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I have actually known about Forgotten Plague for a couple of years and I’ve been anxiously awaiting its release!

Forgotten Plague (2015)

Now, finally, the documentary has been completed and it is available to stream through Itunes or Amazon for $4.99.  That is an amount I am more than happy to give to help support one of the few existing documentaries on ME/CFS.

Forgotten Plague’s creator, fellow ME/CFS sufferer Ryan Prior, does an excellent job of explaining just what ME/CFS is (as far as we currently know), what makes it so complicated to understand and treat, how it has been stigmatized and ignored by the medical community, and hopeful glimpses of a future with answers… maybe even a cure.

Honestly, I woke up today already at the end of my energy.  I feel like I can barely string words together right now, but this movie is far, far too important for me to not spread the word about it right away.  We NEED movies like this.  We need people who do not have ME/CFS or personally know someone with it to understand our struggle.  We need healthy people to help us fight for answers.  We need the stigma and misunderstandings to end.  We need people to have any idea what we’re talking about when we tell them we have myalgic encephalomyelitis.

Please watch Forgotten Plague, tell your friends about it, share it on social media.  This excellent film could help our community in profound ways, and we need that to happen.  Everyone wants to be understood.  At worst, watching this movie will help you get what my life is like.. and why I have had to slow down so greatly in all areas.  And you’ll probably enjoy my Enchanted Sleep series, on living with ME/CFS, a little bit more.

Thank you to everyone who will watch it and share it.  And a huge thank you to everyone who helped work on this magnificent documentary.  I’m sure it was utter hell at times, trying to make a movie while having ME, but the results are brilliant.  Thank you for validating our experiences.

Now, go watch Forgotten Plague!

A Poisoned Sleep And Kissless Dreaming

A Poisoned Sleep Of Kissless Dreams © Sarah Allegra – model: Katie Johnson. An image from my Enchanted Sleep series.

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I promised you photos from my opening reception at the Creative Arts Group opening reception and here they are!

Of course I got all caught up experiencing the show to remember to take photos once it really got going, so mostly I have photos of the exhibit itself and a few from Geoff.

IMG_1473IMG_1474We had a pretty good turn-out!  And luckily for my anxiety, I knew most of the people who came fairly well which made it much easier on me.

IMG_1475IMG_1476People seemed to really enjoy getting to see the props and costumes up close and realize they really weren’t Photoshopped.  Not, of course, that there’s anything wrong with using Photoshop, I certainly do, frequently and heavily to make the impossible possible, but when I’ve put month and months of work into something, it’s an important distinction.

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Me with the dress and flower footprints from Spring’s Awakening – and my awesome, retro-deer-print dress

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Antlers from Where Black Stars Rise

Antlers from Where Black Stars Rise

Chest piece from Where Black Stars Rise

Chest piece from Where Black Stars Rise

Our old neighbors, Donna and John, showed up, which was really lovely.  It’s been hard on everyone to have suddenly gone from seeing each other every day to every few weeks, so it was great to be able to have them hang out for a little while and gossip about really important topics like Game of Thrones.

John, me and Donna

John, me and Donna

I was completely exhausted afterward and crashed very hard the next day… and a couple after that too.  But it was good to have had the reception and I’m glad it happened, even if I paid for it later.

IMG_1488Maynard crawled up on me after I got home and laid on my chest, giving me sweet little kitty kisses.  I took a photo because he was being so adorable and also to document the fact that I DO still know how to apply makeup, I just don’t bother expending energy on it regularly 😉  I have better things to do with the precious little I have.

It’s been a little while since I posted a new image, and part of that is because I’ve been hard at work getting ready for the show, then recovering, then I was helping Geoff with a really fantastic short film he made.  Are you a sci fi fan?  Like stories about dystopian futures?  Give it a view!  It’s a really cool, original concept which I’m proud to have my name attached to.

Frontiers posterNow… on to my new image!

