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Well.  You may remember from my last post that I was talking about taking a bit of a vacation because I’ve been almost constantly sick for over two months – sick on top of any fibro or ME stuff,  I mean.  Ironically, the day I woke up and posted that, I quickly realized I was coming down with yet another cold which turned into strep throat this time.  It’s only been about 9 months since the last time I had strep throat.  Since my health has been so incredibly sub-par recently, I realized pretty quickly it was turning into strep and got myself to urgent care (again) for antibiotics (again).  Last time I had strep, I let it go for a while before I realized what it was, so I was pretty much dying every time I breathed or swallowed.  While I was certainly uncomfortable this time, it wasn’t nearly as horrific as the last episode, so I’m thankful for that.

I am just finishing up my last antibiotics today, so while I’ve been resting to get over the strep throat, I did not take the “vacation” I was planning on taking.  At this point I think I’ll try and start it now… it’s not 100% ideal since I have two appointments this week (which for me is about as many “things” as I can put into a week) but I feel like I really need to just focus on this resting up and recuperating as soon as  I can to prevent more illnesses.  I’ll probably extend it a little longer than I’d originally planned on also, but again, I think it’s very, very called for.

I saw my new ear/nose/throat doctor last Friday since I’d about exhausted my regular doctor’s knowledge of what could be going on with my crazy, absurd body this time.  The new doctor had bloodwork done to test for allergies and (assuming I can stay relatively healthy) he’s going to do a CT scan of my head in the next couple weeks to see what’s up with my sinuses, among other things.  The idea is to have the scan done while I’m at my “baseline” and not sick with anything new, so that adds another level of needing to stay quiet, rest and be healthy.

And did I mention pain spikes in the last post?  OH MY GOD, pain spikes.  And migraines.  Serious, grabbing-your-brain-in-a-vice, I-am-not-fucking-around migraines.  It was all enough that my pain specialist added a new, stronger pain medication to my collection of pills.  Do I win a prize if I collect enough pills?  Is it like Pokemon?

Today I feel well enough to write this, so I’m trying to knock it out before my energy wears off.  I’m still planning on being a little less active online than has been typical for me in the past (and of course I was VERY inactive while I was in the grip of strep) so please continue to bear with me as I work on improving my health.  I will not be intentionally ignoring or neglecting anyone.  I would much, much rather be happy and chipper and be able to do whatever I wanted, whenever I wanted, but that’s not the way things are right now.  Please don’t take any unresponsiveness on my part personally; I just may not be on the computer that day, or a migraine might not allow me to open my eyes, etc.  Regardless, it won’t be you, it’ll be me.

I did have one photo that was all ready to go, and one which doesn’t require a ton of promotion as others sometimes do.  So I’ll slip this one quietly online then go about my resting and vacationing and watching endless cat videos on YouTube through the TV.  (How amazing is it that you can watch YouTube on your TV now??  I love that!)

This image is a new DreamWorld photo, featuring the ever-wonderful Katie Johnson. It gives us a glimpse of a human girl who has been given a sleeping draught of some kind which sent her into a deep, silent slumber… who gave it to her and for what purpose are a mystery.  The billowing blue smoke tells me that something important is about to happen; perhaps a new creature will make itself manifest!  We may find out more in a later image.

We shot this… gosh, at least several months ago, though it may have been longer than that.  A while is safe to say.  I’m wearing a sweater and scarf in the behind-the-scenes photo so it was definitely NOT recently as California has been doing its best impression of the scorching depths of hell the last few months.  This is actually in my front yard (I love it when I can shoot without driving anywhere!).  There are some marvelously old trees here, and this one had a delightfully curly branch which Katie gracefully draped herself over.  It took a little maneuvering on her part to get into position without sliding right off due to the slippery fabric of the dress she’s wearing, but Katie is a pro and didn’t let that stop her.  I lit a few blue smoke bombs in my “smoke bomb bucket” and tried to scurry around, spreading the smoke generously through the frame to composite together later.  It took a number of smoke bombs and careful placement, but I was able to get pretty much all the background covered up and filled any holes in Photoshop.

