**Before I get into the meat of this post, I am happy to announce that I will soon start holding mythic photography workshops! We’ll go over techniques for drawing the magical and awe-inspiring out of the ordinary. Email me at sarah@sarahallegra.com if you’re interested and I’ll keep you up to date!**

Closeups of both finished photos.
Oh my… this is one of those posts where I have so much to say I can hardly figure out where to start!
I think pretty much everyone reading this will already be familiar with my DreamWorld series, right? The series portraying the characters and landscape of the world we visit in our sleep? I have become quite obsessed with it, even though the photos usually demand so much more preparation and work than other photos do. There is something incredibly therapeutic and wonderful about imagining an entire world and breathing life into it one photo at a time.
The very first character I imagined for DreamWorld was its queen (who we will meet in the future) and eventually I thought that if there is a queen, there probably should be a King too. And while I imagine that the queen is really the one in charge, the King is the ultimate father figure. Warm, approachable, unfailingly kind and wise, but still powerful and majestic. It’s a lot to ask of one person, and I mulled over who could play him for a long time.
While I contemplated that, I thought about what the King’s costume should be like. I wanted it to be book-inspired, both literally and metaphorically. Carl Jung’s and Joseph Campbell’s writings have had such a big influence on my life, and on this series in particular, I wanted the King to be an homage to them and their works. So books, paper and writing would be the main themes of the costume… and as usual, I had no idea how I was going to pull it together.
While all that was happening in my head, I learned that Peter S. Beagle would be in town as part of his world-wide “The Last Unicorn” movie screenings tour (which I HIGHLY recommend!). I suddenly pictured Peter as the King, and once I’d done that, I couldn’t imagine anyone else doing it. He was absolutely perfect. He is the King. Every single time I’ve met him, he has exuded such warmth, wisdom and kindness that I wished I could adopt him as an uncle. And given my recent partnership with his publisher, Conlan Press, I thought it would be the mutually beneficial to everyone. I’m very happy that Connor, Peter’s publisher and manager, agreed and was able to loan me Peter for a few hours while they were in Los Angeles.
So, casting was settled, but that left me only about three weeks to build every prop and costume I’d be using. Which was not nearly enough time. I’d begun working on the King’s magic book before I even got a yes and had already spent over 30 hours just building it. It was going to be an ugly three weeks, but very, very worth it, so I launched into creation mode.

You really have to see the book in person to understand why it took so long to make. At this stage, it’s just many, many subtle layers of paint.
Peter would be wearing long robes that would transition into paper scrolls at his feet, along with a crown made from folded paper. His collar and cuffs were lace made from tissue paper, with crinkled paper accents. A buckle portraying a tree of life would hold the robes closed, and the part I was perhaps most excited about was the collar of paper birds taking flight. That was the end goal… how I’d get there, let alone in three weeks, I had no idea. But I started with what I knew, making the tunic under his robe, and the fabric part of the robe itself.

Initial sketches
The tunic and robe themselves were pretty easy, standard pieces of DreamWorld wear, so they came together quickly. The robe was made mostly from cotton muslin, since it’s inexpensive and takes tea-dying well (which I suspected would be in its future). The yoke was made from the most beautiful metallic gold jacquard-type fabric (I purchased it as a remnant, so I’m not sure exactly what it is, other than gorgeous). The first introduction of paper into the robe came by using long sheets of corrugated cardboard in the place of pin-tucked fabric. I broke a needle on my sewing machine trying to get it on before finally locating my super-heavy-duty-heavier-than-duck-and-denim-together needle, which held up.

The robe with cardboard “pin-tucking.”
I’ve never felt especially adept at sculpting, but I knew I was going to have to do at least some for the King, so I got some silicone clay which could be baked in an oven and a couple molds. One mold featured different female faces on it, while another had branches, leaves and birds. Leaves I though I could probably get away with on my own, but with the time I had, I didn’t want to have to try messing with making a beautiful face on my own. Plus, the molds were on a 40% off sale, so I took it as a sign. Most of the sculpting ended up on the cover of the book, which became quite symbolic all on its own, incorporating elements of Joseph Campbell, Peter Beagle and myself.