My good friend Danica is a horse trainer and I discovered she had a cream-colored gypsy vanner stallion named Booger staying with her for a few weeks.  Booger was only going to be with her for a short time, so I quickly rallied Katie and got a shoot scheduled.  Booger perfectly fit a series of images I’ve been wanting to shoot for years, but they required not only a horse, but an extremely specific-looking horse.  Luckily, Booger fit the bill!

Those images will be coming later.  For the mean time, I wanted to make as much use of him as possible, so we shot quite a few concepts.  This one was Katie’s idea, sort of a companion piece to this self portrait I shot, also on a horse (Freddie, who is extremely laid-back) belonging to Danica:

Where Dreams And Shadows Lie © Sarah Allegra

Where Dreams And Shadows Lie © Sarah Allegra

Booger did such a good job!  He’s only about two, a baby in horse years, and he had never modeled before.  It required a lot of fast thinking, re-adjusting and everyone being on their toes, but we got some really wonderful shots!  This is just the first of several which you’ll see; the others will be released as I get to them.

Thanks to Katie and Danica (who really did an incredible job of wrangling an untrained young stallion into doing the weird things we were asking of him), Booger’s owner for letting us photograph him, and especially to Booger for being such a great first-time model!  Many smooches and apples to you, my friend 🙂

Safely Through The Shadows © Sarah Allegra, model - Katie Johnson

Safely Through The Shadows © Sarah Allegra, model – Katie Johnson

Safely Through The Shadows © Sarah Allegra, model - Katie Johnson - detail

Safely Through The Shadows © Sarah Allegra, model – Katie Johnson – detail

Safely Through The Shadows © Sarah Allegra, model - Katie Johnson - detail

Safely Through The Shadows © Sarah Allegra, model – Katie Johnson – detail

Safely Through The Shadows © Sarah Allegra, model - Katie Johnson - detail.  Look at those feathery legs!!  :D

Safely Through The Shadows © Sarah Allegra, model – Katie Johnson – detail

Safely Through The Shadows © Sarah Allegra, model - Katie Johnson - detail

Safely Through The Shadows © Sarah Allegra, model – Katie Johnson – detail

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Something you’ll know about me if you follow me anywhere or have read any other blog entries is my deep, abiding love for Peter S. Beagle and all of his creations.  Yes, he is best known for his beloved masterpiece The Last Unicorn (the same story that was made into an animated film and you probably saw as a child, not grasping its full, profound meaning).  The Last Unicorn deserves every bit of praise it gets and more.  It’s the most incredible story, full of wonder and love and great sorrow… and joy, despite, or because of, the sorrow.  What many people don’t know is that Peter is an exceptionally prolific writer, having written more books and short stories than I can count (A Fine and Private Place is a very close second favorite to The Last Unicorn).  And every single one is just as brilliant of a masterpiece as The Last Unicorn.

In The Lilac Wood, a self portrait

In The Lilac Wood, © Sarah Allegra, a self portrait

I actually don’t remember a time when I didn’t know the story of The Last Unicorn.  As in the book, “there has never been a time without unicorns,” so there was never a time for me without The Last Unicorn.  It came out the year before I was born and I grew up knowing it.  My brother and I both loved it, and to this day can still quote nearly the entire thing by heart.  We would make a game out of it, seeing how long we could volley the script back and forth.  As I got a little older, I started reading the book, and each time I did, I discovered new levels, new depths, new nuances that I hadn’t been old enough to understand before.  It’s a common misconception that Unicorn is a children’s story, simply because the movie made from it was animated. There’s nothing wrong with children reading or seeing the movie, but it is a story for grown-ups.  You can’t fully appreciate the skillful, deft writing, the terrible tragedy, the glorious splendor, the tear-inducing sacrifice, the depth of the characters until you’ve experienced more of life yourself.

And Other Secrets, © Sarah Allegra, Model: Anna Wood

And Other Secrets, © Sarah Allegra, model: Anna Wood

It doesn’t surprise me now that I look back and remember that the very first self portrait I ever took, far before I was a “photographer” or a “self portrait artist” was inspired by the book.  The character of the unicorn, magically transformed unwillingly into a human girl for much of the book, taken from immortality into a body she feels dying all around her, resonated so deeply with me.  I probably don’t have to draw you a very detailed map of how it relates to my experience of living in a shitty body possessed by ME.  And yet the unicorn gains something which sets her apart from all the other unicorns in the world by her ordeal.  She learns regret.  She learns to love.  She is made more full for all her suffering.  It’s a hope I cling to for myself, sometimes harder than others, but one I return to again and again.

