you will not judge them or call them crazy.  It is crucial that you answer whatever they tell you with love.  It is incredibly hard for people to open up and talk to others about these problems, so take their trust very seriously and treat it with the gentlest and greatest respect.

A Cry From The Darkness

A Cry From The Darkness © Sarah Allegra – a self portrait – detail

A Cry From The Darkness

A Cry From The Darkness © Sarah Allegra – a self portrait – detail

As we approach Thanksgiving, let’s be thankful for the help and support we have.  For the people dedicated to helping us win our fight.  For the people who will listen to us with only love and understanding in their hearts.  The people who give us hope.  The inner strength we are able to find when we think we’ve exhausted it all.  Those extra beams of light when we need them the most.  We need more people like this in the world.  Let’s try and all be them to each other.  The simple fact that there are people in the world who try to reach this goal is something I am very thankful for!

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 This is a big piece for me, not just size-wise, but for what it represents as well.
Like A Storm © Sarah Allegra - detail

Like A Storm © Sarah Allegra – detail

I shot this self portrait a week or two ago after enduring months of worse-than-usual depression.  Some was due to outside influences, bad news, being sick and other things that any normal, healthy person would feel depressed about.  But a lot of it was that irrational, heavy, demanding, life-draining depression that is clinical depression.  This is not feeling sad about things that you should feel sad about.  This is round-the-clock, punishing joylessness, sucking the beauty out of everything, leaving all around you colorless and meaningless.  This is clinical depression.

 

I’ve battled this beast since it first started manifesting in my early teens.  It took me some time before I learned that what I was feeling was an actual condition, a potentially solvable problem, not just a bad mood that hung around for years.  I’ve also tried more remedied to it that I can recount; anti-depressants, therapy, energy work, supplements, yoga, getting more exercise (before I had ME; over-doing exercise now could do me great harm), self-help books, seminars, journaling, art therapy… on and on and on.

 

And it still clings.

 

I decided to start a series specifically addressing mental illness; clinical depression and anxiety in particular, since those are the two I fight with most.  I manage them, sometimes it’s better, sometimes it’s worse.  Sometimes I want to just die.  I don’t know if it will ever go away completely, thus the series title Eternal Storms.

 

I identify with Eeyore from Winnie  the Pooh, with his constant dark cloud covering just him.  I’m sure that was subconsciously part of the inspiration for this piece.  When I’m going through a bout of depression, this is what it feels like to me.  A dark storm raging round my head, that only I see and feel.  It makes the idea of asking for help feel pointless; even if I break up this cloud, another will come.  And the social stigma of admitting you need help at all, let alone help with your mental health, makes it all the worse.  If I’m having a week where I have to talk myself into continuing to live each day, I can’t talk about it except for a few select, very trusted friends who have also been there, as well as my therapist.

 

I shot this self portrait as a way to work through the cloud I was under, yes, but more importantly, to directly address depression and its stigma.  Admitting you have or struggle with depression doesn’t make you weak or unworthy.  It doesn’t make you a bad person.  It doesn’t mean you’re not trying hard enough, eating right or getting enough exercise.  It just IS.  And society needs to learn to stop judging those who do manage to ask for help.

 

The alternative is that we suffer in silence with our tormentor.  And that can kill.

 

Joel Robison happened to put up an insightful blog about his own battle with depression recently, which was a happy coincidence.  I’m very glad for people like him who will stand with me and admit that yes, we have depression.  It may not make sense to you, you may not understand it, it might *gasp* make you uncomfortable, but that doesn’t mean it will go away.We are no less human that you.  We did not ask for this fight.  This is not an attention-seeking behavior.  This is real, this illness is out for blood.  This is just our fight.  This matters.  And it can be won.One storm at a time.

This series is dedicated to all the others who fight this battle with me every day.  You are all so strong and so brave.  Don’t let anyone ever tell you otherwise.

Like A Storm © Sarah Allegra

Like A Storm © Sarah Allegra – click on the image to see it full-sized on my site!

Like A Storm © Sarah Allegra - detail

Like A Storm © Sarah Allegra – detail

 

Like A Storm © Sarah Allegra - details

Like A Storm © Sarah Allegra – details

Like A Storm © Sarah Allegra - detail

Like A Storm © Sarah Allegra – detail

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I have VERY BIG, GOOD NEWS.  I’ve felt like bursting from holding it in!