Beginning to sculpt. You can see the shell of the unpainted book in the upper left-hand corner too.
The King’s costume incorporated keys and locks in numerous places, a metaphor for how Peter and Joseph Campbell’s writing had unlocked so much wisdom for me. Around the large keyhole (obtained from a wonderful architectural salvage yard) I sculpted two pieces which could look like either paths or (bull’s) horns, nods to “The Last Unicorn” and the hero’s journey. I made my own little cloven-hoof stamp by carving the end of an eraser and covered the “paths” with a smattering of hoof prints. Between the paths/horns was a woman’s face with long white hair and a horn coming out of her forehead; an obvious reference to “The Last Unicorn,” but also to my own own identification with the story.
For added symbolism and a little more depth, I also crafted two small anatomical hearts, alluding to the “Two Hearts” story Peter wrote as a novella sequel to”The Last Unicorn.” Though you could never accuse “The Last Unicorn” of being shallow, “Two Hearts” adds such richness and depth to it that I feel it’s really just a continuation of the same story and not two separate ones.

Stamp, hearts, unicorn girl and hoof prints.
After the sculpting and baking came many coats of paint.

Painted pieces, along with a key I ended up not using for this photo (but which will be used eventually).
The keyhole and clay pieces were glued to the book cover and that prop, at least, was done!
At some point during the three weeks I was making all this, I pictured Peter with two ladies in waiting. At first, I dismissed the idea since I already had more than enough work to do, but, to my annoyance, once I pictured it that way, I knew it would be lacking without them. Damn. I sighed and added two more costumes to my to-do list while I emailed frequent models Dedeker, Aly and Katie to see if they were available. Unfortunately, Aly’s work schedule prevented her from joining us, but I was glad to have Katie and Dedeker along!
Turning my attention back to Peter’s robes, I used more of the corrugated cardboard t make wide cuffs. I’d found some beautifully-dyed, crinkly paper, a little thicker than tissue paper, but not by much. I had some in orange and some in purple, and I used the purple paper to edge the cuffs. The inside of the cuffs was lined with an untold amount of tissue paper, cut to various widths and run through a paper punch on one side to create a look like lace. I alternated white tissue paper with some beautiful, metallic silver tissue paper. The white tissue paper went through the punch well, but the silver paper would utterly clog the punch up after 3-4 presses, no matter how few or how many pieces I put through at a time. I even tried running it through at the same time as some nice, heavy cardstock, but the paper press just laughed at my attempts and clogged again. In the end, I used less of the silver paper than I had planned, but was left with more of my sanity intact, so I thought it was a fair trade.

Tissue papers, purple crinkle paper and the cuffs coming together.
I used the orange crinkle paper to make a lapel and more of it was used as a belt. I’d wanted to give the robes a feeling of embroidery, so I used some metallic gold paint to create swirling, organic, art nouveau-like designs on the pin-tucking.

Speaking of the belt, I wanted to have another Campbell reference, so I decided to use one of the most commonly recognized mythology symbols, the tree of life, on the buckle, quite literally bringing everything together. The backing was made out of clay and painted with several layers of gold, green and bronze paints. Some pretty green rafia made up the tree itself. The untwisted ends made very convincing leaves, and the twisted ends made wonderful roots. In the middle was another keyhole, continuing the motif.

Tree of life buckle above the paper belt.
Around this time, I started wondering how I would turn the robe ends into paper scrolls. I spent several nights not sleeping while I contemplated it, and eventually came up with the following. I sewed six long panels of muslin, each about two feet wide, and of varying lengths. The sides were sewn with wire in them, and I covered both sides of the panels with torn-up paper mache. The paper mache was made from countless pieces of tissue paper I had tea-dyed from a barely noticeable off-white to a dark cream. I used the lightest pieces at the top and let it gradually darken toward the bottom. I washed the panels with layers of thinned-out white glue (many, MANY thanks to my wonderful neighbor Donna for giving me a huge vat of glue!) until they were suitably stiff. Applying paper, painting and letting them dry between took the better part of a week. By the time they were done, it was nearly time to shoot and I didn’t know what I’d do if they didn’t work. I breathlessly tried rolling one of them up… and it stayed. It looked like paper! It looked like a scroll! I was so relieved!
I attached the panels to the end of the robe with some heavy-duty safety pins and hot glue, then added another layer of tea-dyed tissue paper, creating a gradual transition from a little below the belt of the robe with just a touch of paper, all the way to the bottom of the scrolls where it was thick paper.

