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I have actually known about Forgotten Plague for a couple of years and I’ve been anxiously awaiting its release!

Forgotten Plague (2015)

Now, finally, the documentary has been completed and it is available to stream through Itunes or Amazon for $4.99.  That is an amount I am more than happy to give to help support one of the few existing documentaries on ME/CFS.

Forgotten Plague’s creator, fellow ME/CFS sufferer Ryan Prior, does an excellent job of explaining just what ME/CFS is (as far as we currently know), what makes it so complicated to understand and treat, how it has been stigmatized and ignored by the medical community, and hopeful glimpses of a future with answers… maybe even a cure.

Honestly, I woke up today already at the end of my energy.  I feel like I can barely string words together right now, but this movie is far, far too important for me to not spread the word about it right away.  We NEED movies like this.  We need people who do not have ME/CFS or personally know someone with it to understand our struggle.  We need healthy people to help us fight for answers.  We need the stigma and misunderstandings to end.  We need people to have any idea what we’re talking about when we tell them we have myalgic encephalomyelitis.

Please watch Forgotten Plague, tell your friends about it, share it on social media.  This excellent film could help our community in profound ways, and we need that to happen.  Everyone wants to be understood.  At worst, watching this movie will help you get what my life is like.. and why I have had to slow down so greatly in all areas.  And you’ll probably enjoy my Enchanted Sleep series, on living with ME/CFS, a little bit more.

Thank you to everyone who will watch it and share it.  And a huge thank you to everyone who helped work on this magnificent documentary.  I’m sure it was utter hell at times, trying to make a movie while having ME, but the results are brilliant.  Thank you for validating our experiences.

Now, go watch Forgotten Plague!

A Poisoned Sleep And Kissless Dreaming

A Poisoned Sleep Of Kissless Dreams © Sarah Allegra – model: Katie Johnson. An image from my Enchanted Sleep series.

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A Cry From The Darkness

A self portrait that belongs to my Eternal Storm series, which explores depression, anxiety and other mental illnesses. A Cry From The Darkness © Sarah Allegra – a self portrait – detail

Wow, it feels like FOREVER since I finished my last piece!  This year has not been conducive to creating art.  I’ve done my best despite the circumstances which kept popping up (moving, medications, long ME flares, devoting a ton of time to the gallery show, stress from my recent battle among other things) but it’s felt like a very dry year creatively.  All I can do is my best though, and even when the ME really cramps my style, I still manage to get pieces finished… just much more slowly than I would like.

It was in this depressed feeling of “I haven’t created anything in the longest time imaginable” that today’s image was born.  When my regular creative outlets are blocked to me (by, say, solid weeks of migraines as I adjust to each new medication dosage), I become despondent and depressed.  Life slowly loses its flavor and color and if I’m not careful, I’ll sink into a pit of despair just like Artax in The Neverending Story.  Luckily, I have Geoff and my friends and family around to cheer me on and make sure I never sink too low, but much of it is outside of anyone’s control.

As I mentally pictured how I felt, this was it.  A big, ugly cloud of despair, depression, worthlessness, swirling around my head.  But this time, unlike my last self portrait which explored a similar theme, I wanted to show a bit of hope at the same time.  The cloud is surrounded, penetrated and pierced by beautiful, golden rays of light.  They stream in through the darkness, weaving through its thick blackness.  The darkness cannot survive in the light.  It will be broken up and dissipate.  And while I know this will probably not be my last battle with depression, I also know that each round will eventually be over… and once again, the light will have won.  That is the hope I cling to when the clouds cover me.

I’d like to mention my friend and very talented photographer Robert Cornelius’s Dust to Dust series as it provided some inspiration in my planning out of the darkness cloud.  Thanks, Robert!  🙂  He’s an incredible photographer and all-around cool dude, so check out his work if you’re not familiar with it!

A Cry From The Darkness © Sarah Allegra - a self portrait

A Cry From The Darkness © Sarah Allegra – a self portrait

This image belongs to my Eternal Storms series on depression, anxiety and other mental health issues.  These topics are still seen as quite taboo to discuss, something I hope to help with by portraying what living with them is like openly and honestly.  Silence and shame never helped a single illness get cured.  We need to be able to speak openly about our experiences, without judgement or fear, if we’re ever going to healed from them.