Where Earth Meets The Sky, model Katie Johnson.  © Sarah Allegra

Where Earth Meets The Sky, model Katie Johnson. © Sarah Allegra

My work has been accepted into A Gallery!  A Gallery is a fantastic online gallery who represents some truly stellar other artists in whose company I am proud to be.  You might know of Christy Lee Rogers or Tyler Shields, who are both extraordinary and whose work I knew before I was to be shown alongside them.  One of the most giddy, fan-girl moments though was discovery A Gallery also represents Chris Parks whose work you will know if you’ve seen one of my very favorite movies ever; The Fountain.  That magical, swirly, organic background used in so many shots (especially in clouds of stars and gas in space) are his creation.

Chris Park's dreamy, swirly, organic creations in The Fountain

Chris Park’s dreamy, swirly, organic creations in The Fountain

Chris Park's dreamy, swirly, organic creations in The Fountain

Chris Park’s dreamy, swirly, organic creations in The Fountain

*Squealing, fan-girl hopping*

Ahem.  I am VERY happy to have found such a wonderful home for my art!  I’m thrilled to be working with A Gallery’s owner, Fraser Scott; it’s going to be a really great, long-lasting relationship for everyone involved!  I can’t wait to see what this brings!!  This feels like a really big accomplishment to have checked off my life’s to-do list… and yes, there was champagne when I checked it off 🙂

Vanity's Murder - © Sarah Allegra

Vanity’s Murder, a self portrait – © Sarah Allegra

**Please do take a look at my work on their site!  If you like something, buy it!  You deserve it 🙂  And you’ll be supporting an independent artist and a fantastic gallery at the same time!**

The Shepherdess - © Sarah Allegra

The Shepherdess, model Lucea Shipler, my grandmother! – © Sarah Allegra

When you purchase a print, you will receive one of my gorgeous, luscious, limited-edition, signed and numbered museum-quality prints, printed on the thickest, most delicious fine art paper.  I am going to be printing all my images on Hahnemuhle Fine Art Pearl Paper.  It’s almost like a watercolor paper and it picks up every tiny detail for your viewing pleasure!  As a wonderful bonus, the paper itself is ever-so-slightly shimmery, which truly adds a whole other depth to the images and enhances their magical, mythical feel.  It’s been a long time searching for exactly the right paper which would give me the lifetime of quality I want along with the subtle, fae-like touch of pearl, and this paper is it.  You really have to see it to understand how gorgeous it is

Fae Light - © Sarah Allegra

Fae Light, model Dedeker Winston – © Sarah Allegra

I have sung the praises of my printers, POV Evolving, before and I’ll say it once more.  They are not close to me.  Their location is somewhere between a hassle and a nightmare to get to, I can never go without getting a little lost coming or going, and it’s a big mental and physical drain to make the trip down.  I don’t care.  Their work is so fantastic, I do not care where they are, how long it takes, how snarly the traffic is; it’s completely worth it!  Lauren, who does my printing, is also a truly lovely person who makes the trip extra worthwhile by being so pleasant when you get there.  Pleasantness aside, POV just does astonishing work which will last a lifetime and more.  I have been told by clients who have my work hung in their homes, that when people come over and see my prints for the first time, there are often gasps.  I feel immodest saying that, but that really is the level of beauty you’ll be getting!

End Of Line - © Sarah Allegra

End Of Line, model Aly Darling – © Sarah Allegra

It feels truly wonderful to have found a home gallery run by such a great person who has a commitment to my work, an emphasis on working ethically with everyone, and being in the company of such immensely talented other artists!

A Drop Of Blood, © Sarah Allegra

A Drop Of Blood, model Katie Johnson © Sarah Allegra

I’ve scattered some of Fraser’s image choices through this post, but please take a look at which images he has selected for his prestigious gallery!  And if something strikes your fancy, feel free to purchase a print for yourself or a loved one!   🙂

Hope Of Heaven When Their Lives Ain't Lived - © Sarah Allegra

Hope Of Heaven When Their Lives Ain’t Lived, model Veronica Ricci – © Sarah Allegra

I will still be selling prints through my Etsy shop; either way you will be receiving the same, incredibly high-quality item!

Again Throughout Eternity - © Sarah Allegra

Again Throughout Eternity, model Sandy Moore – © Sarah Allegra

I should have some more good new to share soon, but in the mean time, feel free to join me in having a celebratory drink of your choosing!  Cheers!