Sleeping Draught - spreading blue smoke

Sleeping Draught – spreading blue smoke.  Also, ignore the way Katie’s dress is pooching strangely; I can promise you it has to do with the unusual cut of the dress and does not reflect Katie’s body 🙂

So please enjoy this latest DreamWorld photo and the detail shots below!  Thanks to Katie for always being up for all my crazy ideas and for being able to look so serene and beautiful while pretend-sleeping on an uncomfortable tree branch!  Now if I could get my hands on this sleeping draught, I think my resting would be a lot more healing and easier to handle!  Lastly, please don’t feel like you can’t talk to me or interact with me while I’m “vacationing;” I’m sure to get lonely, I just might not get back to you as quickly as I’d like depending on how the day is going.  Thanks to everyone for your support and encouragement!

Sleeping Draught

Sleeping Draught

Sleeping Draught - detail

Sleeping Draught – detail

Sleeping Draught - detail

Sleeping Draught – detail

Sleeping Draught - detail

Sleeping Draught – detail

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Before I forget, I want to thank everyone who so lovingly came together for my friend Erick!  I am extremely happy to say that he is doing much, much better and has been released from the hospital.  He isn’t through this rough patch yet, but it seems the worst is behind him and his spirit has been lifted for the fights ahead.  Thank you all dearly for your thoughts, wishes and prayers.  I know it all made a difference.

I wanted to let you all know that I’ll be taking a “vacation” for the next week or so.  I’m not going anywhere; in fact, the whole point is for me to stay at home and really, really rest.  August was one of the worst health months I’ve had in a long time, including two urgent care visits (very early in the morning) two appointments with my GP,  a 5am call to the 24 hour nurse hotline (which led to one of the GP visits but I was worried I needed to to the emergency room) two colds, one ear infection, one thing which I thought was another ear infection and turned out to be allergy-related, countless migraines and almost as many nights of insomnia as nights where I slept.  It was just a really hard month.

I had a few photography things I needed to take care of, but as of now, I’m taking a little time off.  I’m thinking a week or so, but obviously I can tinker it to fit how I’m feeling.  I may not be on social media as much for the next few days and I may or may not post a photo next week.  I actually have one ready to go but the posting requires more energy than you’d think, especially if it needs to be promoted in any way.  So that’s all to say, I’m going to hunker down and try and stay in bed in my PJs as much as possible for the next week.  I may be a little quieter online, but it won’t be forever.  🙂

And that leads me neatly into two other things I’ve been trying to find time to say between all the craziness.  One is a guest article I wrote for MESupport.Co.UK.  Louise, who runs the site, was very generous with letting me pick the topic I wanted to write about and also being extremely forgiving about how long it took me to actually get the article to her!  It was fun to write it once I actually could, and I got to use a story my dad likes to tell about me when I was very little, so give her a read 🙂

I was discussing the ALS Ice Bucket Challenge with @RidgeBackRogue, who also has ME, a few weeks ago and wondered out loud what we could do for ME that would be similar.  One of the problems with the Ice Bucket Challenge is that people with severe ME would never be able to do it; they can barely tolerate light, let alone ice-cold water.  It would be uncomfortable and a little harmful even for me, and I’m just moderate. We wanted it to be something that anyone of nearly any health level could do.

She immediately came up with a great idea: The ME Movie and Chocolate Challenge!  Guess how it works.  Within 1 week of being challenged, you must watch any movie of your liking while eating something with chocolate!  We’re pretty forgiving here, so if you don’t care for chocolate, you could substitute whatever you like best.  Then you donate the average price of a movie ticket to an ME charity – I like the Microbe Discovery Project for the US and RidgeBackRogue suggests Invest In ME for UK residents!

And while those with the most, most severe form of ME still wouldn’t be able to participate, the poor souls, this is accessible to people of a wider range of the health spectrum.

So that’s it!  I’ll be doing my ME Movie and Chocolate Challenge over the next week… what should I watch?  If I had to pick right now, I’d probably go with Cloud Atlas, The Green Mile or In Bruges… or just a bunch of episodes of Breaking Bad, True Detective or Rectify; enough to make up a movie’s-length of time.  I don’t see how I can go wrong with any of those choices!

Would anyone like to volunteer to be next?  Extra karma points to you if you do 🙂

In Between Awake And Asleep - this is what I plan on doing for the next week; magically hovering over the bed.  Or maybe I'll deign to actually lay in bed.  With PJs that are actually comfortable.  And sleep.  That all sounds better.

In Between Awake And Asleep – this is what I plan on doing for the next week; magically hovering over the bed. Or maybe I’ll deign to actually lay in bed. With PJs that are actually comfortable. And sleep. That all sounds better.

 

 

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