Well, it’s been a little while, hasn’t it? A big part of the reason I’ve been so silent recently has been due to that bastard ME doing its usual bastardy things, just more of them and more frequently. Sigh. I won’t recount each and every thing, since not only would that be boring for you, but it would also take far too many spoons for me to type up. So let’s just leave it at I was being held hostage by ME.
Ok, I will actually tell you about one thing it’s been doing because it’s new and super annoying. Keep in mind that I’ve lived through many winters by now, and this has never happened before. Usually, summer in Los Angeles just about kills me each year, but the winter provides a much-needed break from the oppressive heat. However, this winter I’ve been experiencing something very strange and it’s difficult to even put it into words. It’s like my body is having a lot of trouble adjusting to temperature changes. Say I go to sleep at night (as I usually do) and it gets kinda cold overnight. I actually like things getting cold; it means it’s not hot! But then when I wake up in the morning, the air is cold, the house is cold, so I bundle up and turn the heat on. But then as I’m bundled up, I start to sweat, as if I’ve overdone it and now I’m too hot, only I still feel cold. Then I’ll start sweating more, which does its job and starts cooling me off, so I feel even colder, so I pile on more clothes and heat, then I sweat more, and I get colder… and the cycle continues until I’m a tearful puddle of both ice and fire, shivering in front of the radiator, stripped down of as many clothes as I can bear, waiting painfully for my body to just figure it out. Which might take an hour or two for it to do, and by then I’ve used up more than all my spoons for the day and it’s barely breakfast time.
It seems to be more of an issue when I’m stressed (thank you, Geoff, for pointing this out!) so staying calm helps, but you all know how easy it is to simply stay completely peaceful every single second of the day. If we don’t let it get SO cold at night, that also seems to help, and if I force myself to warm up and cool down more slowly, those things help too. But it’s just one more obnoxious way the ME toys with me and makes life more difficult. ME, you’re a sadistic bitch.
Some time soon I will also tell you about FINALLY having another round of nerve-blocking injections after months and months of fighting with my insurance company over them and the recent developments in Calantha’s growth removals, but I’m not ready to get into any of that right now. So, on with the show!
This is the time of the year when I usually remind you guys of all the things I sell which would make excellent holiday gifts for whomever you have on your list, so I’ll keep to that tradition!
Of course, there are my fine art prints, available through my Etsy shop. It’s not at all cost- or time-efficient to list every single image I have available in every size, so if there’s something you’d like and you don’t see it listed, just email me!
Red Bubble is also my printer for my collectable yearly calendars! You can get your 2017 calendar right here 🙂 These are some of my favorite things to produce, as well as some of my most popular items. They’re practical and also give you an inexpensive way to have 12 beautiful images to display on your wall throughout the year; a great value!
I’d also like to mention that I’m really happy with the quality of what Red Bubble makes. I’ve bought numerous items from them over the years, for myself and others, and I’m always very pleased with how they look and function!
Then there’s my self-discovery-through-photograhy-online-course Introspective: A Photographic Quest. It’s still almost 50% off its normal price because I haven’t had time to figure out another hosting option for it yet (Udemy recently decided to cap all its classes at a maximum of $40 per class, regardless of the original cost). Take advantage of that savings while you can! This isn’t a class so much about camera functions, f-stops, shutter speeds, etc (although I provide links which explain those things to those who want to learn). This is truly about exploring who you are as a person and portraying that through art.
The eight-week course gives you weekly prompts of things to photograph; it’s more like visual journaling than simply taking photos. You can share the images if you want or keep them all to yourself, the choice is yours! I built the class based on my experience with the incredible healing power of art and self portraits when I first picked up a camera; this class is completely unique and would make a wonderful gift for anyone who enjoys art and/or self reflection!
And something new this year; I’ve also selling high-quality skin serum through my other Etsy shop! This is a skin serum I developed while searching for the perfect serum for my own face. I couldn’t find what I wanted anywhere, so I took matters into my own hands and made my own blend of oils! Once I saw the wonderful results it gave me, I started giving it to friends for them to test and they also reported excellent results. After many glowing reviews from friends and friends-of-friends, I decided to start offering it to everyone!
My serum is blended with high-quality, natural ingredients (no fragrances or fillers). It’s 100 % vegan and cruelty-free and it is safe for all types of skin. Each bottle is hand-made in small batches and infused with eternally loving unicorn energies!
Right now I’m offering two different versions, one for your face and one for your hands and nails, but the base of both blends are the same. They contain rosehip seed oil (high in fatty acids, vitamins A and C, it helps to regenerate skin and stimulates cellular membrane and tissue regeneration), argan oil (an extremely healing oil overflowing with vitamins A and E and anti-oxidants, along with omega-6 fatty acids and linolec acid which helps ease inflammation while deeply moisturizing the skin) and vegan squalene oil (one of the most effective and powerful moisturizing ingredients currently known! Because it mimics the body’s own natural moisturizers, it can penetrate the skin well and is absorbed quickly.) And you also have the option of adding vitamin C serum to your oil blend (reduces signs of aging and is especially wonderful for eliminating sun spots or other skin discolorations. This vitamin C serum has an infusion of enriched organic aloe and jojoba oils to provide additional healing and hydration for your skin. These unleash powerful antioxidants while preventing the formation of free radicals which contribute to signs of aging.)
It’s been quite busy in my life since I last posted! It seems that’s always the way though, isn’t it? Part of what I’ve been so busy working on is what I’d like to show you in this post: three whole new product lines!
Well, to be strictly honest, one is brand new and the other has been around for a bit but I’m just getting around to blogging about it. I’ll start with the one I’m most excited about and I think you guys will be excited about too!
I have long been on the quest for the perfect skin serum; something completely natural, vegan, with ingredients which not only help my skin in the short term, which prevents premature signs of aging, but is also extremely gentle, healing and will only make your skin healthier and healthier the longer you use it! I’d narrowed in on several key oils that I knew my skin responded to well so I decided to create my own custom blend! And, as it turns out, the oils are all incredibly good for your hair, nails; basically every single part of your body!
In addition to all that, you also have the option of having vitamin C serum added to your oil blend! Vitamin C acts something like a bouncer for your skin; it keeps all the bad stuff out. Anything that might try to sneak it, it finds and throws it out on its ass! I have not been able to find reliable information on what vitamin C serum might do for your hair; until I do, I can’t recommend its use in hair, but it’s fabulous for your skin!
My exact blend is proprietary, but I can tell you that my blend contains vegan squalene oil, argan oil and rosehip seed oil (and vitamin C serum if you choose). I won’t bog this post down even more highlighting exactly what INCREDIBLE things each of these oils do, but I’ll give you a brief highlight! My serum:
Is all natural, vegan, completely cruelty-free, fragrance-free and pure, with no fillers.
Is extremely gentle, suitable for all skin types and (despite it being an oil) actually fights acne!
Fights virtually ALL signs of aging – lines, crows feet, sun damage and stimulates cellular membrane and tissue regeneration.
Heals scars and stretch marks, dark circles, under-eye bags and acne.
Is extremely moisturizing, penetrates deeply, yet absorbs quickly and feels light, not heavy.
Is incredibly good for your hair and scalp! It can be used as a flyaway-tamer, added to your conditioner or styling product, or a few drops can be used on their own for a light hold (I love using it this way myself).
Comes in three sizes so you can try a little before you stock up.
In addition, to make it really my kind of serum, each and every bottle is infused with the divine, healing energy of the angels and Unicorns. Every time you apply your serum, you are getting a little dose of unconditionally-loving, magical, ethereal angelic and Unicorn energy absorbed straight into your being! Geoff even asks me to apply it to him every night! I utterly adore it, I’ve gotten wonderful feedback from it and I think you’ll love it too. 🙂
I think you all know that I’m a big fan of the site Fiverr! It’s a wonderful site where people sell products (mostly digital) and services of ALL kinds – all starting at, you guessed it, $5. What you probably don’t know is that I have several of my own gigs on Fiverr!
Do you like the textures I use in my images? I sell my own grunge-style textures in this gig. For the base order, you get a total of 10 textures, perfect for adding atmosphere and mood to any image!
One secret trick of mine is using layers of light textures! I use them in almost every single image I create these days. They can be a bold or subtle wash of color, which helps lend a dreamy, ethereal, beautiful look to your photos! I have a LOT of these textures which I have all shot myself, so while the base gig starts at $5, if you want more, you can get up to 25 at a time!
sarahallegra.com
sarahallegra.com
sarahallegra.com
I’ve been a Reiki practitioner for a number of years now. It’s a really beautiful and powerful energy healing modality which does not even require the person I’m working on to be in the same room as me. Pure, healing energy knows no boundaries of time and space! I’ve had wonderful results from this as you can see by the reviews, and I can also attest to having had incredible feedback from people not on Fiverr! I offer Reiki sessions for people (yourself, a friend, a child, anyone whose permission I have to send energy to), or I can send it to the animal (wild or domestic) of your choosing. Animals respond very well to energy healing!
Now that I am an officially certified Unicorn Healing™ Practitioner, I can also offer Unicorn healings, again for yourself (or any person who has given permission) or animals, wild or domestic. Unicorn healing is like nothing else I’ve worked with or done before. It has a very different feel than Reiki energy; neither is better than the other, they’re just different. The best way to describe it is that Reiki feels more earthy and grounded, while Unicorn energy feels much more celestial and divine. I have been COMPLETELY blown away by the incredible changes I’ve seen in myself and others, often after just one treatment!