3 Good Days

3 Good Days, a self portrait – © Sarah Allegra

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I believe I’ve mentioned before that I have a rather, uh, active dream life.  My nights are often filled with deeply archetypal storylines, heavy with symbolism and metaphor, which, I suppose, is probably part of why I’m drawn to creating images along the same lines.

Hold The Gate © Sarah Allegra - detail

Hold The Gate © Sarah Allegra – detail

Sometimes my dreams are quite silly upon waking, like the dream I had where I was aboard Star Trek’s Enterprise (the original show) and Spock and I had to beam down to an alien planet so I could find my gold bikini (ah la Leia, in Return of the Jedi) which we needed in order to defeat the attacking alien army (different aliens than the ones who lived on the planet my bikini was on) and save the world.  I don’t think I was ever clear on how my gold bikini would do this, but it made sense in the dream.

Sometimes my dreams are very serious and are clearly working through problems and fears, current or past.  I had a whopper of a dream a week or two ago which I’m going to tell you about, as it relates to my most recent image.

This dream was set in the world of The Hero And The Crown, by Robin McKinley, one of my very favorite books; one of those comfort-food books I turn to again and again, especially in times of trouble.  If you haven’t read it, go and do so.  I’ll wait.

I was Aerin, the heroine of the story.  Geoff was Tor, whom I was betrothed to.  We lived in Tor’s parent’s castle (which doesn’t make sense with the book, but never mind) and nobody in the entire kingdom liked or understood me.  My only friends were Tor and Talat, my horse, along with the rest of the castle’s horses.  They had an entire army of war horses who would fight in formation on their own, without the aid of any human riders.  I took great comfort in visiting the stables frequently to get away from the nastiness of all the people and be with creatures who loved me.

The great dragon Maur, easily as big as the castle and made of pure evil, had come back and was laying siege to the castle along with numerous other giant, pure-evil dragon friends of his.  We were hopelessly outnumbered and everyone knew there was really no chance of winning this battle, but we had to try.  The dragons could only attack us at night, but in this world it became fully dark at about 1 in the afternoon and stayed dark until the regular sunrise of 5-6 in the morning.  This meant each night was very long.

Interestingly, Tor already possessed the Hero’s Crown, which ought to have given him the ability to fight the dragons off, but it wasn’t working.  It held them off a little, just barely, but it wouldn’t survive another night.

I visited the stables after the first night, thanking the horses, some of whom had been greatly wounded or killed, for their bravery in battle.  Quite a lot of them were also pregnant and foals kept popping out every time I turned around.  We had a good talk and I felt encouraged after I left them.

I found Tor and told him that I had to travel back to my family’s castle to retrieve two magic rings.  If we both wore them, then we would be strong enough to vanquish the dragons.  The thing was, I could only tell Tor where I was going and why.  I had to keep it a secret from absolutely everyone else.  At the end of the dream, I was riding off on Talat to my castle to get the rings, knowing that everyone hated me because they thought I’d just deserted them when they were most in need.  Dusk was falling as Talat and I galloped along and I knew I had to really hurry to get the rings and return to Tor’s castle in time to help everyone survive.

A couple things I should point out right away; Tor’s family in the dream is NOTHING like Geoff’s actual family.  His family embodies that friendly, easy-going, pull-up-a-chair sort of Midwestern charm you always hear about.  They’re truly all wonderful people, so don’t think that that part of the dream had any resemblance to reality!  Also, as far as I know, there aren’t any large groups of people who hate me.  I suppose I could be wrong about this, but again, the dream is not representing real life in this way.

After mulling it over a lot, talking to my mom (who is especially gifted at dream interpretation), Geoff and my therapist, I came to a few conclusions.

The dragons = ME.  Now, to be fair, I actually like dragons, but my brain often uses them as a symbol for big, bad, evil things.  (It also often uses Calantha to represent my inner child in dreams, which is just full of Freudian symbolism.)  Fighting ME every day often really does feel like you’re besieged by dragons.  You’re trapped in your castle (house/body) while an unrelenting assault of badness attacks (all of my ME symptoms; pain, fatigue, etc).