The Importance Of Mortality, © Sarah Allegra, a self portrait

The Importance Of Mortality, © Sarah Allegra, a self portrait

About two and a half years ago, Peter magically discovered some of my work which had been inspired by his writing (both The Last Unicorn and other stories) and his business manager, Connor Cochran, reached out to me.  There is still much under wraps and it will all be revealed in time, but we began working together, which was more than a dream come true for me.  Bless him, Peter is the antithesis of the saying “never meet your heroes.”  Meeting Peter only me love him and his writing more.  There truly are few more kind, generous and relentlessly creative people on earth.  And he is this generous with everyone.  At The Last Unicorn Screening Tour (which I HIGHLY recommend you attend!!) he will stay until EVERY SINGLE PERSON who would like to meet him, hug him, have him sign their book or take a photo with him is seen.  Despite the often very long lines, he doesn’t make you feel rushed, he takes his time and lets you say whatever you need to say.  In the moment you’re with him, you are the only person in the entire world and you have his full attention.  This does mean the screenings often end in the wee hours of night, and I don’t know how they all do it, those hours would kill me, but it’s just who Peter is.

Salt Wine - © Sarah Allegra, model: Peter Onorati

Salt Wine – © Sarah Allegra, model: Peter Onorati

A little while after I had signed my contract with Conlan Press, Peter’s publishing house run by Connor, I gathered up my nerve and asked Connor if I could borrow Peter and photograph him as DreamWorld‘s King when they were in town for the next screening.  To my joy, Connor gave me the go-ahead.  This led to a nightmarish few weeks when I frantically created Peter’s incredibly elaborate costume made almost entirely out of paper (fully documented here) but the results were worth every tearful, over-tired night I had getting ready for it.  No one could be DreamWorld‘s King better than Peter.

Beloved Of The Crown - Peter as the King, with Dedeker Winston and Katie Johnson as his maids.

Beloved Of The Crown – Peter as the King, with Dedeker Winston and Katie Johnson as his maids.

Aerie - Peter as the DreamWorld King.

Aerie – © Sarah Allegra, Peter as the DreamWorld King.

Why am I telling you all this?  Just to illustrate what an incredibly special and remarkable person Peter truly is, and how wonderful Connor and everyone at Conlan are.  They put their all into every single screening.  They are genuinely all wonderful people, and Peter is everything you would hope he would be and more.  I’ve been fortunate enough to have attended two of them; the first time was the same day that I photographed Peter so I had no energy for dressing up myself for the show, but the second time I went as Amalthea, as seen below (which won the costume contest that night, probably because of my handmade Have A Taco Purse, which I can make for you too!).  Seeing the movie in a theater never fails to bring tears to my eyes.]

At the screening as Amalthea (with purse) and back at home.

At the screening as Amalthea (with purse) and back at home.

Which, in my rambling, round-about way, leads to the main thrust of this post.  The tour had planned on traveling to multiple countries in Europe this year, and while the movie will still be shown and everyone will still have a fabulous time, Peter will be unable to attend due to a non-threatening health issue.  Peter is ok, there’s nothing to worry about, but still… even non-threatening health issues suck.  Peter hopes to be back on the road soon, but I thought that it might cheer him up if we all rallied and showed him some love.  What do you say?  For our beloved author who writes the stories which make us weep simultaneously from sorrow and joy?  He has given SO MUCH to the world, let’s try and give even a fraction of it back to him!

To Be So Full, © Sarah Allegra, model: Dedeker Winston

To Be So Full, © Sarah Allegra, model: Dedeker Winston

What do I mean by that?  Well, feel free to leave a comment here on the blog.  I’ll send them on to Connor who can forward them to Peter.  Feel free to leave kind words of encouragement on his Facebook page or send him an email at contact@conlanpress.com.  I’m sure he will really appreciate everyone’s show of support!