Both kinds of energy healing work to restore balance and vitality to every part of you; mind, body, emotion and soul. By its own nature, it can never harm and will always work for the recipients’ highest good. I highly, highly recommend trying one of them, it can be an absolutely life-changing experience!
Last for my Fiverr gigs, I now have an oracle card reading gig! I tested this with both friends and strangers before I decided to start charging, even just $5, to make sure it would be worth peoples’ money. Boy, was that an overwhelming success! I really enjoy doing oracle card readings, especially with the beautiful deck my sweet friend Andrea gave me! Got a question? It doesn’t matter what kind of question it is, the cards will help reveal the answer to you!
Lastly, this is not a new product, but it has a whole new price! My online self-discovery-through-photography course Introspective: An Online Quest is currently hosted on Udemy.com. Udemy recently changed its pricing structure and capped all its classes at $40, which is WELL below what Introspective is worth. However, until I figure out a better way to deal with a host for the class, I’m happy to let people get in on this deal! Prior to this, Introspective was priced at $75 for the entire 8-week course, so enjoy getting almost 50% off until I have time to deal with this! 🙂
Here’s a brief description of what Introspective is all about: Introspective is an eight-week, on-line course in which you will use your camera to explore your inner self. Each week, you will receive assignments challenging you to delve into your secrets, fears and joys. This is not a class about camera basics such as f-stops, apertures and shutter speeds…although links to helpful technical articles will be provided. This class is about digging deep into your core and capturing what you find there in photographs.
So there you guys go! Enjoy, and please feel free to leave feedback on any of these!
Here we are at May 12th again. Another Invisible Illness Day come to bring awareness to all the illnesses and diseases which are impolite enough to leave their sufferers still appearing to be well. Of course, anyone more than casually acquainted with someone who has fibromyalgia, myalgic encephalomyelitis, chronic fatigue syndrome, complex regional pain disorder, multiple sclerosis, rheumatoid arthritis, Crohn’s disease, Lyme, lupus and many, many more illnesses can attest to how debilitating they can be. The facade of health they leave intact feels like salt in the wound; a confusion for those untouched by their cruel hand, a silent undermining force with us at every doctor’s appointment, a declaration that we are lying or greatly exaggerating our illness.
What else can I say about ME? About all the other forgotten, ignored diseases swept under the rug of modern medicine? Illnesses which embarrass our doctors with their constant reminder that we remain unhealed. Sicknesses with confusing, confounding symptoms which can morph and change like the whim of a butterfly’s flight. Maddening maladies which suck away our vitality, our joys, our passions, our lives as completely as any vampire.
I’ve written about ME extensively as it’s been an enormous part of my life for the last eight years. How I have not had a single day since late May of 2008 that was free of pain or its constant, overwhelming exhaustion. How it has progressively gotten worse each year. How the government would like to pretend we invisibly ill don’t exist. How grotesquely underfunded our research is, giving us the same amount of money for research as hayfever gets and less than 1/4 of what male pattern baldness receives. You have heard me spout the facts and statistics. You’ve heard me talk about my personal story and fight with ME. What else can I say?
I can say this: I am not beaten. I have not given up.
I am determined to get better. I am committing myself to be well, even if I have it about through sheer mental will. I will not give in to ME’s gloomy, hopeless future forecast of progressively worsening every year. I am not accepting a future of the living death that is ME.
I don’t know exactly how I will get better, but I am going to. As a sign of my determination, I changed my blog’s tagline for the first time since I started this blog years ago. “Art, photography, life and why I always feel like shit,” felt perfectly appropriate at the time. “Art, photography, life and how those are really all the same thing,” is much more appropriate now. My identity is not Sarah-who-has-ME. I am just Sarah.
As I wrote about in my last entry, my life has been pleasantly consumed recently by my spirituality. I have strongly felt how focusing on fighting ME has been feeding it. So now, I will ignore it as much as possible. I do not mean that I will forget my body’s current limits, or not honor them. Listening to my body and what it’s able to do is vital for my current and future wellbeing. But I’ve realized that I can live within the confines of my case of ME while still not letting it reign in every area of my life, and that feel incredibly freeing. This is the path I will pursue.
This also does not mean that I will not advocate for ME sufferers. I still feel very strongly that the only way we will bring about change is by demanding it. And we can only demand it if we know that it exists in the first place. But I can also advocate without allowing ME to rule every part of my soul.
As May 12th approached, I wanted to create a new image for my Enchanted Sleep series, which is all about living with ME. I asked Katie Johnson, frequent model and collaborator as well as dear friend, if she would help me bring some concepts to life and she gladly agreed to help. Through a variety of factors, I wasn’t able to shoot these images until very recently, which meant I had a very short window to edit one up and release it for Invisible Illness Day, but I got it done! Ideally, I would be releasing the whole short series we shot, but I am content with having just one to show you and help illustrate life with ME. With that, please let me present my latest image to you, Living With The Tombstones.
I probably don’t have to explain the symbolism behind shooting this image in a graveyard. ME (and many other invisible illnesses) truly can be a living, nightmarish death. Even if you’re not one of the unfortunate souls cursed with severe ME, where any touch, light or sound cannot be tolerated, you die every day to the dreams and hopes you had when you were healthy. You might discover new passions to pursue within ME’s confines, but do you ever truly forget what’s been taken from you? If you do, I am not there yet.
I took the name “invisible illness” and interpreted it quite literally, editing out any part of Katie’s body which showed outside her long, princess-like dress. And the mirrored mask felt like the perfect touch. When people look at us, they rarely see us; they see their projections of who we are. Often what they see says far more about them than us. Some will look at me and, because I can occasionally manage to put on clothes, have Geoff drive and go with him to the grocery store, refuse to believe there could be anything physically wrong with me. They don’t see the toll that those short, simple trips take on me. They don’t know that grocery shopping is my ENTIRE plan for that day, probably several days. How the lights and noise and bustle inside the stores give me migraines, panic attacks and leave me in bed for the rest of the weekend. They don’t see the weight of my illness on Geoff and my family. How if I see friends, they always have to come to me. I so often feel like a dead-weight wife, daughter and friend. The times I’m overwhelmed by the ME and can’t decide between crying and being too tired to cry. How many pills I take every day to try and make it to the next day and not be consumed by the constant pain I’m in. They just see a fairly normal-looking girl.
I can’t blame other people for not knowing that I’m sick. I don’t display the characteristic signals of someone who is unwell, so of course people assume I’m healthy. But we need to get to a place where I could tell a stranger that I have ME and they might know what I’m talking about. That if someone else said they have MS or Crohn’s or fibro, that stranger would have heard of those illnesses. That the stranger would have at least a basic idea of our struggle and the dire need for change, for research, for treatments, cures and basic respect.
We can get there. We will. One May 12th at a time.
Join in the #MillionsMissing protests in Washington DC and other locations through the world on May 25. You can participate even if you’re too unwell to join in person or if there isn’t a protest near you!
Start a discussion, link to articles, blogs, videos and/or artwork that discusses ME or other invisible illnesses that will help spread awareness. Add a #may12th hashtag to your posts!
Watch and share the video below which I made last year:
I’d like to thank everyone in my life, online and off, who has supported me during these trying past eight years. Especially Geoff, who I’d only been dating for a month when I became ill. Lesser men would have run from what he had to face, but he’s stuck with me, no matter how bad things get. And I’d also like to thank everyone for the extremely warm and receptive response you all had to my previous blog post. Your kind words and love and support are greatly appreciated, now and always! ❤
I have new images for you as well as some updates about my personal life! Since most of my personal life ends up coloring my images in some way or another, I suppose that makes everything relevant, right? 🙂
I recently had a shoot with a model who was new to me, the lovely Teri Wyble! Sadly for me, she does not live in Los Angeles, but she does travel here now and then and we’ve already made plans to do more shooting next time she’s in town. She was such a joy to work with; she’s not in modeling just to look pretty or puff up her ego, she’s interested in telling compelling stories. She has a natural grace and beauty which lend themselves perfectly to my kind of photography. On top of that, Teri is also just a really wonderful soul, full of love and kindness, and we share many of the same interests. It was a perfect collaboration!
I’m also going to be sharing a bit of my spiritual journey with you guys here. For anyone who’s curious, I am a lightworker, but I don’t define my spirituality much beyond that. Organized religion does not work for me, but I know many people who love their branch of it. If it’s a good fit for you, stick with it! If not, you’re still ok and you can still be a spiritual person.
I believe in an unconditionally-loving higher power, which I like to refer to as Source. “God” brings to mind all sorts of connotations which I personally find hindering. I believe that everyone and everything is made up of energy, as physics teaches us, and since energy cannot be destroyed, it’s most logical to me that life continues beyond death. I have no doubts about this. I have spoken to and had contact with those who have passed over… which would have been enough on its own to convince me of our eternal life, but I do feel science supports this idea as well.
Toward the beginning of the year, I experienced an EXTREMELY powerful guided meditation with a lovely woman named Mojo. If you’re interested in her services, you can find her page on Fiverr here! She currently doesn’t advertise her guided meditations, which she does live over the phone with you, but if you contact her, she can arrange it for you.