I’d had a very clear vision of how I wanted the King’s crown to look, formed primarily from folded paper, dotted with keys and old quill nibs, which I found a whole bunch of on Ebay! While it wasn’t really hard to make, it did take a lot of trial and error. I am not much for origami, so I ended up just cutting out different shapes and experimenting with what produced the best results. I used a cream-colored cardstock for this, quite a relief to work with after the filmy, fragile tissue paper.

Trying out different objects as stencils.
The crown ended up being my favorite part of the whole costume. Geoff kindly took some BTS photos of me working on it. The medallion in the middle of it was something I found in the jewelry-making section of the craft store, and it added the perfect finishing touch with the purple gem in the middle of it.

Making the crown.
Around this time I realized I also needed to make a staff for the King. I had actually found such a good stick while I was hiking one day that I brought it home, not even having a plan for it, just knowing it would be good for something, eventually. I spray painted the stick bronze and gold, and used several thin washes of acrylic paint in green and gold tones on a glass Christmas tree ornament (which I have a large stock of for a future project). A very, very thin spritz with some dazzlingly-silver spray paint finished off the ornament, which I flipped upside down and anchored to the stick with a big old blob of hot glue. I had wanted to incorporate some more flowers into the costume anyway, and having a cluster of them under the ornament hid the transition beautifully. A key under the ornament and flowers finished it off!

Things get a little blurry as I think back on the days right before the shoot, and I honestly don’t remember the exact order of events anymore. But in the last couple days, I sewed some easy, empire-waisted gray chiffon dresses for the girls, with long, matching chiffon sashes. The dresses were decorated at the bustline with a fan-shaped piece of folded cardstock, tissue paper lace and flowers.
The big project for the girls, which bled over into the last of the King’s costume, were the paper birds. Those damn, damn paper birds. I printed untold sheets of cream and white cardstock with chains of birds (which I’d laid together in Photoshop) which then had to be cut out by hand, one by one. I was so sick of seeing the pile of papers waiting to be cut out by the time I was done. Days and days of cutting out birds. So, so many birds of different sizes, shapes, angles and colors.

Sheets of cardstock with birds cut out, a pile of cut birds, the king’s collar being assembled.
Obviously, many of the birds went to making the King’s bird-and-lace collar, but the majority ended up going to the two maiden’s headdresses and arm pieces. I loved the symbolism of the birds; they were taking off from Peter’s throat (where words take flight as well), they landed and traveled down the girls’ heads, as they take the stories and information in, then they make their way down the girls’ arms to their hands as they put the lessons they have learned to work. Just remembering it all gives me a headache, but I really loved how it turned out, even though it was nearly midnight the night before the shoot when I glued the last string of birds together, was finally done and went to bed.

Calantha helped whenever she could.
The morning of the shoot came after not nearly enough sleep, and I knew it was going to be a very long, grueling day, but I was very excited! Donna and John, my neighbors, had very kindly allowed me to use their dining room to shoot in, which gave me more room to move around. I started hanging curtains and getting the set constructed while I groggily drank my tea. Everyone helped me get the set ready, which I was very grateful for; I couldn’t have done it all on my own! Then my lights decided they didn’t feel like working, and I had to troubleshoot that as it got closer and closer to the time of the shoot… it was quite stressful, but it all came together just in time!

Thank you, Dedeker, for these adorable furbaby pics 🙂 They are a friendly lot!
Connor pulled up and dropped off Peter and his assistant Cat, who was helping them with the tour, and then I had a most surreal moment when Peter Beagle, one of my two very favorite writers, author of “The Last Unicorn,” a story that has profoundly influenced my life, was standing in my living room. He was just as warm and wonderful as all the other times I’d spoken to him, and he showed excellent taste in admiring Calantha and asking what kind of dog she is.

I caught Connor snuggling Maynard and made him stand there until I got a photo of it.
Peter told me he’d been instructed by Connor to be regal and majestic, which I agreed with, but also highlighted the King’s warmth and kindness. Peter said, “So I should be regal and majestic, yet warm and approachable?” I said yes, and he just said, “Got it,” and then he was all that, all at once. I helped him get into his costume (with the help of Katie, Dedeker and Cat, it was really a several-person task). I shot a few different setups; since this was not going to be a chance I’d have again, I wanted to cover all my bases. And everything fit everyone, and it all worked and came together beautifully, and I knew that the last weeks had been more than worth it. Katie very thoughtfully took some behind-the-scenes photos once her part in the shoot was over, which I’m so happy to have!