I was confused about the nights being so long until I remembered something I’d said to Geoff a few days before the dream.  I had realized that most days I spend 11-12 hours a day in bed sleeping, or at least trying to sleep.  If I can get a solid 11 regularly, I feel much better, but since my sleep is so poor, I’m often trying to make up for the bad sleep, so the time spent in bed creeps up higher.  I was startled when I realized just how much time I spent every day just trying to sleep.  I’d been getting frustrated, feeling like my days were so short and there were never enough hours… and while I know that pretty much everyone feels like there aren’t enough hours in a day, I suddenly knew why it seemed like my days really were getting much shorter.

ME also really messes up your sleep.  And if you do find yourself up at 4 am, watching TV, taking a cocktail of pills to try and get back to sleep, as I often do, nights can feel especially long and lonely.

I think that the Hero’s Crown was all the stuff I’ve tried already to feel better, all of which promise to work and cure you, but none ever has.  The rings were a hope of future treatments or cures.  Going off to get them while things were most dire represented the typical path of trying a treatment, which usually involves over-exerting yourself in some way first (going to the doctor’s office, my several-times-a-year nerve-blocking injections).

I suspect that the crowd of people who disliked and misunderstood me is my fear of people not understanding that I actually am sick, even if I don’t look like it outwardly.  This is an extremely common worry from anyone with an “invisible illness;” any sort of sickness which does not manifest in outward signs.  I often feel the need to make sure new people in my life know that I have ME and have a basic understanding of what it is so that they don’t think I’m lazy, or that I just didn’t want to go to their party, or have dinner with them.  It’s a pretty big fear, to be honest.  Almost without exception, everyone who is in my life knows what my deal is and while they invite me to things, they’re all very understanding if I can’t make it, especially if I have to cancel last minute.  I really, really hate to cancel at the last minute, but sometimes your body leaves you no other choices.  The secrecy of my mission to get the rings was mirroring the invisibility of my case of ME.

As for the more pleasant things about the dream, Geoff as Tor believed me, and he also supported me even though the entire rest of the kingdom wished he wouldn’t.  That’s 100% Geoff.  He will love and support me, in a fantasy battle with dragons, or in the real world battling insurance companies.  He is a fearless protector and someone I can always count on.  I also liked that for the magic rings to work, we both needed to wear them.  I think that speaks to the importance of having someone caring for and supporting you through this stupid disease.  I can fight it on my own, but it’s a million times better to have an ally.

And lastly, the animals will always be with me.  I have had a special kinship with animals of all kinds, since before I can remember.  My dad likes to tell the story of how there used to be a couple of huge Great Danes in a house behind ours and how they would bark and bay and snarl ferociously through the small gap in the fence if they saw you.  One day I came inside and said, “You know those big dogs out there?  They’re really friendly!”  Alarmed, my dad checked to make sure I still had all my fingers, then came outside with me where he realized that the Danes were causing a fuss because they wanted attention, not because they were aggressive.  Then for a while I collected snails in a bucket and kept them as “pets,” which I believe led my parents to get my first dog because it was just so pathetic that I was gathering snails to be my friends.  Animals have always been a big part of my life, creatures I can trust and rely on, who are as unchanging and solid as a mountain.

As I was meditating on the dream, I kept being reminded of a few big scenes from the biggest battle in last season’s Game Of Thrones.  You don’t really need a lot of context for it, just that the good guys are trying to keep the very bad guys out, and they’re horribly outnumbered and outmatched.

(Sorry, YouTube won’t let you play the videos here, but if you click the little “YouTube” button near the bottom of the video screen, it will take you directly to the videos.)

It may seem silly to those who have never experienced ME, but this is what it feels like to me.  Like you’re outnumbered 1000 to 1, the other side has mammoths and giants and all you’ve got is a fairly useless sword to try and fight them all off.  There is no end in sight, and barely any hope that you’ll succeed.  This is also the way a lot of The Hero and the Crown goes, which is part of why it’s one of my favorite books.

It may sound silly to those who have never know chronic illness’s cruel touch, but I’m willing to bet that everyone who has dealt with it will understand at once.  It’s exhausting to fight an enemy every day, who you can’t see or touch.  And even more so when some people don’t believe the enemy exists.

So, as I do, I had to take a self portrait to work through my feelings on this dream.  What could be more DreamWorldy than an image inspired by an actual dream?  I can imagine this being a snippet of DreamWorld’s rich history, perhaps during the Yellow King’s grab for the throne.  I edited it with both The Hero and the Crown and Game of Thrones in mind, lending visual inspiration.