During this guided meditation, I actually got to meet and speak with my two main guardian angels. Prior to this, I had believed in angels in a vague sort of way, but despite how much I would have liked it, I never felt that I could successfully connect with any of them. I have also done other guided meditations which are supposed to introduce you to your angel without much success other than feeling more centered afterward, like with any meditation. My point is, the meditation with Mojo was very different. I could actually feel and sense my angels; I could hear and even see them in my mind. I know now that they have always been with me every second of my life, and they will for the rest of my time on earth. I am never alone and they are a great comfort to me.
This new connection with my angels led me to buy a handful of books about angels; I wanted to learn EVERYTHING that I POSSIBLY could about them! As I’m sure you all know, my passions are all-consuming. When a new one ignites, my life becomes focused on that and only that until I feel I have a grasp on it. For anyone else interested in learning more about angels, I recommend Angels In My Hair by Lorna Byrne, and The Angel Therapy Handbook by Doreen Viture. Both are fascinating, well-written and impart excellent knowledge. Angels In My Hair is more of a memoir while the Angel Therapy Handbook is more of a textbook. I feel they compliment each other well.
I mentioned being a lightworker a little bit ago. What I mean by that is that I am certified at level 2 in Reiki. I do energy work, sending positive energy to people, animals, places, situations, objects, whatever you want. It’s healing and can never be used to harm. I also began meditating much more regularly this year. In the past, when I’d try meditating, I would always enjoy the effects of it, but I had a lot of trouble making myself do it with any consistency. I’m not sure what changed, but for some reason, this year I was able to push past that. Once I got over that initial block, I discovered that I LOVE meditating! It’s incredibly healing and healthy for your body, mind and soul. I found it was a bit like starting to work out. At first, you don’t really want to do it, but after a little while of making yourself stick with it, you like it and actually begin craving it. I now have meditation (guided and not) as a regular part of my life and I’d highly recommend it to absolutely everyone! One thing I discovered are the millions of meditation tracks on YouTube; literally something for absolutely everyone and every interest. There are also long tracks of nature sounds and/or music, some with binaural beats in them, some lasting up to eight hours, so you could listen to them all night while you sleep. I’ve been learning a great deal about crystals as well from my dear friend Jessi who owns the shop Mineralism Crystals. I HIGHLY recommend her if you’re in the market for anything! Even if you don’t see something in her online shop, chances are, she has it. I’ve placed numerous orders with her and they always exceed my expectations! Also, she is a fellow spoonie, so your money goes to help support her as she’s unable to work a “regular” job; win-win!
As all these new revelations were opening up to me, meditation, angels, being able to “hear” animals more clearly when I contacted them energetically (for example, I was able to help one very special cat overcome his abandonment fears when he was newly adopted, something I was honored to have been a part of), Teri came along and we had our shoot. I knew that I wanted some of this deeper spirituality to be reflected in something we shot, but I wasn’t really sure how. However, I did know that I wanted to photograph Teri in a beautiful lace dress I had… that combined with feeling inspired by some images Geoff shot recently with a back-lit model that made me decide I would shoot an “angelic” look with the gauzy white fabric and light behind her. (Although really, just try and make her NOT look angelic; that would be a far more difficult job.)
As I suspected, Teri made the perfect angel. Sorting through the images later, I realized that I was creating a new race of DreamWorld beings. The Aethereans, as I called them, are DreamWorld’s angels. They live high in the mountains, away from the more populated areas so they can be focus on devoting themselves to spiritual studies. They are very wise from their decades of pursuing the truth in every facet of life, as well as skilled and compassionate healers. Many of the other DreamWorld inhabitants send their young to train with the Aethereans for several years, where they are taught empathy, love, plant and animal care, healing, sacred geometry and the mysteries of the universe. I thought that the Aethereans needed some kind of uniform or mark that visually informed everyone of who they are and the spiritual life they have chosen for themselves, so I decided they would all have a flower of life symbol on their foreheads. I wish I’d thought to actually apply this in real life to Teri, but this idea only came later. Thankfully, Photoshop made it possible to add it to all the images!
Teri did such a spectacular job modeling, she made it so very difficult to choose which images to work up! I ended up editing quite a few more photos than I typically would pick because I simply could not narrow my selections down any more. It took a bit longer to finish these because of the volume I had to work through, but also because of a couple other wonderful new journeys I was taking…
Through a very miraculous series of events, I discovered Calista Ascension. Calista is one of those very rare spiritual teachers who actually embodies and lives everything she preaches; I have met very few more accepting, genuinely loving and wise people in my life. She offers numerous classes which I was lusting after, but when I saw that she created her own Unicorn Healing System which I could take online from the comfort of my home, I was hooked. I had to take it. Immediately.
I’ll let Calista explain the course in her own words:
Unicorn Healing™ is a hands-on healing modality for empowerment and wellness, but also a development tool that can awaken your Souls’ gifts and purpose. It can be used as a stand-alone therapy or complemented with other energy practices.
Brought forward in 2009, direct from the Unicorn realm via Calista, it is a very sacred modality that can provide all that you are ready to receive.This is a course for those who are ready to step-up, break-through and arise in their POWER!
Just as you have a Guardian Angel that walks with you so to you have a Guardian Unicorn. Once regarded as the fabric of fairytales, Unicorns are very much real. They have walked with us since the times of Atlantis and are now returning to our awareness to help us awaken to love and the infinite potential we hold within.
As this is a distant learning course, you can set your own pace and progression. A commitment is required however as this course is deeply transformational – the more you put in, the more you will receive. The Unicorns are ever-present to those who wish to better themselves and assist Mother Earth to ascend with grace.
Yes. Unicorns. REAL Unicorns. As I mentioned earlier, I am well-versed with Reiki energy, which, I learned, is apparently an earth-based energy. The Unicorns however hail from another planet (bear with me here) so their energy is cosmically-based. (For those interested, Calista recorded an excellent podcast all about who and what the Unicorns are, where they come from, etc, with much more detail than I’m giving in this post, which you can listen to here.) I hadn’t expected their energies to feel particularly different from each other; I just hadn’t thought about it. You may believe that these Unicorns are simply a pretty fantasy I’m escaping to in my imagination (which I’ll freely admit is an escape I would likely pick!) but OH MY GOD – once you’ve felt their energy, there is NO mistaking them. They are every bit as real as we are, and their energy is incredibly powerful… yet also full of the most unconditional love I’ve ever experienced. It’s nearly impossible to describe how energy feels in words, but the ones that keep coming to mind when I think about my Unicorns are high, clear, clean, bright, powerful, silvery, shimmery, penetrating, deep, beautiful, wise, loving, celestial, ethereal, and immense. I love Reiki, but the Unicorns really kicked things up a huge notch for me.
As part of my studying, I went through an attunement with their energy, where I met my three guardian Unicorns, who all serve different roles, and who are all equally exquisitely beautiful. I spent 30 consecutive days meditating and communing with them every day in different ways so we could really get to know each other. And I also practiced doing healings with the Unicorn energy, both in person and across distance, much like you do with Reiki. The Unicorn healings I’ve done so far have been the most powerful I’ve yet witnessed in my life. Problems that have bothered people for very long times suddenly lose their sting, allowing the people to let go of them. Hurts are overcome, trauma is healed. They are truly miraculous. And my guides assure me that I will become physically healthy myself in time.
My guides… yes, I should mention the other guides too. Meeting the Unicorns as well as my angels has opened my mind up to the idea of there being more spiritual guides for us in the universe than I had previously realized. Currently, in addition to my guardian angels and Unicorns, I also have a dragon guide, a pegasus guide and a mermaid guide, although I have not worked with them nearly as long or as deeply as the Unicorns. I’ve also started to sense and sometimes communicate with the elementals all around me. The trees in my yard, for example, will remind me if the bird feeder has gotten low or the plants need watering. I’m becoming a MUCH better gardener with their help! 🙂
Then, right on the heels on my finishing up my Unicorn Healing course, I began taking Doreen Virtue’s Fairyologist course! This is more or less what it sounds like; you learn all about the various fairies that exist, what they’re about (the fairies are mostly concerned with environmental and animal issues, but certain groups emphasize different causes), how to communicate and work with them. At the end, you take a quiz and, assuming you pass, you become a certified Fairyologist. As I’m also in the process of having all my Unicorn work reviewed by Calista as we speak, I’m on the cusp of becoming both a certified Unicorn Healer and a certified Fairyologist… both are NOT things I expected that I’d be saying if you’d asked me at the beginning of this year!
I’m telling you guys about all this for several reasons. One, working with my guides and walking my spiritual journey is becoming an ever-more-present, ever-larger part of my life. I wanted to just lay it all out there in one go and not feel like I had to tiptoe around it on my own blog. Two, everything in my personal life effects my art. Case in point, the images I’m releasing today. I probably wouldn’t have even shot them if I hadn’t met my guardian angels, and I certainly wouldn’t have added the Flower of Life symbol to the Aethereans (who would not exist) without having learned more about sacred geometry in my studies. In my life, there is very little separation between the real world and my art. It’s all one big pot of stew where each ingredient enhances all the others.
And lastly, I’d like to invite all of you to explore your own spirituality. When you find what works for you, there is very, very little in life that is as rewarding! There are many charlatans both online and off, so you must be discerning in who you choose to listen to. A strong connection to your intuition and sense of truth will help you navigate the waters. Any of the people or authors I’ve mentioned in this post have gotten the thumb’s up from me if you’d like to start there!