A Cry From The Darkness

A Cry From The Darkness © Sarah Allegra – a self portrait – detail

A Cry From The Darkness

A Cry From The Darkness © Sarah Allegra – a self portrait – detail

 

Do you have depression?  Try being a little more honest next time a trusted friend asks how you are.  You don’t have to go into excruciating detail, but try to avoid the temptation to simply answer “fine,” unless you actually are.  And if you have friends or family who you suspect or know suffer from any kind of mental ailment?  Invite them to tell you about it, ask some questions, assuring them that talking to you is safe and you will not judge them or call them crazy.  It is crucial that you answer whatever they tell you with love.  It is incredibly hard for people to open up and talk to others about these problems, so take their trust very seriously and treat it with the gentlest and greatest respect.

A Cry From The Darkness

A Cry From The Darkness © Sarah Allegra – a self portrait – detail

A Cry From The Darkness

A Cry From The Darkness © Sarah Allegra – a self portrait – detail

As we approach Thanksgiving, let’s be thankful for the help and support we have.  For the people dedicated to helping us win our fight.  For the people who will listen to us with only love and understanding in their hearts.  The people who give us hope.  The inner strength we are able to find when we think we’ve exhausted it all.  Those extra beams of light when we need them the most.  We need more people like this in the world.  Let’s try and all be them to each other.  The simple fact that there are people in the world who try to reach this goal is something I am very thankful for!

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Poor, patient Katie shot this same concept with me three times, spanning almost a solid year from the first take to the last one.  I assured her each time we reshot it that the problem was not her, because it honestly wasn’t.  This was a case of me having a very clear vision in my head of how the image should look, but not taking the time to inspect it closely enough.  Each of the other two tries at this shoot came close, but there was always something just enough wrong with it that I knew I needed to reshoot it to be truly happy with the final images.

Flora Awakens

Flora Awakens

Here they finally are!  Flora is a DreamWorld character I’ve had in my head for a long time; an obvious statement given how many times I’ve tried to capture her visually, but much longer considering all the time I spent conceptualizing her and building her elaborate costume.

Flora was a nature spirit to me, the bringer of spring, renewal and life.  I strongly pictured that wherever she walked, flowers would grow in her footsteps.  I thought this was quite original until I remembered…

When I was young, I watched (over and over and over) an animated version of The Lion, The Witch And The Wardrobe, which remains my favorite film version of the novel to this day (it’s the only version which, in my opinion, gives Aslan a truly “golden” voice as CS Lewis describes it, for one thing).  In this take on the story, when Aslan is resurrected and romps with Lucy and Susan, flowers spring up wherever he steps, leaving a trail of paw-shaped floral clusters.

Ok, so the idea wasn’t exactly mine.  But at least I realized where I’d gotten the idea before I started calling it completely my own!

I started with a beautifully embroidered corset top at a local second-hand store.  I spent a while deciding if I would keep it as part of my personal wardrobe or use it for this costume, and the costume obviously won.  I decided I had enough pretty things that I don’t wear often enough as is, and it really added a lovely depth to the costume with its subtle ornateness.  The other base piece of clothing was a lovely, fluffy aqua-colored skirt made from layers of the lightest, softest netting.  This was another thing I had to seriously debate weather to sacrifice to the costume gods, but in the end, I decided I could always buy another one for myself.

bts10

 

Over the aqua skirt, I added an airy overskirt of ivory tulle, lifting it in two spots at the front with a small spray of flowers to hold it in place.  I added a layer of tulle around the top of the bodice as well to give flowers more to hold on to and also give it a dropped shoulder.

Creating is usually a messy process.

Creating is usually a messy process.