Sleight Of Hand © Sarah Allegra, featuring my neighbor John Harnagel

Sleight Of Hand © Sarah Allegra, featuring my neighbor John Harnagel

And let’s face it; we owe him.  For decades of wonder, joy and poignant insight.  For holding up mirrors full of fantasy which still reflect ourselves back and help us make new discoveries.  For every brilliant word typed, every tear shed and every heart which grew in size because of his writing.  For showing us what heroes are for.  For bringing us unicorns.

Get well soon, Peter.  We all love you 🙂

Now Has Come The Time For Silence -© Sarah Allegra, a self portrait

Now Has Come The Time For Silence – © Sarah Allegra, a self portrait

See all my Peter S. Beagle-inspired images here and buy fun things with these images on them here!

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It’s that time of year when everyone with a blog is required to take a look at the previous year and take stock.  I like this tradition.  It gives you a sense of accomplishment for the things you’ve done and also brings to mind what still needs attention.

So what happened in 2013?  So much!

I signed a contract with Conlan Press, Peter S. Beagle’s publisher.  This has already brought some very exciting things about, and there are many, many more to come!

In The Lilac Wood

In The Lilac Wood

I created what I consider the first “real” DreamWorld piece.  By “real” I mean a full-fledged character was brought to life with costumes and props which took months to create and inventing new ways to bring about my vision on a shoe-string budget.  The inclusion of birds would also prove to be a frequently occurring theme in DreamWorld.

The Court Of The Dryad Queen

The Court Of The Dryad Queen

I got to photograph Lauren Cohen, aka Maggie from AMC’s The Walking Dead.  The image also kicked off a sub-series of DreamWorld portraying the various steps along the Hero’s Journey.

Crossing The First Threshold

Crossing The First Threshold

I also got to photograph Paul Telfer, known for his roles in NCIS, The Vampire Diaries and other roles that require buff-and-handsome men.  He perfectly portrayed the angelic kind of being you would want watching over you while you sleep.

Prayer For The Frail

Prayer For The Frail

This year also brought about a new, ongoing collaboration and friendship with actor/model Katie Johnson.  I could write an entire post about how wonderful it’s been to have Katie in my life, both for artistic reasons and personal ones.  I will leave it at two main points; that she is a spectacular model, equally skilled at following specific, minute directions as well as being let loose while I just try and keep up with her.  Her friendship, strength and grace have been a great boon this year, especially during some notable rough patches.  Thank you, Katie 🙂

Perennial Parasol

Perennial Parasol

One of those notable rough patches was learning about the tragic deaths of the 19 Hotshot firemen in Yarnell, Arizona this summer, and that one of them had been a childhood friend of mine.

To The Lost

To The Lost

In a somewhat similar vein, I took my passion for animal rights to a new level after watching the documentary Blackfish.  This also meant that I finally tackled underwater photography, which I’d been quite nervous about trying.

Concrete Cell

Concrete Cell

I wrote an open letter to Jack Hanna criticizing his continued support of SeaWorld after the Blackfish allegations, which became quite successful and even garnered the attention of celebrities such as British actor Stephen Fry.

Stephen Fry Tweet

Stephen Fry Tweet

Like DreamWorld, the set of Blackfish photos has set in motion a more all-encompassing series addressing animal rights in other areas.  More of that will come in 2014!

A Drop Of Blood

A Drop Of Blood

In championing human causes, I got to be a part of the Kickstarter campaign for the documentary Canary In A Coal Mine, in production, about myalgic encephalomyelitis, aka ME, previously known in the United States as Chronic Fatigue Syndrome/CFS.  The Kickstarter was an INCREDIBLE success, and we can look forward to seeing the film in late 2014 or early 2015!  I’m proud to have been a small part of the movement.  I also got to work a little more on my series on living with ME with the help of model/friend Aly Darling.