Thanks, Katie! 🙂

Mei Mei photobomb

Dedeker and Katie being beautiful.

Cat took this one for us; thanks, Cat!

My imagination hero and me.
After the shoot was over, we all helped Peter out of his costume and then I got to just chat with him and Cat and the girls until Connor got back from the errands he’d been running in preparation for the screening that night. It was my first time meeting Cat; she was utterly delightful and I was honored to have them lounging in my living room. Again I was overcome with the surreality of the situation. Connor got back shortly, and we parted ways for the time being. We’d all meet up again that night for the screening in Newport Beach. The shoot was successfully checked on my list!
I have to say, though all my shoots are done on a budget, this was the most expensive one yet. A lot of the expenses were things like the paper punch and a self-healing cutting mat (for all the damn birds) that I’ll be able to use again. All in all, I think I spent between $100-$150; an amount that felt absolutely extravagant to me! The total time I spent on this is really incalculable. A couple hundred hours on pre-production, but I spent a good six weeks editing it… it’s easy to say that I spent hundreds and hundreds more on post-production. There were many times I was cursing myself and why couldn’t I just take nice, pretty photos that edit up in an afternoon (not to mention don’t require hundreds of paper birds) but even in those moments I knew it would be worth it… and it was. 🙂
Katie was giving me a ride into Hollywood on her way home, so Geoff and I could meet up and travel in one car, so she helped me dismantle the set. We got some lunch since we were ravenous after such an exciting morning and she left me with Geoff while she went home for a bit before also heading down to Newport Beach.
I was exhausted, but also completely wound up. I attempted a nap in Geoff’s office, but it was pretty pointless. It was going to be a long night though, so I thought I’d better try anyway. With anxiety over the shoot done, I could now concentrate on being anxious about that evening. Connor had specifically asked me to come to the Newport Beach showing and bring my portfolio with me so that he could introduce me to Peter’s fans as one of their new featured artists who will be working with them. Gulp.

Connor under the marquee.
Geoff and I (and Katie, in her own car) battled the traffic from Los Angeles to Newport Beach and made it just in the nick of time. I really wasn’t sure what “introducing” me meant, so I had lots of possible meanings to be worried about. I was heartened when I got to the theater and was greeted as long-lost friends by Connor and Cat (Peter was somewhere else) and then entered the theater to find a bunch of my family there, which I was not expecting! It was so sweet of them all to come out and support me.

There was a great Q&A session before the movie started. There were raffles, giveaways, and the mayor of Newport Beach showed up to present Peter with a plaque. It was really quite an event; I would heartily recommend it, of course to any fan, but just to anyone in general 🙂

The mayor giving Peter his plaque; thanks to my grandmother for taking this photo!
Just before the show started, Connor had some of the vendors who had come with their Unicorn wares stand up and pointed them out, and at the very end of all that, he had me stand up and introduced me to everyone, saying I’d be there after the show with my art. Whew. One hurdle down.
Then we all got to watch the movie itself in a theater, which no fans my age and younger have ever been able to do. It was pretty amazing. I cried, and not just because of what an emotional day I was having. Seriously, if you get the chance to see it, GO.
After the movie, Peter was around to sign books, take photos with people and talk to them like they’re actual human beings and not just cattle being herded through a chute. Cat and Connor set me up behind one of the tables where the wares were spread out, and I set out my portfolio and my cards. Geoff and Katie both really stepped up and stayed the entire night with me. It was so good having them both there with me since I’m so intensely uncomfortable a) in crowds, b) around strangers, and c) having attention drawn to me and people looking at me. Hopefully this is something I will get more used to. It was great having the two of them there to distract me and make me feel less alone.

Wearing Geoff’s jacket over my pretty dress – it got quite cold!
Peter was true to his word and stayed until every single fan who wanted to had a chance to say hello and have their book/DVD/whatever signed, then all the theater workers still there got their turn. I’d told my mom I would have him sign a book for her (“The Rhinoceros Who Quoted Nietzsche And Other Odd Acquaintances,” which contains “Professor Gottesman and the Indian Rhinoceros,” the favorite short story of my mom’s, mine, Cat’s and Peter’s) and Katie and I wanted our own photos with him to cap the day off right.

Getting mom’s book signed.