Next step, as it so often is, was to cover it with flowers!  My handy hot glue gun proved its worth again.  I tried to pick flowers which enhanced the shape I was creating in the clothing.  The wisteria dripping down from the shoulders seemed so perfect to me!

bts7

Once I had the front looking pretty much like how I’d pictured it, I started working on the most exciting part; the train!

bts6

This dress’ train started at the top of the back and went all the way down to the bottom of the skirt; a very old-fashioned and somewhat unusual style of train.  Since I knew I was going to have use my flowers carefully and wisely to make them cover everything I wanted them to, I hemmed and hawed over this part a lot; pinning flowers in place, moving them around, flipping this one and that one… Eventually I just had to start gluing flowers in place and trust that I would figure it out as I went.

The finished train!

The almost-finished train!

 

After I was satisfied with the dress, I started working on the flower footprints.

Fabric feet

Fabric feet

I traced the shape of my feet onto paper and then cut four pairs of feet out of some nice dark green material I had leftover from another project.  Again, the next step was to cover with flowers!

bts3

This gave me a total of eight feet.  I would have liked to have done a few more, but I was running out of flowers, so I had to make due.

bts2

Beware of hot glue drippings.  I still have a faint scar from where this guy landed a year ago.

Beware of hot glue drippings. I still have a faint scar from where this guy landed a year ago.

Apparently I didn’t take any making-of photos of the flower pieces for Katie’s face, hair and hands, which is too bad.  For the pieces in her hair, on her eyebrows and ears, I cut rough shapes from a thin sheet of plastic; I knew the glue would melt the plastic where it came in direct contact, but it would provide just enough of a frame to make my life easier.  They were very free-form creations, which I put together on my foam head to make sure the proportions were at least somewhat reasonable.  I had planned on cutting them slightly to fit Katie’s face when the shooting day came, but they ended up fitting her beautifully!  The pieces in her hair were held on with bobby pins and the ones of her face stayed on with a little help from garment tape.

bts cute

Katie being adorable and showing off her new prosthetics.

Her “hand flowers,” as I was calling them, were meant to show life just springing off her, literally dripping from her fingers.  These were only constructed the day before the third shoot, and I loved what they added to the images, so perhaps it’s lucky that the first two takes didn’t turn out 🙂  These were very, very easy to make.  I tied a loop of clear, stretchy cord to slide over Katie’s palms.  From each of these loops I tied three lengths of monofilament thread and randomly glued little petals and blossoms to them so it looked like they were falling.

bts hand flowers

At this point Katie and I shot the concept… then we reshot it… and then we finally shot it for a third time, which was the one that stuck.  It goes to show, if something doesn’t go right the first time, just try and use it as a learning experience!  With Katie, we always have a fun time, no matter what we shoot, so when concepts aren’t perfect right away, I haven’t wasted anything.  I had a good time with my friend, and I hopefully learned something about how I don’t want my final image to look!

With that said, allow me to show you the finished trio of images, with detail shots beneath each of them!

Spring's Awakening - detail

Spring’s Awakening – detail

Spring's Awakening - detail

Spring’s Awakening – detail

Spring's Awakening - detail

Spring’s Awakening – detail

Spring's Awakening - detail

Spring’s Awakening – detail

 

Spring's Awakening - detail

Spring’s Awakening – detail

Spring's Awakening - detail

Spring’s Awakening – detail

 

Joy Of Renewal

Joy Of Renewal

Joy Of Renewal - detail

Joy Of Renewal – detail

Joy Of Renewal - detail

Joy Of Renewal – detail

 

Life Eternal

Life Eternal

Life Eternal - detail

Life Eternal – detail

Life Eternal - detail

Life Eternal – detail

 

And here’s a few more detail shots to cover all my bases!

Flora shoot details

Flora shoot details

Flora shoot details

Flora shoot details

Flora shoot details

Flora shoot details

Flora shoot details

Flora shoot details

Flora Shoot detail

Flora Shoot detail

 

If you have a favorite of the three, I’d love to hear your opinion!

 

Lastly, before I go, I’d like to mention the lovely interview I did with the well-respected photography site PhotoFocus!  I was very honored to be their Photographer Of The Week 🙂

Read the interview HERE!

PhotoFocus

Thank you, PhotoFocus!!  And thank you to all my readers and supporters!  And an extra big, special thank you to Katie Johnson for being so patient and willing to keep redoing this one concept with me and knocking it out of the park every time!

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