I am an energy worker. I work with Unicorns and angels. I talk to animals, fairies and elementals. I am a creator. I collect crystals. I am an empath. I am a photographer. I am clairvoyant and clairsentient. I am a fulltime student of truth. I am a healer. I am a woman. I am an artist. I am Sarah. I am me. I don’t apologize for any of that. You go be you, and don’t apologize for any of it either. 🙂
First, let me quickly update those of you who are regular readers. You may remember my Preparing For Battle post where I talked about… well, preparing for the big battle I was about to face. I was sick with stress and worry about it; it was honestly one of THE hardest things I have ever had to do.
But guess what? I WON!!! I’m afraid I still can’t give many details about the nature of the fight, but this is a huge, wonderful victory for me and will help make my life a little bit easier. So thank you VERY much to each and every one of you who said a prayer for me, lit a candle, sent Reiki or good thoughts… they all melded together and produced one hell of a win for me!
Now, with that’s said, let me tell you about my calendars!
Sarah Allegra 2016 Calendar
These guys are always a favorite; they’re probably my single best-selling item. And with good reason! Red Bubble packs a ton of quality into these babies with thick paper, almost like a heavy cardstock or watercolor paper. The pages have a subtle sheen without being shiny. The daily squares are big enough to make notes in. I still have calendars (both my own and from other artists) from years ago which hold up beautifully, even after years of flipping through them to see the lovely pictures!
Sarah Allegra 2016 Calendar
This also brings something else up: getting this calendar is like buying 12 small prints of my work! Each year’s images are different, making each year a unique and collectible item. And if you want to keep the calendar after the year is over, like I do, to enjoy the images whenever you want to pull it out? That’s fine! Red Bubble does a great job at printing the images and making them look the way I want them too; this is a solid buy! You’ll get images which span across my series, from my DreamWorld, Enchanted Sleep, Eternal Storms to self portraits, which feature Katie Johnson, Dedeker Winston, Travis Weinand, Noemi Regalado as well as the beloved author of The Last Unicorn, Peter S. Beagle!
Also, while I was uploading a diptych of Travis for one month of the calendar, I noticed that it made a really awesome pattern for Red Bubble’s leggings. So get your Travis-printed leggings now! 😀
Travis Leggings
All of us independent artists and craftmakers REALLY appreciate your purchases, whether it’s for Small Business Saturday, Cyber Monday, regular holiday shopping, something for yourself, or any other reason you might have! Please keep shopping small in mind during this holiday season!
And don’t forget to check out my friend Jessi’s Etsy shop, The Hopeful Spoon, full of beautiful, hand-made earrings (and other jewelry pieces coming soon!) full of lovely semi-precious stones at very reasonable prices.
I’m so happy so many of you have joined in my print giveaway! There is still time for you to enter, which is free and easy to do! Scroll down below for details, but most of the ways you enter are simply by sharing/retweeting messages onto various social media outlets – all of which are now embedded in this post! Just head down to the very end and you’ll see all the different ways you can participate without even leaving this page!
If you missed my last post, let me summarize it for you. Today, May 12th is Invisible Illness Day; a day we dedicate to raising awareness about illnesses and diseases which can be deadly and have devastating consequences, yet show little to no outward sign. Every single person with any of these illnesses, such as fibromyalgia, Chronic Fatigue Syndrome, rheumatoid arthritis, Lyme disease, lupus, multiple sclerosis and Crohn’s Disease, (and, of course, myalgic encephalomyelitis, or ME, which I have*) has been told at least once, “But you don’t look sick.” As if that invalidates our decades of suffering. Oh, I’m sorry I didn’t meet your criteria of what a “chronically ill” person looks like; you’re right, I’m 100% fine! In fact, I’m going to go complete a decathlon, now that I know I’m healthy.
Ok, so clearly simply not appearing outwardly sick doesn’t mean we aren’t ill. In fact, most people who saw me on the street would probably assume I was a perfectly healthy girl; although one who doesn’t put a lot of effort into her appearance. The reality is that I am partially house-bound, I can only drive short distances on very good days, almost all “out of the house” errands have to be done on weekends when Geoff can drive and help me, I’m in constant pain and exhausted every single second of my life. My energy reserves are very low and I have nothing extra to spare on “getting pretty” before I go out. As long as I’m wearing actual clothes (you have no idea how many times I’ve almost left my house without key clothing items), that’s enough for me. Shove on a hat so I don’t have to address my naturally curly hair and I’m good!
While I never overly cared about what I looked like in public, I do find myself missing wearing pretty things. I put far, far more thought and effort into picking out my pajama outfits that my regular clothes outfits. I’ve accrued quite a collection of PJs at this point, so I can at least feel like those are cute and colorful.
While worrying about one’s physical appearance would seem pretty far down on the priority list of someone with a neurological disease with no cure, and it is for me most of the time, it’s a little more than that. It’s just one more tiny slice of normal life that chronic illness takes away from you; one more reason for you to resent it. I don’t actually want to wear the dresses getting dusty in my closet, I want the option to choose to wear them. That make seem like a small difference, but from this side, it feels big.
While I don’t feel like I can spare the energy for looking beautiful most of the time, beauty is still deeply important to me, and it’s important that I leave the world with more beauty in it than I found it. It’s like when you go camping with your dad; the camp site is going to be cleaner when you leave than when you got there (or at least, that’s how it was with me dad ;)). I’ve come to realize that beauty is a big part of why I’m so drawn to art and to create; it’s a very tangible way of leaving the world a little more beautiful. And in this case, it’s taking the hideous ugliness of disease and transmuting it into something lovely.
With that in mind, I want to introduce my latest image to you; the one I will be giving away a 10″ x 15″ print of on May 29th!
I spoke to you a bit in my last post about why this image is so special… and I’m going that a little bit again 🙂 For one thing, this is a DreamWorld and Enchanted Sleep crossover piece; the first image of mine which belongs equally to both worlds. It spoke to me on both levels, and when I was torn about which series to include it in, I finally decided I didn’t HAVE to choose and it could live in both. Because, while in some ways, DreamWorld is a bit of escapism and fantasy for me, it is not all sunshine and rainbows. Not many of its dark characters have been photographed yet, but they will be introduced over time. Even with their benevolent protectors, their King and Queen, the creatures in DreamWorld still have problems.
At the same time, it helps me to look at ME through the lens of myth and fantasy. Viewing it as a dragon to be slain, a mountain to climb, a thorn in my side to bear; they all help me live with the reality of ME a little more easily.
I have long felt a connection between the stories of Sleeping Beauty and my experience with ME. A poison, an enchanted sleep (giving birth to my photo series’ title), hope of an awakening under the right conditions… there is a great deal of overlap. With that said, let me show you the new image!
Now, this file ended up being a composite of… I don’t even know how many images. A LOT. To give you an idea of the huge scale of the piece, here it is with a normal, full-sized image from another shoot with Katie on top of it.
So, just roughly eyeballing it, I’d say this is, what, 5-6 times the size of an average image? And while my camera doesn’t produce the HUGEST files imaginable, this is still pretty darn big. It was such an enormous file, I had to wait until I’d upgraded my laptop before I could actually work on it. Any time I tried to edit it on my old laptop, it would crash my whole computer after about 10 minutes of work. With my new laptop, it only crashes every few days, and usually only crashes Photoshop, instead of my entire system. Much better 🙂 All said, this took almost two years from start to finish. I’d pick it up, do a little work, get overwhelmed and put it back down. Then I decided it had to be done in time for the giveaway, so that gave me the motivation to finish it up.
Katie really endured a lot for this shot, poor thing. The area I shot it in was a naturally ivy-covered area of my old yard… and unfortunately also FULL of spiders and spider webs.
I’d made a homemade spider repellent (nothing which would harm them, just something with tea tree oil to make the area less appealing to a few days) and sprayed it liberally around the shooting area in the days leading up to the shoot.
But despite it, it was a pretty intimidating place to ask any sane girl to lay down in, relax, close her eyes and pretend to be asleep. I promised Katie that I would watch for any spiders actually crawling on her and scoot them off. I promised no harm would come to her, and, bless her, she trusted me.
Now despite it being just covered in cobwebs and spiders, I ended up having to add all the cobwebs in Photoshop. I downloaded a special Photoshop bundle of brushes shaped like cobwebs, which got me started. It took a ton of manipulation of each little bunch to make it look like it way laying naturally over the different areas, adding light and shading to blend it in to the environment.
After I got Katie situated, I climbed up on a ladder and started shooting. But I quickly realized that the ladder wasn’t tall enough to get the framing I wanted, which led to shooting about a million individual frames which I pieced together in Photoshop, which is why it’s such a huge file. There were some challenges in making everything align since I wasn’t using a tripod, but it helped that Katie had trusted me so completely and was lying perfectly still.
I had also shot a purple smoke bomb pouring out of the bottle (separately from Katie, I didn’t think that would be good for her to breath) but then that ended up not really looking right either, leading to another element I had to create in Photoshop.
I always try to do as much work in camera as possible, but sometimes the real world just doesn’t accommodate you!
Katie’s bravery and willingness to do whatever it took to get “the shot” made me create this virtual plaque for her:
Thank you, Katie 🙂 This image would not exist without you. It’s one of my very favorite images and I’m SO happy we went through all the difficulties of making it, even though I wanted to tear my hair out at times!