Martyrs To A Name

Martyrs To A Name

I visited a sheep farm to take photos of lambs and goats along with friends Katie and Brooke Shaden, to create a very personal portrait of my grandmother.  This particular lamb was appropriately named Too Cute 🙂

The Shepherdess

The Shepherdess

I had the pleasure of being interviewed on The Candid Frame, The Altadena Blog, and having some of my photos appear in the self-portrait how-to book, Shooting Yourself, by Haje Jan Kamps.

SP book all pages

I “celebrated” my 5-year anniversary with ME.  I’ve tried many new therapies this year to combat the ME, but with the exception of ART massage, it has gotten slowly worse and finally forced me to quit my day job.  In some ways this is a good thing, as my day job was doing my body no good at all, and it also means now I can concentrate fulltime on art.  But it’s also a bit frightening; will the ME get a little worse every year?  Will it level off now that I’m not pushing it trying to hold down a job?  There are many unknowns, which can be worse than knowing something bad will happen.  I try and keep a good attitude about things, but it’s also no good trying to simply ignore your fears.  They won’t go away, they’ll simply grow in the dark.

Vanity's Murder

Vanity’s Murder

This TED Talk sums up my fears, hopes and trials beautifully, and I would recommend it to anyone and everyone, especially any who struggle with depression.

I am still mourning Richard Harrow’s death (this was my light-hearted way of dealing with it) and I’m working on a photo to help work through those feelings.

On a happier note, I got to save a litter of opossum babies and was deeply moved by a beautiful new book.

But perhaps very best of all was getting to photograph author Peter S. Beagle, of The Last Unicorn fame, and bring him into DreamWorld as its King.  It was such a tremendous amount of work, but that just makes the resulting photos that much more meaningful.

Beloved Of The Crown

Beloved Of The Crown

A year ago, I never would have thought I’d find myself not only merely talking to Peter, but actually interacting with him, making a costume for him, and casting him as one of the most important characters of DreamWorld.

Aerie

Aerie

If that all happened in 2013, what will 2014 bring?  I am very excited to find out!

Christmas Eve

Here’s to a great new year!

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I want to give you all a few quick updates here on the blog.  First though, I’d like to introduce my first Blackfish-inspired photo today, titled “Concrete Cell.”  It is the first in a series, but I was too excited to share this photo to wait until they’re all finished.
The often-cited comparison of SeaWorld’s whale enclosures being the equivalent size of a bathtub to you or me not only deeply saddened me, but also sparked the idea for this photo.  Imagine it.  When you’re not forced to perform, you live in this sad, colorless, sterile world of concrete and shadows.  The intelligence of these whales makes their living conditions even crueler and more heartless; sentient beings shoved into tiny compartments where they die a little more every day.
If you also agree that SeaWorld’s practices are abusive and need to be changed, please see my open letter to Jack Hanna regarding his defense of SeaWorld.  You can read more about the issues there and take action with petitions to sign!Thank you to Katie Johnson for her beautiful underwater modeling in this!  Underwater modeling is a skill unto itself and quite tricky, but she makes it look effortless.
Concrete Cell

Concrete Cell

Secondly, there has been a lot of response to my post about suicide and Chronic Fatigue Syndrome/myalgic encephalomyelitis.  This is one of those topics that is very, very real, but rarely discussed in public.  Or even in private, for that matter.  There is always a correlation between any kind of chronic illness and suicide, because there is only so much a person can endure.  This post has been shared quite a bit already, but I would love for it to reach even more people, and hopefully find its way to the original person who found my blog by searching “I have Chronic Fatigue Syndrome and I want to give up.”  I understand that feeling.  My blog will rage in its way against cruelties, abuses and atrocities, but its arms are always open to the ill, the hopeless, the voiceless and those in need.  This is not a place of judgement.  This is a place of love and acceptance.

Lastly, my 2014 calendars are now available!  Printed on thick, gorgeous paper, each month features a popular new image from my most recent works, including photographs from my DreamWorld, actor portraits series and my CFS/fibro/ME series Enchanted Sleep.  So add a dose of magic to your day…or the day of someone you love…with a collectable calendar!

2014 Calendar

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