We sick will keep fighting.  We will hold the gate.

I’ll hold the gate.

Hold The Gate © Sarah Allegra

Hold The Gate © Sarah Allegra

My lighting setup for Hold The Gate:

Hold The Gate lighting setup

Hold The Gate lighting setup

My tripod it balanced on the mattress and the camera would shift slightly whenever Calantha, also on the mattress, moved.  There was just enough room between my bed, the closet and all the other things in that part of the bedroom to make this work.  Who needs a studio??  😉

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******* NEW! *******

Red Bubble is holding a 15% of Stocking Stuffers Sale!  Use promo code STOCKING15 to get 15% off all stocking stuffers until 11:59pm PST on Friday, November 21 2014

I have also released my 2015 calendar, featuring 12 of my most popular images from the previous year!  I put out a new calendar every year making each one different and unique, as well as being a great value in getting 12 images to display.  Snap up this collector’s item and add a little magic and beauty to every day of 2015!

My 2015 Calendar!

My 2015 calendar!

The calendar features the beautiful models, actors and actresses Katie Johnson, Dedeker Winston, Dan Donohue, Travis Weinand and Aly Darling.  Images span many of my series’ such as DreamWorld, Enchanted Sleep, Glass Walls, Orphans Of The Mother Road and self portraits!

My Red Bubble store carries calendars, tshirts, hoodies, stickers, blank greeting cards, post cards, phone and tablet cases, laptop skin, throw pillows, tote bags, mugs (travel and regular) and even a few duvet covers, all covered in my images!  Every item they produce is extremely high quality and will last forever.  You can knock out all your holiday shopping in one stop, so come on by!  🙂

*******

It’s been a very crazy couple of weeks since my last post!  My sinus surgery is over, including an odd complication I had which caused an artery near the back of my sinuses to burst unexpectedly.  This led to me losing 2-3 pints of blood and having to have an emergency surgery last Tuesday to correct it.  I’m happy to say I seem to be all done bleeding and nothing else strange has happened since then!  I’ll tell you more about my adventure in another post; it’s a rather long story.  I’ve regained most of my strength but I’m still recovering a bit.  So let me tell you about today’s self portrait for now!

This image has been in my mind for a long time, ever since I this post.  I had discovered, in the course of looking through my blog’s stats, that someone had found my blog by searching “I have Chronic Fatigue Syndrome and I want to give up.”  My heart still breaks for this person.  I wrote a post at the time replying to them but I’ll probably never know if they saw it or what happened to them.

I’d wanted to create an image for my Enchanted Sleep series based on the idea of being beaten down by chronic illness yet getting up, but it took a while.  My first attempt was unsuccessful and I had to think for quite a while about what wasn’t working and then find time to reshoot it.  Eventually though, I had created the image I wanted to make.

While I had physical, chronic illness in mind when I was creating this, the image is certainly not limited to being interpreted just in that light.  Mental illness, for example, is another example of something you have to rise from again and again.  And it happens that I’m in a bout of depression myself right now.  The reasons are long and complicated so I won’t get into them now, but every day recently, I’ve felt like this just trying to get out of bed… never mind how I might feel physically.

Chronic illness, mental illness… they are not something you can beat in a day.  You’ll have good days and bad days.  You may have entire days, or even weeks or months where you don’t struggle with whatever it is that knocks you down.  But when it comes, you have to get back up.

Every time.

Every time.

Every time.

It can be exhausting, and you might not have anyone in your life who knows that you’re even battling like this.  Those who have a strong support system in place are fortunate; it helps, a lot.  But whether it’s something others know about or not, it’s a demon which must be faced and conquered every time it arises.

I hope that everyone reading this has their own support system to keep them going.  Friends and family, online or off, who can cheer them on.  Who can give them the push or pull they need.  We all need help from each other; there’s absolutely nothing wrong with asking for or receiving help.

Asking for help can seem more daunting than fighting the beast holding you down.  But do it.  No matter who is reading this, you have people in your life who love you, who care about you, who want you to succeed, who will extend the hand you need to get you through this.

Whether it’s an internal struggle no one else will ever see or you have countless loving people help guide you through your troubles, we must rise every time we get knocked down.

Every time.