Another thing about this image that’s special is that it will be the first to be printed on my new, museum-quality paper of choice: Hahnemuhle pearl paper. You really have to see it to believe it. It is a thick, luscious paper with a bit of texture to it, similar to watercolor paper. What pushed me over the edge into switching to this paper though, is the very subtle, pearlescent shimmer built into the paper. It is magic. And it compliments the ethereal nature of my work so well, it seemed we were made for each other.
And did I mention that this special new print is a $400 value?
Would you like to win this very special print for yourself? Instructions are below! If you already saw my first post, skip on to the info about how to enter, if not, please consider taking a moment to read it and see why I’m so passionate about promoting May 12th and my giveaway!
I would like to say that I spent a great deal of reflection on coming up with the idea of my bed being my kingdom, but it was more of a response to thinking, “Shit, I have this video… now I need a name for it…” But I think it holds true despite it’s spur-of-the-moment conception.
When you spend the vast majority of your time inside your house, it becomes your entire world. If, on a good day, I take Calantha for a walk around the block, I feel like a Viking setting off to explore new lands (but not planning on Blood Eagle-ing anyone). If my house is my world, my bedroom is my home, and my bed becomes my kingdom.
Though it is a queen-sized kingdom, it is a kingdom nonetheless. This is where I am most myself, most honest, most raw, most pure. I spend most of my time here, in my PJs, hair a mess and no makeup (because who’s going to see it, I don’t feel like putting it on, and I especially don’t feel like washing it off). This room is most set up for my comfort and is bent to my will. Why is there such a huge pile of stuff always on my nightstand, or next to my side of the bed? Because then I can reach it easily, no matter what state I’m in. Geoff’s side is spick and span, while mine is a crazy jungle, but that’s how it has to be. In this whole world of things which cause us pain and discomfort, we need there to be someplace that is designed for us. That is, usually, our beds. And in my bed, I rule.
Some people are surprised to learn I have a chronic illness, especially one which confines me to my house and bed so much, since I seem to produce a lot of art. It’s all the result of verycareful planning of everything. I keep my shoots very short and I plan several concepts I can shoot one right after the other while I have my model. My shoot is usually the only major thing I have planned for the week. Actually, it’s usually the only major thing I have planned that month. If we’re driving to a location, my model will usually drive us since I’m often feeling too tired. I try to bang out as many concepts as I possibly can, then I crash. Usually the next two or three days will be awful, and I will pay dearly for my shoot. But after that starts to wear off, I can sort through my images and work on editing them… which is only possible because I can do that with my laptop while lying in bed. If I had to sit at a desk, I could not be a photographer.
Using my laptop and my Wacom tablet, I can create art again. There was a while as I was getting sick where I was truly terrified that art would be taken away from me. In one sense, that did happen, since I had to put away the pencils and paintbrushes which became too painful to wield, but art abhors a vacuum as much as nature does, and photography quickly sprang up in its place, with help from my photographer husband.
Photography has given me a voice. But it’s more than that. It’s given a voice to all of us who suffer from these invisible illnesses. When I started shooting the images which would become a part of my Enchanted Sleep series, portraying what life with ME is like, I never dreamed that other people with illnesses would flock to it like they have. I unintentionally tapped into an underserved community, and those within it have made their approval loudly known. I didn’t set out to capture anything but my own experiences, but in doing so, I captured all of ours.
ME alone effects millions across the globe. There are millions and millions more who bear other invisible illnesses, and you might have no idea that they carry these with them everywhere they go. Most likely, you know someone with one of these illnesses, though it might be undiagnosed. Most of the invisible illnesses tend to be diagnoses of exclusion; meaning there’s no one test for this disease, so you have to rule out EVERYTHING else that it could be before you decide what it is. It’s a long, grueling process, and not everyone really wants to know what’s wrong with them anyway. For me, I couldn’t stand not knowing.
Your aunt who often complains of pain? Your friend who frequently has to cancel plans? Your sibling who gets migraines which always come at the worst times? They may have one of these diseases.
The online chronic illness community (spoonies, we call ourselves) is extremely supportive, but we need to have healthy people on our side too. We need real changes to be made in the world, and frankly, we are too ill to do it all on our own.
These are not diseases which merely dampen our fun or mildly cramp our style, these are diseases which kill. Sometimes that death is a suicide, as the patients cannot stand the suffering any longer. Even if left to more “natural” courses, these illnesses are evil thieves and rob us of years. They take away our livelihood, our joys, our passions and, eventually, our lives.
Here’s how this giveaway works. It’s going to be very easy and there are quite a lot of ways for you to enter!
First thing: subscribe to my blog if you haven’t already. There’s a button in the upper right-hand section of the screen for you to enter your email address (which you may do safely, without fear of spamming or other annoyances). Do that, then move on to step two:
You have your choice here! You can either:
Retweet the facts I’ve tweeted about ME (these are embedded at the bottom of this post to make things super easy – you can like or retweet it without even leaving this page!)
(The Facebook and Instagram posts and tweets are all embedded at the bottom of this post to make things super easy – you can like, retweet or share it without even leaving this page!)
Like and re-blog this post if you’re a WordPress user
You can do all of those, too! One note, if you choose to retweet any of my tweets, each new retweet will count as an entry. I’ve given you quite a lot to choose from, mainly because I couldn’t narrow it down myself any more! 😉 So, for example, if you retweet all 11 tweets, that will count as 11 entries for you. However, if you retweet the same tweet more than once, that does NOT count at as extra entry. The maximum possible Twitter-related entries you can get is 11. The same idea goes for the other social networking sites too. If you share my Facebook post, that’s an entry. If you share the same post twice (which I’m not sure you can do, but let’s say for argument’s sake that you can), then you still only get one entry.
And lastly, whichever social media platform you decide to use to enter the contest from, you must like/follow me there (and here on the blog) for the entry to count!
Now, those are all very important ways for you to enter the contest to win a gorgeous print for yourself. A large part of why the entries are based in social media is to help raise more awareness about ME (and other invisible illnesses) by word of mouth. However, there is another way you can get more entries for yourself.
Any purchases on ANY of the items I sell from today, May 4th, through midnight, PST, May 27th will count as entries! This means that EACH INDIVIDUAL ITEM that you buy counts as its own entry. If you buy five t-shirts from my Red Bubble shop, that’s five extra entries for you!
And on top of the purchases going toward extra entries for you, 25 PERCENT of ALL PROFITS on ALL ITEMS purchased will be donated to theMicrobe Discovery Project! The Microbe Discovery project is a wonderful organization here in the US actively looking for a cause and cure for ME. I strongly believe in what they do, which is why I have chosen them to benefit from my sales.
It’s a very win-win situation! You get to buy whatever it is that you’ve had your eye on, you get extra entries into the print giveaway and ME research is supported at the same time!
On May 29th, I will randomly pick one winner from all the entries and that person will receive the print! It will be signed and numbered and shipped to wherever you live, even if it’s the other side of the world! 🙂
One last note about purchases, if you make a purchase, please leave a comment here on the blog and tell me what you purchased and where it was from. Some of the sites I sell through hide the buyer’s info from me, so I won’t always be able to tell who bought what. I want to make sure your purchases are properly accounted for!
Prices are the same regardless of where you buy, so there’s no need to worry about having “hiked-up gallery prices” 🙂 My Etsy shop also has a few pieces of “wearable art,” some of which is inspired by DreamWorld characters and some of which was inspired by The Last Unicorn! There’s also a whole section of ME-inspired images from my Enchanted Sleep series!
Through my Red Bubble shop I sell all of the following items with my images on them:
Aly took and sent me this lovely shot of her carrying her tote bag! It was a bit strange at first to see my friend carrying a bag with my face in it 😉 We we both quite thrilled with the quality and according to Aly, it’s been getting tons of compliments and the straps are the perfect length!
INTROSPECTIVE is much more about self-discovery than it is about knowing what f-stops are or having fancy equipment. You don’t even have to have an actual camera; your phone will do perfectly well! The course emphasizes self portraits as a way to get to know yourself better, but the definition of “self portrait” here is quite loose. You never have to appear in an image unless you really want to. What I mean by “self portrait” in this case is simply any photograph which shows me something about who you are as a person!
This is a very relaxed, reflective class. There are no grades and no wrong answers! For eight weeks, you will receive a new theme each week and your assignment will be to create an image around that theme which reflects you. Love, joy and fears, for example, are all things you would be asked to create around.
This class is very unique! I modeled it after my own journey of self-discovery as I started taking self portraits. The art therapy was so helpful and healing to me that I wanted to give that back to the world in some way, so I createdINTROSPECTIVE!
And as an extra bonus, here’s a special coupon code for INTROSPECTIVE! Use the code May12ME25 to take 25 percent off the cost of the course! Now that’s a win-win-win!!
I know you guys hear me talk about ME quite a lot, but here’s the thing. It matters. It really, really fucking matters.
There is so much confusion, misunderstanding and so many flat-out lies about ME that we all need to work extra hard to shine the light of truth on it. It’s not all the public’s fault; after all, they’ve been lied to by medical professionals for decades. It all came unraveling in the 80’s when ME’s name was intentionally changed to “Chronic Fatigue Syndrome” and given the belittling nicknames of “the yuppie flu,” “the disease of depressed, menopausal women” and, more recently, “fat, lazy housewife disease,” just so insurance companies could deny patients coverage.