Katie, Peter and me!
And then it was all over! Months of mental planning, weeks of physical planning, all the crunching and sleepless nights and hard work… it was done. I was relieved and disappointed, and also knew that it was going to be one of the highlights of my entire career, no matter what else happens.
We didn’t leave Newport Beach until 1:30am, and it was closer to 3 by the time I got home and went to bed. Luckily I was so exhausted it overcame my nerves and I didn’t have too much trouble getting to sleep. I knew the next day was going to be ugly, and it was. You can’t throw that much work and lack of sleep at ME. Not to mention the very long, emotional day it had been and how late I’d been up. ME doesn’t let you get away with that kind of shit. I planned on feeling pretty terrible, and I did. But it was underscored by a feeling of deep satisfaction, and even more, an overwhelming sense of gratitude for everything that had happened. I was a bit emotionally fragile by then, and I burst into tears more than once that day, just out of sheer joy and thankfulness.
I am so grateful that I get to partner with Conlan and Peter. I am so thankful they not only agreed to let me do my photo, but were enthusiastic about it. I am blown away by what amazing people everyone at Conlan, my friends, models, family and husband are. They have all been so immensely supportive of me and my art and my journey…especially Geoff as I ignored him night after night in my struggle to complete everything. I am very lucky to have wonderful neighbors who will let me conduct an entire photo shoot in their home at the drop of a hat, Everyone who reads this, who emails me, who comments on photos, who encourages me to create, thank you all.
But most of all, thank you to Peter. Not just for creating the measuring stick by which all other fantasy will always be compared. Not only for ripping our hearts out with his words, and returning them back to us more whole and healed. And not just for being willing to play the King, but for being the King. Peter simply is all those qualities that make me love the King so much. And I got to capture it forever in two photos in my favorite, most meaningful series. That is unbelievably wonderful to me. Thank you for all of it.
And with that, I present to you the DreamWorld King. Detail shots are below each main image. Click on them to see them larger!