We Rise Again - © Sarah Allegra

We Rise Again – © Sarah Allegra

If you need help and you don’t feel comfortable approaching anyone you know, you can always talk to The Samaritans.  You can call them, email them or even text them.  They have people around 24/7 to help you through whatever you’re facing and it’s completely confidential.  They are well trained and caring.  Give them a try if you’re in need of someone to talk to!  I can personally vouch for how much they help.

 

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“She twines her spine up slowly

Toward the boiling sun

And when I touched her skin

My fingers ran with blood”

-True Detective’s Theme Song “Far From Any Road,” by The Handsome Family

Toward The Boiling Sun - detail- © Sarah Allegra

Toward The Boiling Sun – detail- © Sarah Allegra

It occurs to me that Cacti and Sinuses sounds like a weird band name 🙂

Here we have another True Detective-inspired image for my Pop Culture set of images.  This one was inspired more directly by the song used in the show’s title sequence, Far From Any Road, by The Handsome Family.  The song’s lyrics tell the story of a cactus which blooms once every thousand years.  Anyone who witnesses the rare event is driven mad by it.  Which, considering how much inspiration the show took from Robert W. Chambers’ The King In Yellow, a short story collection about a fictitious play which will drive any viewers or readers  insane, feels perfectly fitting.  It also is a brilliant pairing in mood and style for the show; the images and beautiful double exposures all work in such harmony… it’s the most beautiful pairing of music and television.

I don’t think my imagination is anywhere near being done inspired by True Detective though!  It’s the show that just keeps giving and giving 🙂

I’d like to clarify that I did not actually force Katie Johnson to sit nude in the middle of a cactus pile.  No models were harmed in the making of this image!  I composited an image I shot of Katie from a high angle with images I shot of my neighbor Donna’s cacti and blended them together in Photoshop.  Thanks to Geoff for steadying the ladder I was on shooting the cacti and helping to make sure I didn’t get stuck by any of their needles!

Changing the subject; at this point, I’ve had eight colds since the end of July, one of one which lasted for 3 weeks, two ear infections with the colds and strep throat another time, so I am having sinus surgery tomorrow.  Apparently my sinuses aren’t draining like they’re supposed to, the germs are never really leaving and they keep taking over my body again and again.  Despite my generally poor health with the fibro and ME, my sinuses haven’t really ever been an issue up till now, so I’m hopeful that the surgery will clear things out and this will stop being an issue.  On average, I’ve only had about two to three weeks between colds for the last three and a half months and I can’t tell you how VERY TIRED I am of having colds.  Lots of acute illnesses of top of chronic illness feels terribly unfair.

The last couple months have been rough health-wise, but I’m very eager to let the doctor clean me out and hopefully set me down headed the right direction!  I’ve been told to expect to feel extra crappy for a while after the surgery, and I was able to get a few simpler images edited before today in case I’m feeling really terrible for a while, so there shouldn’t be any big break in images being posted.  I will also have my wonderful husband Geoff to help me through my recovery; he has had this exact surgery before, which I’m sure will be very handy to help me figure out how to best deal with whatever negative effects I feel from it.  He’ll be with me the whole day of my surgery and the next, and after that I should be ok to be on my own.  But I’ve got my wonderful neighbors right next door in case anything comes up!

I’m chomping at the bit to get the surgery over with so I can start actually feeling better, but of course I’m also a little nervous about it.  So wish me luck; your good thoughts and energy will be very welcome!  I’ll try and update the blog when I’m feeling up to it.

Anyone else here on Instagram?  I just joined recently; let me know if you’re on there!  Also, if you missed it, please see my last post about the near extinction of wild lions, as portrayed through Travis Weinand in DreamWorld; a cause very important to me!

One of the things I love about working with Katie is how her heavy dance background translates so beautifully into her modeling.  She is just always so graceful and effortlessly aware of every part of her body, able to emote even through her fingers and toes.  With that said, please enjoy Katie’s beautiful work in this latest image of her!

Toward The Boiling Sun © Sarah Allegra

Toward The Boiling Sun © Sarah Allegra

Toward The Boiling Sun - detail- © Sarah Allegra

Toward The Boiling Sun – detail- © Sarah Allegra

Toward The Boiling Sun - detail- © Sarah Allegra

Toward The Boiling Sun – detail- © Sarah Allegra

Toward The Boiling Sun - detail- © Sarah Allegra

Toward The Boiling Sun – detail- © Sarah Allegra

Thanks, Katie!  You’re always beautiful!  And thanks to everyone in advance for your well wishes!

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