ME does not discriminate. It does not target people by color ,gender, social status or age. It attacks anyone and everyone it can. It destroys lives. It brings promising careers to grinding halts. It is not a way to “get a free ride;” we struggle just to sit up and get out of bed.
It could be your sister. It could be your boyfriend or girlfriend.
It could you.
How many more lives have to be sacrificed on the alter of insurance companies’ desires to not pay out before we get change? How many more patients have to take their own lives in despair? How many more seriously ill patients have to endure the most hateful slurs you can imagine being thrown at them? How many doctors will sigh, roll their eyes and tell us there’s nothing wrong with us psychically, that our problems are all in our heads?
No more.
We cannot let this happen to one more person. Too many have endured this already.
We have the power to make radical changes. We have the power to change society’s view of us, to force the government to give us proper funding, to stop treating us like Cinderella instead of their own daughters. We have the power to unlock the mystery of ME and find a cure. We CAN do this. But we must come together, make our voices heard and DEMAND it. It will never be easily handed to us. Too many huge companies are invested in not spending any money on those with ME. But while history shows us many ugly truths, it also shows us that we, the common people, have great power in our hands to bring about the changes we want.
We just have to ask for it loudly enough.
Please join me in demanding change for patients with ME. Things cannot continue the way they are any longer.
And as you help me advocate for invaluable change in the world, you’ll also be giving yourself a chance to win a gorgeous, fine art print 🙂 Help me with this. And thank you.
[*Because the United States does not officially recognize the name “myalgic encephalomyelitis,” despite decades of public outcry for change and hundreds of thousands signing petitions, they continue to stick to “Chronic Fatigue Syndrome” or “fibromyalgia.” Depending on which doctor of mine you talk to, I may have three different diagnoses. The US is especially complicated in how it defines – or, rather, it’s lack of definition – the differences between the three so it’s impossible to talk about one in the US without talking about all of them. For the record, they are NOT all the same disease, but that is essentially how the US treats them. I know that what I have is ME and not the other two, but many of my doctors had not have heard of ME until I told them about it. ME has scientific, diagnosable guidelines, which I fit, but the country still refuses to adopt the name and its excellent guidelines. If you’re interested in learning more about why this is, here’s an article for you, but for this post, I will leave the subject there.]
May 12th is recognized across the globe as Invisible Illness Day. Though most people are unaware of its significance… which is part of the problem.
It’s a day for bringing more awareness to diseases like fibromyalgia, Chronic Fatigue Syndrome, rheumatoid arthritis, Lyme disease, lupus, multiple sclerosis and Crohn’s Disease, along with many others. Diseases which can have horrific, devastating effects on the person’s life, yet may not outwardly show. They can be completely disabling, and the patient still looks “normal” to the world.
And of course, this list includes myalgic encephalomyelitis, or ME, which I have.*
What ME is –
I’ve spokenquite a lotabout MEon my blog, so a lot of you probably know the basics of it. But for anyone new, here’s a quick summary. ME is a neurological disease defined, in part, by:
Profound fatigue which is unrefreshed by rest and sleep.
Chronic pain, which can occur anywhere in the body, but is especially common in muscles and joints.
Insomnia and other sleep disturbances, despite your constant exhaustion.
Post-exertional malaise (meaning you feel worse after you exert yourself — and the exertion can be as simple as a trip to the grocery store or walking to your mailbox).
Neurological problems, a.k.a. “brain fog.” This can manifest in the form of sudden clumsiness, tripping and falling, being unable to recall a word you knew just a second ago, suddenly forgetting how to read or write, forgetting your name… you get the idea.
Headaches of new or worsening kinds (I never had migraines until ME started sinking its talons into me).
Dysfunctional immune systems (if there’s a cold going around, I will get it).
Hyper-sensitivity to any and all stimuli — I describe it as the volume in my brain being turned up to “11.” Noises are very loud to me, lights are bright, smells overwhelming… the scent sensitivity means that anything artificially fragranced makes me nauseated, but it has led to me find small, unnoticed gas leaks inside houses on several occasions.
Post-Exertional Neuroimmune Exhaustion (your brain functions worse in every way after even minimal efforts — mental or emotional efforts as well, not strictly physical ones).
Low threshold of physical and mental fatigue (lack of stamina) resulting in a substantial reduction in pre-illness activity level — things you did before you were sick are now out of the question.
And so on. Because ME affects every system of the body, in a way somewhat similar to multiple sclerosis, the symptoms can vary from person to person, but these are the classic signposts of the disease.
I have what would be defined as a “moderate” case of ME. A mild case would be someone who could still maintain a somewhat normal life, but would probably need extra recovery time after big events, help lifting heavy objects, etc. Moderate, like what I have, is someone who can’t work a normal job, is partly or completely house-bound, may not be able to drive and has a great deal of their life impacted by the disease. Their world becomes much, much smaller and quieter. Severe cases… you wouldn’t wish them on your worst enemy. These are people who are completely bed-bound, unable to care for themselves in the most basic ways, unable to tolerate any light, sound or touch. They lay in dark rooms in silence, often on morphine drips for their severe pain… and this can last for decades. It’s been described as “a living death,” and for good reason. It’s truly horrifying. This is often the time when patients try to take their own lives.
I would like to say that I spent a great deal of reflection on coming up with the idea of my bed being my kingdom, but it was more of a response to thinking, “Shit, I have this video… now I need a name for it…” But I think it holds true despite it’s spur-of-the-moment conception.
When you spend the vast majority of your time inside your house, it becomes your entire world. If, on a good day, I take Calantha for a walk around the block, I feel like a Viking setting off to explore new lands (but not planning on Blood Eagle-ing anyone). If my house is my world, my bedroom is my home, and my bed becomes my kingdom.
Though it is a queen-sized kingdom, it is a kingdom nonetheless. This is where I am most myself, most honest, most raw, most pure. I spend most of my time here, in my PJs, hair a mess and no makeup (because who’s going to see it, I don’t feel like putting it on, and I especially don’t feel like washing it off). This room is most set up for my comfort and is bent to my will. Why is there such a huge pile of stuff always on my nightstand, or next to my side of the bed? Because then I can reach it easily, no matter what state I’m in. Geoff’s side is spick and span, while mine is a crazy jungle, but that’s how it has to be. In this whole world of things which cause us pain and discomfort, we need there to be someplace that is designed for us. That is, usually, our beds. And in my bed, I rule.
Some people are surprised to learn I have a chronic illness, especially one which confines me to my house and bed so much, since I seem to produce a lot of art. It’s all the result of verycareful planning of everything. I keep my shoots very short and I plan several concepts I can shoot one right after the other while I have my model. My shoot is usually the only major thing I have planned for the week. Actually, it’s usually the only major thing I have planned that month. If we’re driving to a location, my model will usually drive us since I’m often feeling too tired. I try to bang out as many concepts as I possibly can, then I crash. Usually the next two or three days will be awful, and I will pay dearly for my shoot. But after that starts to wear off, I can sort through my images and work on editing them… which is only possible because I can do that with my laptop while lying in bed. If I had to sit at a desk, I could not be a photographer.
Using my laptop and my Wacom tablet, I can create art again. There was a while as I was getting sick where I was truly terrified that art would be taken away from me. In one sense, that did happen, since I had to put away the pencils and paintbrushes which became too painful to wield, but art abhors a vacuum as much as nature does, and photography quickly sprang up in its place, with help from my photographer husband.
Photography has given me a voice. But it’s more than that. It’s given a voice to all of us who suffer from these invisible illnesses. When I started shooting the images which would become a part of my Enchanted Sleep series, portraying what life with ME is like, I never dreamed that other people with illnesses would flock to it like they have. I unintentionally tapped into an underserved community, and those within it have made their approval loudly known. I didn’t set out to capture anything but my own experiences, but in doing so, I captured all of ours.
ME alone effects millions across the globe. There are millions and millions more who bear other invisible illnesses, and you might have no idea that they carry these with them everywhere they go. Most likely, you know someone with one of these illnesses, though it might be undiagnosed. Most of the invisible illnesses tend to be diagnoses of exclusion; meaning there’s no one test for this disease, so you have to rule out EVERYTHING else that it could be before you decide what it is. It’s a long, grueling process, and not everyone really wants to know what’s wrong with them anyway. For me, I couldn’t stand not knowing.
Your aunt who often complains of pain? Your friend who frequently has to cancel plans? Your sibling who gets migraines which always come at the worst times? They may have one of these diseases.
The online chronic illness community (spoonies, we call ourselves) is extremely supportive, but we need to have healthy people on our side too. We need real changes to be made in the world, and frankly, we are too ill to do it all on our own.
These are not diseases which merely dampen our fun or mildly cramp our style, these are diseases which kill. Sometimes that death is a suicide, as the patients cannot stand the suffering any longer. Even if left to more “natural” courses, these illnesses are evil thieves and rob us of years. They take away our livelihood, our joys, our passions and, eventually, our lives.
A DreamWorld/Enchanted Sleep crossover print giveaway!
I try to always do something around May 12 to help bring awareness to ME and its sister diseases. This year, I’m going to be giving away a print of a brand-new image… one which won’t be revealed until May 12th itself. It’s going to be a really, really great image though, I can promise you 🙂
This one will feature model Katie Johnson, and it’s so complicated, I’ve been working on it on and off for about two years. I had to put it aside for a long time until I upgraded my laptop. The file size was SO huge, I could only work on it for about ten minutes before it would crash my entire computer. Obviously, that didn’t work for me. It’s still a monster of a file, but on the new machine it only crashes Photoshop every few days, which is much better..