Beloved Of The Crown

Beloved Of The Crown – detail

Beloved Of The Crown – detail

Beloved Of The Crown – detail

Beloved Of The Crown – detail

Beloved Of The Crown – detail

Beloved Of The Crown – detail

Beloved Of The Crown – detail

Beloved Of The Crown – detail

Beloved Of The Crown – detail

Beloved Of The Crown – detail

Beloved Of The Crown – detail

Beloved Of The Crown – detail

Beloved Of The Crown – detail

Beloved Of The Crown – detail

Beloved Of The Crown – detail

Aerie

Aerie – detail

Aerie – detail

Aerie – detail

Aerie – detail

A very quick, thankful, somewhat tear-stained selfie the day after the shoot, wearing my beautiful horn from Firefly Path, which is going to be my every day wear now. Click here to visit their Facebook page to get your own horn!
Thank you to every single person who helped make this day happen. I will never forget it. 🙂
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Shades Of Sleep: Invisible Illness Day
Posted in Uncategorized, tagged #GoBlue4ME, above, adobe, adult depression., advocate, androgyny pallet, angel, antidepressant, anxiety, art, art series, art therapy, artist, auto immune, awareness, beauty, beauty killer pallet, bed, bed bound, ben nye, BH cosmetics, blue, blue hair, blue lipstick, blue makeup, blue wig, blur, blurry, blush, braid, brain fog, bunny, cathartic, Celiac, CFS, challenge, chronic, Chronic Fatigue, chronic illness, chronic pain, cognitive dysfunction, collaboration, colored eyebrows, colorful, conceptual, condition, contour, cream, Crohn's Disease, cruelty free makeup, D810, debilitating, depression, Deviant Cosmetics, disability, disabling, disease, Disequilibrium, dizzy, dreamworld, dreamy, editorial, emotional, enchanted sleep, ethereal, exhausted, exhaustion, eyeshadow, faint, fatigue, fibro, fibromyalgia, fine art, fog, Ghost Violet, girl, glitter, grav3yardgirl, graveyard girl, health, hidden disabilities, high fashion, hopeless, house bound, human guinea pig, illness, insomnia, invisible disability, Invisible Illness, jeffree star, lace, lavender, lensbaby effect, lilac, lipstick, los angeles, magic, makeup, makeup artist, makeup challenge, makeup collab, matte, may 12, ME, ME/CFS, medical, medication, mental state, metaphor, mineral makeup, MUA, myalgic encephalomyelitis, neuro immune, neurological, nikkie tutorials, nikkietutorials, nikon, Nyx, only blue, pain, pallet, personal, photo series, photographer, photography, photoshop, physical, pillow, portrayal, powerful, purple, raise, raising, robe, sarah allegra, self portrait, self portrait artist, self taught, shadows, shot, sick, sickness, sleeping beauty, social commentary, social stigma, spin, spoonie, spoons, stigma, suffer, sufferer, swamp queen palette, teal, therapy, tired, vegan makeup, victim, violet, wig, woman, youtube, youtuber on May 10, 2017| Leave a Comment »
Sometimes I get a little daunted when May 12th rolls around each year, wondering what new I can say about the subject. If you didn’t know, May 12th is Invisible Illness Day; a day to bring attention and awareness to illnesses and diseases which don’t manifest obvious outward symptoms for the world to see. If someone has the measles or is in a wheelchair, you can hopefully tell that just by looking at them. Diseases like fibromyalgia*, Chronic Fatigue Syndrome*, Crohn’s Disease, multiple sclerosis, mental health problems, Complex Regional Pain Syndrome7, Celiac Disease, lupus, rheumatoid arthritis, Lyme disease and the one I have, myalgic encephalomyelitis* (ME for short) are considered invisible illnesses. This is by no means a comprehensive list, just a few examples.
According to Wikipedia and the 2002 US Census Bureau, 96% of chronic illnesses are invisible. This adds in an enormous extra challenge in obtaining proper medical care and treatment as well as being misunderstood by the population in general. If people don’t know that there are quiet, private, hellish wars being fought every day by millions of people all over the world, how can we ever expect our treatment to improve, let alone find cures?
That’s why May 12th is so important. We, the sick, need people to understand, to care, to help us advocate when our treacherous bodies won’t allow us to. Awareness is the critical first step in any change happening.
Why is it so important that we treat ME? What makes our disease so special?
It can be fatal. People die from this. If not from the disease ravaging our bodies for years and decades, then it often comes by our own hands as we can no longer endure the daily torment.
No one should have to live like this. As someone who has what’s considered only a “moderate” case of ME, I can tell you it’s a living hell. Pain is nearly constant, sometimes to the point where I’m in tears and desperately wishing to die. It takes away the plans you had for a normal, fulfilling life. Careers, hobbies and passions are taken from you. You either simply cannot expend the energy on anything non-essential, you lack the basic funds to sustain most pursuits because most of us can’t work, or your brain is compromised by what we call “brain fog” and you’re unable to focus on and accomplish anything. (More on brain fog later.)
We deserve to live happy, fulfilling lives, just like everyone else. When you’re constantly in pain, always exhausted and unable to think clearly, this doesn’t leave much room for whatever kind of life you wanted for yourself. And when I say exhausted, I don’t mean that we’re tired because we didn’t sleep well the night before. On a good day for me, it’s like how other people when they have the flu. A constant, crushing weight that makes the slightest exertion a Herculean effort. On bad days all I can do is lay in bed and drag myself to the bathroom periodically. Sometimes even feeding myself is a challenge. I might have to choose between feeding my animals or myself, because I don’t have the energy for both. And of course the animals always win; they’re my responsibility.
I am mostly house-bound and I require help with the sort of tasks I used to take for granted. Forgot something at the store? No problem, just go back tomorrow! Nope, not with ME. Any time I take a trip outside my home, I have to plan at least one full day of recovering at home from it. If it’s something late at night, very noisy and extra stimulating, plan on 2-3 days at least. (But frankly, late night, noisy, stimulating activities happen EXTREMELY rarely because of the damage they cause later.) When I do gather my strength to photograph models, that is my exertion for the entire week at least.