This image will be very unique in that it straddles both DreamWorld and Enchanted Sleep, a foot in each world like the Pillar of Hercules. No other image of mine does this. It will be a first on several fronts!
Another thing about this image that’s special is that it will be the first to be printed on my new, museum-quality paper of choice: Hahnemuhle pearl paper. You really have to see it to believe it. It is a thick, luscious paper with a bit of texture to it, similar to watercolor paper. What pushed me over the edge into switching to this paper though, is the very subtle, pearlescent shimmer built into the paper. It is magic. And it compliments the ethereal nature of my work so well, it seemed we were made for each other.
Did I mention that this special new print is a $400 value?
Is your interest peaked? Want to win the print for yourself? Instructions are right below. 🙂
Here’s how this giveaway works. It’s going to be very easy and there are quite a lot of ways for you to enter!
First thing: subscribe to my blog if you haven’t already. There’s a button in the upper right-hand section of the screen for you to enter your email address (which you may do safely, without fear of spamming or other annoyances). Do that, then move on to step two:
You have your choice here! You can either:
Retweet the facts I’ve tweeted about ME (these are embedded at the bottom of this post to make things super easy – you can like or retweet it without even leaving this page!)
Like and re-blog this post if you’re a WordPress user
You can do all of those, too! One note, if you choose to retweet any of my tweets, each new retweet will count as an entry. I’ve given you quite a lot to choose from, mainly because I couldn’t narrow it down myself any more! 😉 So, for example, if you retweet all 11 tweets, that will count as 11 entries for you. However, if you retweet the same tweet more than once, that does NOT count at as extra entry. The maximum possible Twitter-related entries you can get is 11. The same idea goes for the other social networking sites too. If you share my Facebook post, that’s an entry. If you share the same post twice (which I’m not sure you can do, but let’s say for argument’s sake that you can), then you still only get one entry.
And lastly, whichever social media platform you decide to use to enter the contest from, you must like/follow me there (and here on the blog) for the entry to count!
Now, those are all very important ways for you to enter the contest to win a gorgeous print for yourself. A large part of why the entries are based in social media is to help raise more awareness about ME (and other invisible illnesses) by word of mouth. However, there is another way you can get more entries for yourself.
Any purchases on ANY of the items I sell from today, May 4th, through midnight, PST, May 27th will count as entries! This means that EACH INDIVIDUAL ITEM that you buy counts as its own entry. If you buy five t-shirts from my Red Bubble shop, that’s five extra entries for you!
And on top of the purchases going toward extra entries for you, 25 PERCENT of ALL PROFITS on ALL ITEMS purchased will be donated to theMicrobe Discovery Project! The Microbe Discovery project is a wonderful organization here in the US actively looking for a cause and cure for ME. I strongly believe in what they do, which is why I have chosen them to benefit from my sales.
It’s a very win-win situation! You get to buy whatever it is that you’ve had your eye on, you get extra entries into the print giveaway and ME research is supported at the same time!
On May 29th, I will randomly pick one winner from all the entries and that person will receive the print! It will be signed and numbered and shipped to wherever you live, even if it’s the other side of the world! 🙂
One last note about purchases, if you make a purchase, please leave a comment here on the blog and tell me what you purchased and where it was from. Some of the sites I sell through hide the buyer’s info from me, so I won’t always be able to tell who bought what. I want to make sure your purchases are properly accounted for!
Prices are the same regardless of where you buy, so there’s no need to worry about having “hiked-up gallery prices” 🙂 My Etsy shop also has a few pieces of “wearable art,” some of which is inspired by DreamWorld characters and some of which was inspired by The Last Unicorn! There’s also a whole section of ME-inspired images from my Enchanted Sleep series!
Through my Red Bubble shop I sell all of the following items with my images on them:
Aly took and sent me this lovely shot of her carrying her tote bag! It was a bit strange at first to see my friend carrying a bag with my face in it 😉 We we both quite thrilled with the quality and according to Aly, it’s been getting tons of compliments and the straps are the perfect length!
INTROSPECTIVE is much more about self-discovery than it is about knowing what f-stops are or having fancy equipment. You don’t even have to have an actual camera; your phone will do perfectly well! The course emphasizes self portraits as a way to get to know yourself better, but the definition of “self portrait” here is quite loose. You never have to appear in an image unless you really want to. What I mean by “self portrait” in this case is simply any photograph which shows me something about who you are as a person!
This is a very relaxed, reflective class. There are no grades and no wrong answers! For eight weeks, you will receive a new theme each week and your assignment will be to create an image around that theme which reflects you. Love, joy and fears, for example, are all things you would be asked to create around.
This class is very unique! I modeled it after my own journey of self-discovery as I started taking self portraits. The art therapy was so helpful and healing to me that I wanted to give that back to the world in some way, so I createdINTROSPECTIVE!
And as an extra bonus, here’s a special coupon code for INTROSPECTIVE! Use the code May12ME25 to take 25 percent off the cost of the course! Now that’s a win-win-win!!
I know you guys hear me talk about ME quite a lot, but here’s the thing. It matters. It really, really fucking matters.
There is so much confusion, misunderstanding and so many flat-out lies about ME that we all need to work extra hard to shine the light of truth on it. It’s not all the public’s fault; after all, they’ve been lied to by medical professionals for decades. It all came unraveling in the 80’s when ME’s name was intentionally changed to “Chronic Fatigue Syndrome” and given the belittling nicknames of “the yuppie flu,” “the disease of depressed, menopausal women” and, more recently, “fat, lazy housewife disease,” just so insurance companies could deny patients coverage.
ME does not discriminate. It does not target people by color ,gender, social status or age. It attacks anyone and everyone it can. It destroys lives. It brings promising careers to grinding halts. It is not a way to “get a free ride;” we struggle just to sit up and get out of bed.
It could be your sister. It could be your boyfriend or girlfriend.
It could you.
How many more lives have to be sacrificed on the alter of insurance companies’ desires to not pay out before we get change? How many more patients have to take their own lives in despair? How many more seriously ill patients have to endure the most hateful slurs you can imagine being thrown at them? How many doctors will sigh, roll their eyes and tell us there’s nothing wrong with us psychically, that our problems are all in our heads?
No more.
We cannot let this happen to one more person. Too many have endured this already.
We have the power to make radical changes. We have the power to change society’s view of us, to force the government to give us proper funding, to stop treating us like Cinderella instead of their own daughters. We have the power to unlock the mystery of ME and find a cure. We CAN do this. But we must come together, make our voices heard and DEMAND it. It will never be easily handed to us. Too many huge companies are invested in not spending any money on those with ME. But while history shows us many ugly truths, it also shows us that we, the common people, have great power in our hands to bring about the changes we want.
We just have to ask for it loudly enough.
Please join me in demanding change for patients with ME. Things cannot continue the way they are any longer.
And as you help me advocate for invaluable change in the world, you’ll also be giving yourself a chance to win a gorgeous, fine art print 🙂 Help me with this. And thank you.
[*Because the United States does not officially recognize the name “myalgic encephalomyelitis,” despite decades of public outcry for change and hundreds of thousands signing petitions, they continue to stick to “Chronic Fatigue Syndrome” or “fibromyalgia.” Depending on which doctor of mine you talk to, I may have three different diagnoses. The US is especially complicated in how it defines – or, rather, it’s lack of definition – the differences between the three so it’s impossible to talk about one in the US without talking about all of them. For the record, they are NOT all the same disease, but that is essentially how the US treats them. I know that what I have is ME and not the other two, but many of my doctors had not have heard of ME until I told them about it. ME has scientific, diagnosable guidelines, which I fit, but the country still refuses to adopt the name and its excellent guidelines. If you’re interested in learning more about why this is, here’s an article for you, but for this post, I will leave the subject there.]
My work has been accepted intoA Gallery! A Gallery is a fantastic online gallery who represents some truly stellar other artists in whose company I am proud to be. You might know of Christy Lee Rogers or Tyler Shields, who are both extraordinary and whose work I knew before I was to be shown alongside them. One of the most giddy, fan-girl moments though was discovery A Gallery also represents Chris Parks whose work you will know if you’ve seen one of my very favorite movies ever; The Fountain. That magical, swirly, organic background used in so many shots (especially in clouds of stars and gas in space) are his creation.