ME is extremely isolating. You can’t just go hang out with friends. You can rarely make it to family functions. Last year, I had to miss a surprise party thrown for my own mother, something which still upsets me today. I was just too exhausted to go, and I knew that if I REALLY pushed myself and forced myself to go, I would pay for it for a very long time.
ME is vengeful god. If you violate any of its insane decrees, you WILL be punished. Probably for a long time; sometimes forever. There have been cases where someone with ME did just a little too much one day, they spent the next day in bed… and then they were never able to leave it. At the same time though, if you try and do as little as possible, your energy supply will shrink and you’ll be worse off too. Damned if you do, damned if you don’t.
Right now ME received approximately 5 million dollars a year in funding from the US government. To put that in perspective, that’s about the same amount given to researching hayfever. Male pattern baldness gets at least four times as much. HIV/AIDS, which is comparable in both frequency in the population and severity of illness, gets about 600 times that amount. I’m not saying that HIV/AIDS patients shouldn’t receive that much; I think they should! What I’m saying is that ME needs to be recognized at all levels of society and government as the deadly, hellish disease that it is and get proper funding as well.
This year I decided to do something that was a big stretch for me physically. I planned a set of self portraits (all shot at the same time) with a rather complicated makeup look for my Enchanted Sleep series on living with ME. Doing that much makeup on myself normally would have been enough exertion for one day for me, but that plus shooting the images, even with Geoff’s generous help, put me in bed for days afterward with migraines pounding my head. But I’m not sorry. It was worth it.
Oh yes, brain fog. (Which I’ve got a bit of as I’m writing this.) It’s like when you have a fever and can’t concentrate or think clearly. Sometimes it reaches new heights where people suddenly can’t spell, remember their names or understand their native language. Most days it’s more like mentally wading through a bog, at least for me. I decided I wanted to portray this visually in the images I created since it’s such an annoyance at best and terrifying at its worst. I think it will be obvious how I incorporated that element into the images.
I have the video I took of me applying the makeup as well as the finished photos to show you, but I want to issue a challenge as well! I want you: you, who are reading this right now, to #GoBlue4ME! Why blue? Because that’s our disease’s awareness ribbon color. What does “going blue” mean? There are any number of things you could do to go blue. I created a couple images that you could use as your profile photos for May 12th, or even this whole week (or more!). You are more than welcome to download them and use them however you’d like! You could dress all in blue and post a photo of yourself with the #GoBlue4ME hashtag on any of your social media accounts. You could get a bunch of blue balloons, take a photo of them and use the hashtag on them too; anything blue works!
For makeup artists, I’m issuing a special challenge. As you’ll see in my video applying my makeup, I used ONLY blue shades for this entire look. Foundation, concealer, eyeshadows, blush, mascara, EVERYTHING. I challenge you all to do the same and post your looks using the #GoBlue4ME hashtag! If you’re on YouTube and create makeup tutorial videos, this would be perfect for you. There are so many fun makeup challenges going around YouTube, Instagram and other social media sites; let’s make this the next big trend! You’ll not only be stretching yourself, you’ll be contributing to a wonderful cause and helping us raise awareness for the whole world!
I did allow myself to use shades of teal, green and purple in my look because they’re offshoots of blue and I really thought it would make for a better overall look, so feel free to do the same. And you don’t have to make the blue tie into your foundation color as well, but bonus points to you if you do. 🙂 Let’s have some fun, create gorgeous looks and help a community in need of a lot of support by coming together!
Ready to see the video and my images? Here you go! I’ll be releasing the images individually over the course of the week leading up to May 12th, but you can always find them all here.
And please, pass these around! Share the links, video and images with anyone and everyone! We have to make a lot of noise to get the change we so desperately need. You have my full permission to share far and wide!
And please, if you take up the #GoBlue4ME challenge, let me know! Of course, I can search the hashtag and see what you guys have been up to, but I’m very excited to see what you come up with!
One last note, your going blue does NOT need to happen on or before May 12th. Keep doing it as long as you’d like to! The longer we can keep the word spreading, the better.
Thank you to absolutely everyone who has and will participate in this! You are helping so many more people than you know. I thank you from the deepest wells of my heart.
Download these images and make them your profile photos for a day!
Shades of Sleep, © Sarah Allegra. A self portrait about brain fog and living with myalgic encephalomyelitis.
Shades of Dreams, © Sarah Allegra. A self portrait about brain fog and living with myalgic encephalomyelitis.
Shades of Blur, © Sarah Allegra. A self portrait about brain fog and living with myalgic encephalomyelitis.
*[There are various theories and arguments about weather ME, CFS and fibromyalgia are all the same disease or separate. You’ll find as many different opinions as there are sufferers. It is my personal belief that they’re probably all the same thing, or at least all very closely related. Some people are extremely militant about using the “correct” name; I find it more important to help people understand by using the name they’re most familiar with. I tend to use them all interchangeably depending on the situation and who I’m talking to, but if I had my druthers, I’d simply call it ME and be done with it.]
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