Chris Park’s dreamy, swirly, organic creations in The Fountain
Chris Park’s dreamy, swirly, organic creations in The Fountain
*Squealing, fan-girl hopping*
Ahem. I am VERY happy to have found such a wonderful home for my art! I’m thrilled to be working with A Gallery’s owner, Fraser Scott; it’s going to be a really great, long-lasting relationship for everyone involved! I can’t wait to see what this brings!! This feels like a really big accomplishment to have checked off my life’s to-do list… and yes, there was champagne when I checked it off 🙂
When you purchase a print, you will receive one of my gorgeous, luscious, limited-edition, signed and numbered museum-quality prints, printed on the thickest, most delicious fine art paper. I am going to be printing all my images on Hahnemuhle Fine Art Pearl Paper. It’s almost like a watercolor paper and it picks up every tiny detail for your viewing pleasure! As a wonderful bonus, the paper itself is ever-so-slightly shimmery, which truly adds a whole other depth to the images and enhances their magical, mythical feel. It’s been a long time searching for exactly the right paper which would give me the lifetime of quality I want along with the subtle, fae-like touch of pearl, and this paper is it. You really have to see it to understand how gorgeous it is
I have sung the praises of my printers, POV Evolving, before and I’ll say it once more. They are not close to me. Their location is somewhere between a hassle and a nightmare to get to, I can never go without getting a little lost coming or going, and it’s a big mental and physical drain to make the trip down. I don’t care. Their work is so fantastic, I do not care where they are, how long it takes, how snarly the traffic is; it’s completely worth it! Lauren, who does my printing, is also a truly lovely person who makes the trip extra worthwhile by being so pleasant when you get there. Pleasantness aside, POV just does astonishing work which will last a lifetime and more. I have been told by clients who have my work hung in their homes, that when people come over and see my prints for the first time, there are often gasps. I feel immodest saying that, but that really is the level of beauty you’ll be getting!
It feels truly wonderful to have found a home gallery run by such a great person who has a commitment to my work, an emphasis on working ethically with everyone, and being in the company of such immensely talented other artists!
I’ve scattered some of Fraser’s image choices through this post, but please take a look at which images he has selected for his prestigious gallery! And if something strikes your fancy, feel free to purchase a print for yourself or a loved one! 🙂
Originally, I’d intended on posting this around Black Friday/Cyber Monday but I was prevented by forces outside my control. The week of Thanksgiving, Los Angeles was oppressed relentlessly by Santa Ana winds which are always a challenge to my body, but especially so this time.
With my recent sinus surgery (which I still need to tell you about!) I was already at less than my usual lower-than-average health and my sinuses just about lost the will to live once the winds started. This meant almost a week of migraines every day, but even after the worst of it had passed, I was terribly behind on everything I hadn’t been doing while I was laying in the dark with an ice pack on my head. Things fell behind.
This really has no connection to either Black Friday or Cyber Monday now but a large percentage of my sales happen around the holidays, so I hope you’ll indulge this post anyway 🙂
I have a perfect gift idea for anyone in your life (or perhaps you!) who is a bit artsy or introverted or just wants to develop their self-awareness. INTROSPECTIVE: A Photographic Quest is a truly unique experience unlike anything else I’ve found. I created this online workshop after searching for something like it, and not finding anything that resonated with me. In the eight-week course, you will use your camera to explore your inner self, receiving a new assignment each week challenging you to delve into your secrets, fears and joys.
A Student’s Image
No photography experience is needed (although links to more technical information are provided for anyone who wants to learn more about it). This is not a class about photography, it’s about you taking you exploring your inner self, making new discoveries and using art to document what you find. It’s also an extremely therapeutic experience; I based the structure of the class on the healing I found in photography and self portraiture.
A Student’s Image
In a sense, you could say it’s a course about self portraiture since everything you create will be imbued with who you are, but there are no requirements to put yourself within the image, or even have any people in your images. If you find that, say, tea leaves on a saucer express what you’re feeling, that’s just as valid as any other way of expressing yourself!
You will learn about yourself over these eight weeks and make wonderful discoveries. The best, and most long-lasting, of these may just be discovering the profound healing power in art. This is an eight-week adventure full of fun and joy in a safe, love-filled environment. If you want to share your images with the world, you’re more than welcome to, but there’s no requirement to do so. INTROSPECTIVE is about you, through and through.
A Student’s Image
With the new year and its resolutions quickly approaching us, I can’t think of a better gift to start the year off with! Whether you take the class yourself or give it as a gift to someone, I can guarantee that not only will it be completely different than every other gift you or they will receive, but that it will do wonders for the soul of every participant.
To jump-start this for the holiday season, I’ve created a special promotion to receive $25 off INTROSPECTIVE! That’s 30% off! Just enter code INTROXMAS2014 when you check out, whether you’re buying for yourself or someone else 🙂
A Student’s Image
I’d like to point out that INTROSPECTIVE has not been hosted on Udemy for its whole existence; in the beginning, I hosted it on my site. While Udemy shows that very few people have taken the course, the number is actually higher. And somehow some of the reviews have gotten erased as well. Sigh. Luckily, I have another one I can share with you from student Aly, two of whose photos are right above and below!
“I have taken part in Sarah’s Introspective course twice, not because I missed anything the first time, but because her course offers the unique quality of fresh opportunity for introspection and growth, with each round. Much like a “Choose your own Adventure” book (but with far more substance, of course), the beginning, journey and end of thePhotographic Quest are what you make it, with Sarah’s guiding topics, suggestions, questions and technical encouragement, to keep the journey on track. Through her course, I created several self portraits which spoke from my heart, of which I am very proud and thankful to have been guided toward. I absolutely recommend Introspective: A Photographic Quest, for anyone interested in exploring themselves through self portraiture. I’ve come from this course with much more confidence in my ability to realize self portraits, from concept to fruition, and of course, a closer understanding of myself, through this Introspective journey.“
A Student’s Image
Thank you, Aly! Her review sums up what I want the class to be for everyone; something you can return to again and again, adjusting it for yourself each time. And you can retake it at any time; the lesson outlines are downloadable, so you can go through the journey as many times as you want for the one price of admission!
A Student’s Image
With all that said, think about INTROSPECTIVE as a gift for yourself or a loved one. It will certainly be a completely unique gift, unlike anything else they might receive! And with the benefit of being able to repeat it at any point, it just keeps giving 🙂 On top of that, use code INTROXMAS2014 when you check out to get an entire 30% off! I hope you’ll take the journey and go on an adventure!
A Student’s Image
I’d love to hear your thoughts about it, both as you’re on your quest and after. And if you upload your images to the Flickr group for INTROSPECTIVE, they just might get featured here!
Be bold! Go on a quest and return a deeper person 🙂
First of all, happy Thanksgiving to all who celebrated it! I had planned on a Thanksgiving post, listing what I’m grateful for and whatnot, but I woke up yesterday with a swollen, very unhappy wrist on my dominant hand. I’m being ginger with it today, and trying to really limit my computer use, but I did want to get this timely post out.
So, the holiday shopping season has officially begun! I, for one, despise the idea of shopping on Thanksgiving or Black Friday. Crowds are not my thing in the best situation. Even a gentle trip to the grocery store on an average day can be too much for me. This is my hiding out period where I really try to leave the house as little as possible.
A less stressful approach to holiday shopping, in my opinion, is in Small Business Saturday and Cyber Monday. Now, I may or may not technically qualify as a “small business,” but I think I fit the spirit of it if not the letter 🙂 You don’t get much smaller than buying from a single person! And Cyber Monday? Heck yeah, I’ve got that covered! Everything of mine is available online.
And what, pray tell, are these wondrous wares? Well, let me give you a little run-down! I have blank greeting cards available at my Red Bubble shop!
One of the many blank greeting cards I offer.
Personally, I love having a stash of blank greeting cards in a drawer, ready to go at a moment’s notice! You never know when you might need them. And I’ll confess, I sometimes buy cards for their sheer beauty, with no intention of giving them away. Those ones usually end up on my wall somewhere. Either way, they’re very well-made, handy and inexpensive! And if there’s an image you’d like but don’t see in my shop, let me know; in almost every case I can add it for you! Stocking stuffers, anyone? I also sell 2014 collectable calendars!
Sarah Allegra 2014 Calendar
Each year I put out a new calendar with 12 of my most popular recent works. This year’s batch includes images from my DreamWorld and actor portraits series as well as my CFS/fibro/ME series Enchanted Sleep. I genuinely love the quality Red Bubble puts into their calendars; they’re printed on gorgeous, thick, heavy paper which is perfect for jotting down as many notes and reminders as you’d like! Plus, I love the extra magic the calendars sprinkle into every day. And need I tell you they make excellent gifts? 🙂
On a side note, I keep my Red Bubble prices low so that they’re available to as many people as possible. I don’t make much from these sales, but it’s important to me that as many people as possible have access to my images.
Introspective is a fun and truly unique, eight-week experience. Each week I will guide you through a new concept to explore with photography, such as love, fear, secrets and joy. What do those subjects mean to you? And how would you portray them in a photograph? Let’s find out! Self portraiture is encouraged (as I think it’s an invaluable way to know yourself better), but by no means is it required. At the end of the eight weeks, you’ll have gotten to experience yourself in a new way and learned things you never knew before.
This would be perfect for your artsy sibling, the person who has everything or anyone with a desire to have an adventure and come out knowing themselves better! And of course there are always prints available!
I sell prints through my Etsy shop, which are printed by an amazing local printer. They are printed on museum-quality, archival, thick, luscious paper which is not unlike watercolor paper. All the images are printed in very small, limited edition runs and come individually signed and numbered. They come in three different sizes and are truly stunning. These really have to be seen to appreciate how beautiful they are. The level of detail captured in these prints is spectacular. And as with the cards, if you would like a print of something and you don’t see it in my shop, just let me know! In almost every occasion, I can accommodate your request.
Thank you to everyone for supporting my art through your kind comments, well wishes and purchases. I so appreciate all of them and I hope everyone has an excellent holiday season! Here’s a lovely DreamWorld image, featuring the gorgeous Katie Johnson!
Mythic Pictures 